1. < MAC & Bronchiectasis

Alternative Treatments for MAC: immunotherapy, etc.

Posted by jspremich @jspremich, Apr 5, 2018

I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 7, 2018

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

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5 replies
Jo Ann K | @jkiemen | Apr 8, 2018

I am not sure if there is any immune therapy out there. I am still waiting to see what the inhaled Nitric Oxide studies will reveal.

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1 reply
charlie999 | @charlie999 | Apr 8, 2018

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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10 replies
lindam272 | @lindam272 | Apr 8, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Charlie, Thanks for that information. I am beginning to feel the need to start taking things to boost my immune system. My MAC has been stabilized since last July (thank you, God!) but I am far from healthy by any means. You mention "other supplements to fight MAC." Might I ask what those are please? Linda

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irene5 Irene Estes | @irene5 | Apr 8, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Amen to that!

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Sophie | @sophie1019 | Apr 8, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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What other type of supplements are you taking to boost I'm mine system???

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jspremich | @jspremich | Apr 8, 2018
In reply to @colleenyoung "Welcome to Connect, @jspremich You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/..." + (show)
@colleenyoung

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

Jump to this post

Nothing yet. It's why I put out the feeler, hoping others may know of a possible immune therapy. I've asked my infectious disease md, but no response yet. Will let you know when I know. jerry s

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Apr 8, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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@charlie999 Thank you for all of that info, Charlie. It is funny that all of us are thinking about ways to boost our immune systems at the same time. I guess that is all that is left to think about as we have hashed and rehashed everything else concerning this disease. I have been using raw honey for months to sweeten my coffee & tea. It is suppose to have good health benefits and is an antibacterial. I have been doing pretty well. Not sure if the honey helps, but it sure tastes good. I am glad to hear that you are doing well also. Better ct scan and no cough...Yay!!!

REPLY
Flib | @flib | Apr 9, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

Jump to this post

Thank you, Charlie for naming what you are taking. Very helpful.

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Jo Ann K | @jkiemen | Apr 9, 2018
In reply to @jkiemen "I am not sure if there is any immune therapy out there. I am still waiting..." + (show)
@jkiemen

I am not sure if there is any immune therapy out there. I am still waiting to see what the inhaled Nitric Oxide studies will reveal.

Jump to this post

I had one pulmonologist tell me the only way to boost your immunity is to make sure your Vitamin D levels are adequate

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