Any one been diagnosed with Anca Vasculitis? How are you being treated for this autoimmune immune deficiency?
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@joroy Vasculitis is a journey. I have a different form of Vasculitis, P.A.N.
I was treated with high doses of prednisone.
You may want to check out the Vasculitis Foundation. They have lots of good resources.
There is a very active Facebook MPA vasculitis page. MPA is an ANCA-positive vasculitis. Most of us are on a variety of treatment protocols. Ask there and you will find lots of people willing to discuss their treatments with you. You don’t have to be an active Facebook user, just a have Facebook presence.
Also, as mentioned by @joroy , check with the VasculitisFoundation.org
@joyroy I have been diagnosed with ANCA Vasculitis and I'm part of the MPA vasculitis Facebook group that molly48823 mentioned. Their experiences and knowledge of the disease has helped me immensely. You should check them out.
@joroy, I have granulomatosis with polyangiitis and am currently on azathioprine for the maintenance of clinical remission. I was given cyclophosphamide and high-dose prednisone while the disease was active.
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@memmontoya Welcome to Mayo Clinic Connect! I put the link to Mayo Clinic’s information on polyangitis—also known as Wegener’s Disease.
Have you had this disease for some time or is this new to you? What treatment are you on now?
Do you have any specific questions for the group?
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