Anyone deal with anger related to their epilepsy?

Posted by belinda5000 @belinda5000, Mar 21 8:27pm

I have a lot of anger in my life because of my epilepsy.
I can thank the doc who delivered me for my seizures, I was a forceps baby and I've always wondered why he didn't use his hands to deliver me, My mother was in labor 72 hrs with me and obviously
my mother was to far along for her to have a c section.
I've had just a few jobs in my life and I've never driven a car.
I do remember someone telling me once her husband would never drive her places if she was unable and that is how u find out if some one truly loves you. He has seen me to h@ll and back. He also has epilepsy but his brain surgery stopped his seizures. Had surgery in 1982 got the Vns in 1999 and neither was able stop my seizures.
Not being able to drive.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

I thought this was one place I wouldn't be judged but I see I'm wrong, Most of you developed epilepsy when you were older It has been all my life, and I've never gone 6 months seizure free and I've always had to depend on someone and I have every right to be angry. I've never been able to drive I've held 2 jobs not counting babysitting as a teen. I'vve had brain surgery in 1982, Vns, and considering RNS in 1999 taken 25 difeferent medications and I've been to I don't know how many epilepsy clinics in how many states and Canada.

I'm 64 yrs old. I was two when diagnosed but it's been longer but I have no right be angry BULL

Belinda

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Profile picture for Randy Shields @randallshields56

@louissc
thank you for the post and i am back and things have gotten a little better. thinking a little clearer now and saw my post here and realized that i was just angry with myself and don't let it show because of what people might think of me. Hiding my feelings has become second nature now so that people don't panic when i make changes. its a life. have a blessed day and thank you again.

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@randallshields56 besides being angry doesn’t get you anywhere in life. It could even trigger more seziures

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Profile picture for louissc @louissc

Hi, I hope some, if not all, things had become or are becoming easier for you to deal with. Some of the emotions one feel can be side effects of medication. Some friends said I had become more irritable and full of angst during that period of time. It’s difficult to keep telling myself “that’s not the real me” and to differentiate what should make me angry allowing me to show my anger because that’s actually the right thing to do (say, racism) and merely side effects. I doubt myself occasionally sometimes to be honest.

You take care!

Cheers,
Louis

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@louissc
thank you for the post and i am back and things have gotten a little better. thinking a little clearer now and saw my post here and realized that i was just angry with myself and don't let it show because of what people might think of me. Hiding my feelings has become second nature now so that people don't panic when i make changes. its a life. have a blessed day and thank you again.

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Hi, I hope some, if not all, things had become or are becoming easier for you to deal with. Some of the emotions one feel can be side effects of medication. Some friends said I had become more irritable and full of angst during that period of time. It’s difficult to keep telling myself “that’s not the real me” and to differentiate what should make me angry allowing me to show my anger because that’s actually the right thing to do (say, racism) and merely side effects. I doubt myself occasionally sometimes to be honest.

You take care!

Cheers,
Louis

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

@randallshields56
Good Morning Randy!
I read through everything, and I just want to say — that's an enormous amount to be carrying all at once. The loss of the veteran you cared for, your daughter's situation, losing a family friend, and now medication changes affecting your body on top of it all... any one of these would be hard alone. Together, it's a lot!
I want to gently say: this might be a moment where you need a bit more support, even with all the strength you've shown getting this far. Having someone dedicated just to you — a therapist or psychologist — can make a real difference. You deserve that kind of support too, Randy. Putting your own oxygen mask on first isn't selfish, it's necessary. I've been through that myself, as I've already shared with you.
About leaving the group — I hear you, and I respect wherever you land. You don't owe anyone an explanation. But I'll say this honestly: you've been part of this community for a while, and people here care about how you're doing, not just when things are going well. The door stays open, whether that's a few days or longer.
Take care of yourself, Randy!
Chris

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Thank you for the always welcoming support. Going to have to say it has
been a good run and the 8th will be the turn point as to checking in with
updates and regrouping and carry on or something else gets decided.
Either way, youand the team have been awesome. Have a great 4th of July
weekend.

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Profile picture for Randy Shields @randallshields56

@santosha
Going to be off here for a few days, maybe longer. Even though I've kind of hit a spot i am comfortable with it is time to possibly leave the group. It's been a good run up till of late. And don't want to tie up many who have helped, from volunteer to coach and mentors and so many more. Will see where the next few days wants to put me. Thank you for all that you have done to help me get this far. Sincerely just me.

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@randallshields56 - just wanted to propose an option if you'd like a temporary break to attend to other matters: temporarily unsubscribe.

If you chose to do this, your settings would be kept intact for when you return and turn notifications back on. See info here: How to customize your notifications and settings | Mayo Clinic Connect https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/how-to-customize-your-notifications-and-settings/

Below is the part of this page that may be especially appropriate for what you mentioned about needing to be off Connect for a few days and maybe longer:

- Disable/Enable All Email Notifications (find in bold text about 40% down this page)

If you felt this was in your temporary best interest, you can turn off all emails. Your settings will be saved when you decide to turn them back on.

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Profile picture for Randy Shields @randallshields56

@santosha
Going to be off here for a few days, maybe longer. Even though I've kind of hit a spot i am comfortable with it is time to possibly leave the group. It's been a good run up till of late. And don't want to tie up many who have helped, from volunteer to coach and mentors and so many more. Will see where the next few days wants to put me. Thank you for all that you have done to help me get this far. Sincerely just me.

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@randallshields56
Good Morning Randy!
I read through everything, and I just want to say — that's an enormous amount to be carrying all at once. The loss of the veteran you cared for, your daughter's situation, losing a family friend, and now medication changes affecting your body on top of it all... any one of these would be hard alone. Together, it's a lot!
I want to gently say: this might be a moment where you need a bit more support, even with all the strength you've shown getting this far. Having someone dedicated just to you — a therapist or psychologist — can make a real difference. You deserve that kind of support too, Randy. Putting your own oxygen mask on first isn't selfish, it's necessary. I've been through that myself, as I've already shared with you.
About leaving the group — I hear you, and I respect wherever you land. You don't owe anyone an explanation. But I'll say this honestly: you've been part of this community for a while, and people here care about how you're doing, not just when things are going well. The door stays open, whether that's a few days or longer.
Take care of yourself, Randy!
Chris

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Profile picture for Randy Shields @randallshields56

@santosha
where to start, that veteran i was caregiver for before i moved to Virginia recently passed away, that was a start to certain declines. the Anger issue was just me not stepping to the plate better. That has improved. have a great weekend.

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Thank you Chris for your responses and positive attitude and suggestions.

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@randallshields56
Hi Randy,
Changing medications in epilepsy can be delicate, as I've experienced myself. Hold on strong and try to take it one day at a time.
How are you feeling today? Your doctor is tapering very slowly — which is great. Are the side effects starting to ease?
Wishing you gentler days ahead!
Chris

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@santosha
Going to be off here for a few days, maybe longer. Even though I've kind of hit a spot i am comfortable with it is time to possibly leave the group. It's been a good run up till of late. And don't want to tie up many who have helped, from volunteer to coach and mentors and so many more. Will see where the next few days wants to put me. Thank you for all that you have done to help me get this far. Sincerely just me.

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Profile picture for Randy Shields @randallshields56

@randallshields56
Ps. daughter has health issues and still deals with a company that does not care and have let her go. i have testing in about a week to see where i stand as to meds and recoveries that are needed. Lost another friend of the family to drugs and current med they are getting me off messes with numerous parts of my body and system.

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Thank you for your responses 🙏

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