Anyone deal with anger related to their epilepsy?

@santosha.
Had no clue I had anger issues against my self but was told I suppress them. Yes just started a new med and it is 4 seizures. Another one that causes other problems, they are trying to take me off that very slow and easy because of side effects. I don't know all of them yet. Thank you for your post and sharing.

@louissc
Howdy, have only started having seizures since 2024 March- numerous med changes and long time coming to understand different areas are to heal faster than others. It has taken me over two years to get where i am now. I work on trying to make life better for family and my caregivers all 3 of them. sharing some of my successes and where i believe i need a little help, the last 24 hours brought to my attention that i still have a long way to go. Next battle is my underlying anger issues that surface yesterday like a monster that is waiting to be released. I have a great hate for that anger by itself and i think i might have to get help from outside the family. As to people here in the connections and help offered it will not surprise me in the slightest that i get numerous posts. for now i have to go take care of some laindry and see how i do putting it up.

@randallshields56
Ps. daughter has health issues and still deals with a company that does not care and have let her go. i have testing in about a week to see where i stand as to meds and recoveries that are needed. Lost another friend of the family to drugs and current med they are getting me off messes with numerous parts of my body and system.

@santosha
where to start, that veteran i was caregiver for before i moved to Virginia recently passed away, that was a start to certain declines. the Anger issue was just me not stepping to the plate better. That has improved. have a great weekend.

@randallshields56
Hi Randy!
Thank you so much for your post. I'm sorry to hear that anger issues have surfaced on your road.
That realization that there's still a long road ahead is exactly the kind of thing that can bring that rage to the surface in epilepsy treatment. I felt something similar in my own journey, especially in the early years after diagnosis, and one thing I learned was to celebrate the battles already won, rather than focusing only on how far there was still to go — half cup full instead of half cup empty.
I did a quick check on XCopri and anger doesn't appear to be a listed side effect — but it's still worth discussing with your doctor whether any of your medications could be contributing to mood changes. Sometimes dosage adjustments, or switching or adding medications can affect mood in ways that catch us off guard. Have you had any recent medication changes?
And do you have any psychological support alongside your neurologist? Sometimes that outside perspective makes all the difference.
Wishing you brighter days ahead and keep us posted 🙌!
Chris

@santosha.
Had no clue I had anger issues against my self but was told I suppress them. Yes just started a new med and it is 4 seizures. Another one that causes other problems, they are trying to take me off that very slow and easy because of side effects. I don't know all of them yet. Thank you for your post and sharing.

@randallshields56
Hi Randy!
Thank you so much for your post. I'm sorry to hear that anger issues have surfaced on your road.
That realization that there's still a long road ahead is exactly the kind of thing that can bring that rage to the surface in epilepsy treatment. I felt something similar in my own journey, especially in the early years after diagnosis, and one thing I learned was to celebrate the battles already won, rather than focusing only on how far there was still to go — half cup full instead of half cup empty.
I did a quick check on XCopri and anger doesn't appear to be a listed side effect — but it's still worth discussing with your doctor whether any of your medications could be contributing to mood changes. Sometimes dosage adjustments, or switching or adding medications can affect mood in ways that catch us off guard. Have you had any recent medication changes?
And do you have any psychological support alongside your neurologist? Sometimes that outside perspective makes all the difference.
Wishing you brighter days ahead and keep us posted 🙌!
Chris

@louissc
Howdy, have only started having seizures since 2024 March- numerous med changes and long time coming to understand different areas are to heal faster than others. It has taken me over two years to get where i am now. I work on trying to make life better for family and my caregivers all 3 of them. sharing some of my successes and where i believe i need a little help, the last 24 hours brought to my attention that i still have a long way to go. Next battle is my underlying anger issues that surface yesterday like a monster that is waiting to be released. I have a great hate for that anger by itself and i think i might have to get help from outside the family. As to people here in the connections and help offered it will not surprise me in the slightest that i get numerous posts. for now i have to go take care of some laindry and see how i do putting it up.

@belinda5000

Hi Belinda,

All here have our own struggles with epilepsy. It just doesn't affect us, but also our loved ones around us. They won't understand what we are facing, and vice versa. It's tough, and this forum is a place to each share our own experiences in search for that bit of sunshine.

It's a chronic condition which we have to first accept it's never going to be cured, only merely to be managed. Mine is also a refractory one, and my neurologist said if I was to undergo some surgery, it's as good as removing my entire brain. A body can take awhile and a bit of time to get used to a new drug with the same old active ingredient. I lost count of how many different medications I tried as well as the gambles with certain carefully monitored dosage combination over the past ~9 years. I have mild annoying seizure almost everyday. I thought Briviact might work, but now it seemed it wouldn't. But hey, there's always the next thing to try. When it's time for me to leave this world, at least I can still tell myself I did't chicken out this fight to make myself better.

I am glad I found so much support here, which is priceless. There are just so many great people I met here to inspire me to do better. Look at the sunlight. If you keep on staring at the darkness, it'll always be a dark path ahead of you.

Cheers,
Louis