Want to connect with other caregivers caring for some with Alzheimer’s

Posted by moopy1950 @moopy1950, Apr 13, 2017

Is there a specific discussion group to join for Alzheimer's? Moopy1950

Interested in more discussions like this? Go to the Caregivers: Dementia group.

Moopy, I invite you to join the Caregivers: Dementia group here: https://connect.mayoclinic.org/group/caregivers-dementia/

In this group, you'll meet several members who are caring for someone with Alzheimer's. We look forward to welcoming you there.

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My mother has Alzheimers, I would like to join.

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@vcornette1

My mother has Alzheimers, I would like to join.

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@vcornette1, please do! You can follow the Caregivers: Dementia group here: https://connect.mayoclinic.org/group/caregivers-dementia/

Scan through the discussions and simply join in any of them.

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whom would you suggest at mayo for early memory loss?

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@colleenyoung

Moopy, I invite you to join the Caregivers: Dementia group here: https://connect.mayoclinic.org/group/caregivers-dementia/

In this group, you'll meet several members who are caring for someone with Alzheimer's. We look forward to welcoming you there.

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Yes, I have a brother who has passed from early onset Alzheimer's and now my two sisters are also dealing with Alzheimers.

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@bed29h43rs

Yes, I have a brother who has passed from early onset Alzheimer's and now my two sisters are also dealing with Alzheimers.

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Hi @bed29h43rs, are your sisters also dealing with early-onset Alzheimer's?

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No, my older sister is in the advance stage. She's been in a nursing home since March of 2018. My other sister entered the nursing home last February and she's in the middle stage of Alzheimers. They both developed this disease around 70 years of age. My brother was diagnosed when he was 55 years old. I attended support groups to be caregiver for my older sister who was single. I encourage everyone to attend these meetings, although I had a pretty good idea of the different stages and how to deal with the many things I had to learn. I learned a lot from my wonderful sister-in-law who had gone through pure hell with my brother. Little did I realize I would be going through this three times. For all you caregivers, I encourage you to be patient, be kind and most of all have empathy for your loved one, and most of all take care of you. My brother-in-law was caregiver for my other sister and he did not take care of himself and is now also in the nursing home with several health condition. I feel I could write a book on the do's and don't of this disease.
I know I am high risk, but my faith, hope, and journey of love is getting me through this.

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God bless all you caregivers. My mom didn't have Alzheimers but vascular dementia. The hardest part for me was seeing her personality change. She has always been somewhat critical but became downright mean. Fortunately, I had a dear friend who accompanied me to the nursing home which was such a blessing. You just expect the changes and know it's not really them. Remember the joys and good times you have had and smile as you do. I still laugh at the funny things she said like the day she somehow knew it was my 70th birthday and she wished me a happy birthday and said "your 70 today, ooh your really old".

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Yes, caregivers have to remember all the great things and see humor in things that occur. One never knows what is going to happen from minute to minute when you are a caregiver. I'm laughing with you after reading her reply. You have to love these "spontaneous now" moments. Makes one feel good!

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@colleenyoung

Moopy, I invite you to join the Caregivers: Dementia group here: https://connect.mayoclinic.org/group/caregivers-dementia/

In this group, you'll meet several members who are caring for someone with Alzheimer's. We look forward to welcoming you there.

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My husband has had it for 14-15 years. His Alzheimer’s really picked up momentum when we moved halfway across the U.S. 3 years ago. There has been a continual significant decline since.

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@jone48

My husband has had it for 14-15 years. His Alzheimer’s really picked up momentum when we moved halfway across the U.S. 3 years ago. There has been a continual significant decline since.

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The same experience happened to us!
Three years ago, we moved from Illinois to North Carolina to be close to his son. It hasn’t been that easy with all the changes we made: environmentally, the weather (pollen), doctors, shopping, driving, everything and everyone is different. I really started to notice his Dementia was getting worse and he did too, so we went to a neurologist. He was given the strongest meds for dementia but it hasn’t helped much. So to be sure the diagnosis is dementia, he is having a brain scan next week. We went to know what we are dealing with and decide what to do for him next.

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