Amikacin

That seems common. My spouse was on the IV version for 4 months and then moved to the inhaled version. He’s been on it for about 2 months. He takes it in the late afternoon and is hoarse with a moderate sore throat for about 16 hours each day. Sometimes it helps to use tea or cough drops.

Thanks for your reply. Will give the cough drops a try. I’ve been swallowing a spoonful of honey after each session .

Hi Polly
I have Abscessus too. I have been on Amikacin for about 2 months. I lost my voice, was very sore and irritated in my esophagus and chest so I went to 3 days on, one day off...the ID doc said I could even go to one day on and 1 day off but the 3 days made a big difference. I'm taking it with Nuzyra which I think is recommended. I'm already improving. I haven't added the 3rd drug...I'm resisting that one...lots of side effects. Hang in there!

Yes three times a week will prevent the voice hoarseness.

Thanks everyone.

I was wondering if your insurance covered Nuzyra?
Mine did not.

My doctor's office handled everything and got me the meds and even brought them to me!

Your doctor’s office got you free samples of Nuzyra?

Not sure what they did but I know they filed a bunch of paperwork about my conditions, and I got all 3 that I needed, and it came directly from them.

My insurance didn’t cover it as it is not FDA approved. My doctor talked to the drug company rep and they were going to give my doctor 1 years worth of supply. Then my doctor didn’t get any more samples and she hasn’t heard from them. I was trying to find another source to get the meds.