Does anyone have Palmoplantar Pustulosis and spinal arthritis?

Posted by anniebrook @anniebrook, Jul 5, 2022

Has anyone with 'Palmoplantar Pustulosis' have spinal arthritis ? Do you get any 'Biologic shots' which is great for the PPP but apparently helps with the spinal osteoarthritis. Saw this being Px for a patient with my issues on a UK called 'Save my Skin'.My Dr is a bit useless and the Rheumatologist doesn't want to see my because he says I do not have 'Psoriatic OA' and his RA patients need him. If a GP has no idea how to treat me and all the rheumatologists say they do NOT treat OA who the hell do I got to. ?

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Hello Anne @anniebrook I found this literature about Palmoplantar Pustulosis that describes this as an inflammatory condition, so it makes sense that one of the injections for an inflammatory arthritis problem would help. Osteoarthritis is from wear and tear on the cartilage, so I wonder if the injection could help that. Can you find another doctor for a different opinion?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8361749/

Another therapy that can help maintain proper body alignment, and thereby reduce the wear and tear caused by misalignment is myofascial release. Here is our discussion on MFR Therapy, and yo will find a lot of links to information in the beginning pages.

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are you able to try physical therapy? Have you heard of MFR before?

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@jenniferhunter

Hello Anne @anniebrook I found this literature about Palmoplantar Pustulosis that describes this as an inflammatory condition, so it makes sense that one of the injections for an inflammatory arthritis problem would help. Osteoarthritis is from wear and tear on the cartilage, so I wonder if the injection could help that. Can you find another doctor for a different opinion?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8361749/

Another therapy that can help maintain proper body alignment, and thereby reduce the wear and tear caused by misalignment is myofascial release. Here is our discussion on MFR Therapy, and yo will find a lot of links to information in the beginning pages.

Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are you able to try physical therapy? Have you heard of MFR before?

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Thank you so much for getting back to me. First of all although I am a Brit born and bred I have lived in BC,Canada for the last 17yrs. We were lucky enough to get a GP when we arrived but now it's a different story,I actually know Canadian who have never been able to register with a GP,it's crazy so there is no way I can change GP's. Also I do not want to piss off my GP by keep asking for help for my spinal pain. He just puts it down to my age what they don't seem to get is I have had this spinal pain since I was in my early 50's so it wasn't age related then. but because I hve had Fibro since I was 29yrs old they just think I am seeking a miracle. I take no pain relief because nothing works. I have also just been diagnosed with 'Erosive OA in my hands which is just icing on the cake for my future. The show I saw on TV was with Dr Emma Craythorn, Consultant Dermatologist in Harley Street London UK, only the best work there. She explained young woman suffering with PPP and Spinal OA that the cells of her skin are in overdrive and with PPP the vertebrae of the spine also go into overdrive and end up with bony spurs causing pain. This feels like me ! I have pain from my the top of my spine with little ROM of my neck, pain between my scapulae, under my right scapula from spine all round my right side, hips mainly the right side, OA in my knees and now OA in my feet. For instance I cannot sit anywhere without a back rest BUT if that's a wooden bench for instance I cannot lean back as I feel bones rubbing against the backrest in my mid back. I have had MRI's to be told the Osteophytes and cysts that show up are NOT painful ! I want to scream "well you live in my body then". I have just been existing, not living for the last 12yrs asking "well what is causing my pain then "? I get 'YOUR AGE' . Dr Emma Craythorne was adamant that the Demards or Biologics will help that patient's spine as well has her PPP. How can I get that thru to my GP when I have no PPP showing at this time that I need to try Demards/Biologics ? my husband wants us to travel but I just cannot sit long enough to be on a plane as I have to constantly shift positions.The last time I flew to UK I had so much nerve pain in my ride mid back I was moving throughout the 10hrs like someone with Huntingtons disease I nursed patients with that so I know what it looks like. I go to bed every night hoping I won't wake up in the morning as I have no life and am holding my family back from enjoying theirs.

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