Replies to @louissc Howdy, have only started having seizures since 2024 March- numerous med changes and long time...

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What helps you manage anger when living epilepsy?

Epilepsy & Seizures | Last Active: Sep 26 6:37am | Replies (85)

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@randallshields56

@louissc
Howdy, have only started having seizures since 2024 March- numerous med changes and long time coming to understand different areas are to heal faster than others. It has taken me over two years to get where i am now. I work on trying to make life better for family and my caregivers all 3 of them. sharing some of my successes and where i believe i need a little help, the last 24 hours brought to my attention that i still have a long way to go. Next battle is my underlying anger issues that surface yesterday like a monster that is waiting to be released. I have a great hate for that anger by itself and i think i might have to get help from outside the family. As to people here in the connections and help offered it will not surprise me in the slightest that i get numerous posts. for now i have to go take care of some laindry and see how i do putting it up.

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Replies to "@louissc Howdy, have only started having seizures since 2024 March- numerous med changes and long time..."

Chris Gautier, Volunteer Mentor | @santosha | Jun 23 7:32am

@randallshields56
Hi Randy!
Thank you so much for your post. I'm sorry to hear that anger issues have surfaced on your road.
That realization that there's still a long road ahead is exactly the kind of thing that can bring that rage to the surface in epilepsy treatment. I felt something similar in my own journey, especially in the early years after diagnosis, and one thing I learned was to celebrate the battles already won, rather than focusing only on how far there was still to go — half cup full instead of half cup empty.
I did a quick check on XCopri and anger doesn't appear to be a listed side effect — but it's still worth discussing with your doctor whether any of your medications could be contributing to mood changes. Sometimes dosage adjustments, or switching or adding medications can affect mood in ways that catch us off guard. Have you had any recent medication changes?
And do you have any psychological support alongside your neurologist? Sometimes that outside perspective makes all the difference.
Wishing you brighter days ahead and keep us posted 🙌!
Chris