Alzheimer's: Caregiver Advice Requested

Posted by cmm740 @cmm740, Oct 20, 2016

Hi everyone,

This is my first post ever, to bear with me.

My husband's father has been diagnosed with Alzheimer's (family doctor + psychiatrist both). We've noticed a regression for several years, but this is the first time that he's received a diagnosis. The problem is, he refuses to accept it or acknowledge that there's a problem. My mother-in-law is at a loss because his diagnosis is also feeding in to his depression and hostility, making their living situation unbearable for her.

They moved across the country to the east coast a few years ago because he had convinced my mother-in-law that the reason he was unable to do anything (such as build planes, like he used to) and struggling with depression, was simply because of where they lived (not because of dementia). There was always an excuse: weather is bad, not enough space, don't know enough people, etc. Then, they moved to the west coast a couple of years ago because....the same reasons. Now, they're planning to move back to the east coast, a mere two years later, because...the same reasons. My husband and I even have a move in the works to the west coast right away so that we can better support them through this difficult time. But we can't follow them back and forth across the country—we just don't have enough money for that.

This next move is especially worrying because it will be to an isolated lake property. We fear that the isolation will not only make things worse for my father-in-law, but will also make things increasingly more difficult for my mother-in-law who will now have access to zero support network and will lose connections to friends and other family that used to be nearby (on the west coast).

I understand my mother-in-law's frustration—I don't blame her for feeding in to this because she feels like she's out of options. But the fact is, when they move, he will be happy for a couple of months and then regress into his old behavior because the problem is mental health—not where they live. He promises her that, when they move, he'll take up new hobbies, get out more, do more around the house, be happy, etc. But time and time again he has proved that this is not the case. And refusing to acknowledge the core problem is just delaying the actual treatment he could be receiving to improve both his and my mother-in-law's situation.

My questions are:

Has anyone had a similar experience with Alzheimer's/dementia in their family (i.e. denial)? What did it take for he/she to accept the diagnosis?
If you have experience with this, what is the best way my husband and I can support his parents? We honestly don't know what to do (we've tried being honest with my mother-in-law, moving, everything, to no avail).
Do we have any options at our disposal if we fear that my mother-in-law's safety might be at risk? With this latest move, and the isolation of their new home, we're concerned for her well-being. His verbal hostility hasn't transitioned into physical abuse, yet, but we don't know what will happen as his health degrades.

Thanks in advance 🙂

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@caretothepeople

Hi @cmm740, and welcome. I feel for you. My grandfather, who I was extremely close to a lived with my entire life, fought a long battle with Alzheimer's and it wasn't until the very late stages of his disease that we understood it was dementia because he hid so much from us.

My best advice to you, as someone who witnessed it and wish I knew then what I know now, is to reach out to the local Alzheimer's Association chapter depending on where they end up with the move. Most chapters have a range of resources - everything from programs for those in early stages to lots of different types of support for caregivers (including online, phone, and in person, which could support your MIL).

With my grandfather, we found that he was more willing to listen to an authority figure such as his doctor or accountant, rather than any of us. He got in a few car accidents (that he hid from us), but often things would get a little bit better when the police would give him a good talking to about his dangerous behavior.

Hope this helps and best to you and your family,
Melody

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Thanks @caretothepeople for your response. It's such an awful disease, isn't it. We've reached out to our local Alzheimer's chapter and have found some local support groups in the area for my mother-in-law. I had always thought that the those organizations simply fund research, but that's obviously not the case. They do so much more!

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