Amitriptyline use for neuropathy

Posted by kyc117 @kyc117, Sep 26, 2020

My neurologist prescribed Amitriptyline for me as sleeping has been difficult at times. I have to say it’s been working and I have no side effects. I don’t take it every day. I kind of know now when to take it…if my symptoms are bad during day. Still waiting on nerve biopsy test. It’s been 5 weeks now. Started a new job which keeps me so busy, keeps my mind off things. I wish you all my prayers daily.

@maryflorida

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

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@maryflorida So sorry to hear about your unrelenting pain and inability to find relief! There’s got to be something this esteemed group will come up with.

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@maryflorida

I haven't tried Tramadol as yet. I am on blood thinners so my choices are limited. What kind of supplement do you find helpful? Yes the rheumatologist did the 18 point test, but I don't recall hearing the answer from her. Just that I have fibromyalgia. I have wanted a punch biopsy but she did not know where or how to do it; she recommended that I see a surgeon. ?? I can't spend the money for surgery that seems unnecessary. Years ago another doctor did a skin biopsy in my finger and it was done right in the office.
My husband is sick and runs up our medical bills often so I don't want to spend any money left on myself unless it is absolutely necessary.
Ok.. since no medicine since Friday, I do wake up in a lot of all over pain. Today I ate some oatmeal and then took a Tylenol. It is helping "some" but still in pain. Will call my doc tomorrow, but what is even left for me I don't know. I will ask him about Tramadol too. Thank you.

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@maryflorida
Mary, have you thought about a pain pump? There is a discussion on Connect about it:
https://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/
You very likely may be familiar with that discussion, but just in case. The person who started it said his pumps Dilaudid into his system, not sure if that would be something that you could tolerate. Hank

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@jesfactsmon

@maryflorida
Mary, have you thought about a pain pump? There is a discussion on Connect about it:
https://connect.mayoclinic.org/discussion/pain-pump-i-have-one-how-about-one-for-you/
You very likely may be familiar with that discussion, but just in case. The person who started it said his pumps Dilaudid into his system, not sure if that would be something that you could tolerate. Hank

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@maryflorida
Another question, have you already explored medical marijuana for you pain? Or CBD oil. Or Kratom? I'm just trying to brainstorm other possibilities for you. Please forgive me if I'm covering old territory you've already crossed. Best, Hank

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@maryflorida

I haven't tried Tramadol as yet. I am on blood thinners so my choices are limited. What kind of supplement do you find helpful? Yes the rheumatologist did the 18 point test, but I don't recall hearing the answer from her. Just that I have fibromyalgia. I have wanted a punch biopsy but she did not know where or how to do it; she recommended that I see a surgeon. ?? I can't spend the money for surgery that seems unnecessary. Years ago another doctor did a skin biopsy in my finger and it was done right in the office.
My husband is sick and runs up our medical bills often so I don't want to spend any money left on myself unless it is absolutely necessary.
Ok.. since no medicine since Friday, I do wake up in a lot of all over pain. Today I ate some oatmeal and then took a Tylenol. It is helping "some" but still in pain. Will call my doc tomorrow, but what is even left for me I don't know. I will ask him about Tramadol too. Thank you.

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@maryflorida I recently saw a sign in CVS which speaks of taking Acetaminophen and Ibuprofen together. Something like 500 mg of acetaminophen and 200 mg of ibuprofen, I think. Maybe ask your Dr about that concoction.
Rachel

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Hello @neuroliz, Sometimes the notifications can be overwhelming. I unsubscribed you from this discussion. Here's how to stop all notifications – https://connect.mayoclinic.org/get-started-on-connect/#stop-restart-notifications

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@rwinney

@maryflorida I recently saw a sign in CVS which speaks of taking Acetaminophen and Ibuprofen together. Something like 500 mg of acetaminophen and 200 mg of ibuprofen, I think. Maybe ask your Dr about that concoction.
Rachel

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@maryflorida Hi Girls, you can take acetaminophen with an NSAID (non-steroidal anti-inflammatory) such as aspirin, advil, ibuprofen etc. bc they are two different things (properties) but you can't take two NSAIDS together. That would be doubling up. BTW, people tend to think acetaminophen is so benign they can take more than directions say but it can be highly toxic to the liver. And a very painful death. Always best to check with your doctor. Take care, Sunnyflower

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@maryflorida

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

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Mary, bless your heart. I am so sorry for your pain! I like your attitude. Sometimes when I've reached my human pain tolerance threshold, I beg the Lord to take me now, but always say right after, "Your will not mine, here am I, send me" like Isaiah 6:8. So rough yet He always gets me through! I will pray for relief from your pain and the peace of God through Christ that surpasses all human understanding (Philippians 4:7). Warmest regards, Sunnyflower

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@maryflorida

My rheumatologist prescribed amitriplyline for me too. I used it for six weeks and yes, I slept better. but during those six weeks I had three separate visual hallucinations.. so be aware… of course I seem to react to most drugs. Now all I can take without getting sick is Benadryl…

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Thank you for your input

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@catharbert

This is probably irrelevant to your situation but I have polyneuropathy and I take 600 mg gabapentin 3 times a day. If that does not control the pain or if I have break through pain I take 1/2 of a 25 mg tramadol. I don't like taking an opioid. I used to depend on tramadol exclusively for pain. Then under the supervision of my pain specialist I tapered off almost all of the tramadol and the gabapentin controlled the pain almost completely. But I gradually had to take some tramadol as needed, usually at bedtime or if I overdid exercise. It turns out I usually take 1/2 25 mg tablet once or twice a day. Everyone's experience is different and I am late to this blog so I know very little and understand less.

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Thank you. Ive tried gabapentin but I don’t tolerate it well. I’m very dizzy, slightly nauseous when I’m on it. If Amitriptyline doesn’t help, Dr. wants me to try Cymbalta. Amitriptyline seems to be working for me at the moment as I feel the worst at night. I get a good night sleep.

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@maryflorida

I haven't tried Tramadol as yet. I am on blood thinners so my choices are limited. What kind of supplement do you find helpful? Yes the rheumatologist did the 18 point test, but I don't recall hearing the answer from her. Just that I have fibromyalgia. I have wanted a punch biopsy but she did not know where or how to do it; she recommended that I see a surgeon. ?? I can't spend the money for surgery that seems unnecessary. Years ago another doctor did a skin biopsy in my finger and it was done right in the office.
My husband is sick and runs up our medical bills often so I don't want to spend any money left on myself unless it is absolutely necessary.
Ok.. since no medicine since Friday, I do wake up in a lot of all over pain. Today I ate some oatmeal and then took a Tylenol. It is helping "some" but still in pain. Will call my doc tomorrow, but what is even left for me I don't know. I will ask him about Tramadol too. Thank you.

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Punch biopsy was done in my neurologist's office. I was done in 10 min.

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@maryflorida

Actually I am not doing well right now. Most meds make me sick. Last week we discovered that the hydrocodone is now toxic for me. My pharmacist said this can become toxic, so to take one tylenol to see which is causing the headache, nausea and dizziness. I did, and the tylenol is not doing anything bad for me, only some slight dizziness. So tomorrow I call the doctor. Not much is left for me to take. Lots of pain all over my body today, so will move around some, make beds, etc., and then rest a little. Tried to back support belt that helps when it is my low back. But mostly all over pain, moving from one place to another. Many people suffer, so I can do it if I have to.

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So sorry you are not feeling well.

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@johnbishop

@kyc117, There is another discussion started by @steeldove that you may want to take a look at.

Use New Article About Treating Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/use-new-article-about-treating-peripheral-neuropathy/

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Good article, thank you

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