Alternative treatment instead of Prolia injections

Posted by malliecallie @malliecallie, Feb 27 9:50am

Recently diagnosed with Osteoporosis, doctor prescribed Prolia injections. Because of possible serious side effects, I do not want to take it. I am 79, active, working as office administrator, walking an hour (fast walking) 7 days a week. I want to remain active and feeling good.

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Good afternoon @malliecallie and welcome to Connect. Active at 79 and want to stay that way. I get it. I must admit I am surprised that Prolia was recommended for you as the first medication to control Osteoporosis. From everything I read and what I have been told by my endocrinologist, it is important to use a bone-building medication first. There are three of those, Forteo, Tymlos and Evenity. I don't know what your level of Osteoporosis is at this point. I am going to ask @windyshores to check in with you.

May you be safe, protected and free of inner and outer harm.
Chris

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HI @malliecallie. We don't know how severe your osteoporosis is or what your insurance will cover. I suggest you read Keith McCormick's book "Great Bones," watch his You Tube videos or those of Dr. Ben Leder ("Combinations and Sequencing."), especially Leder.

Bone builders are suggested first, as Chris mentioned, but insurance companies often require anti-resorptives like either bisphosphonates (Fosamax), or Prolia. This needs to change! Bone builders like Tymlos, Forteo and Evenity (Evenity is both bone builder and anti-resorptive) build a foundation of quality bone. See if your doc will advocate for you. Do you see an endocrinologist?

Anti-resorptives like Prolia can reduce the effectiveness of bone builders later on, if they are needed. But the most important issue with Prolia is that it is hard to get off. It is conceivable that at an older age, we/you can stay on it for the rest of our lives. But most likely you will want to get off, and there is a serious rebound when you stop. Bone density goes down and fracture risk goes up abruptly and you can even lose what you gained unless you transition to Reclast. That transition is tricky too in terms of timing.

Some people have posted on here that Keith McCormick a chiropractor who is an expert on osteoporosis, is suggesting just 3 Prolia's and then transitioning, and the risks might be lower for rebound. I don't know anything about this, myself.

I chose Tymlos and after trying a full dose, talked to my doc and lowered it to 1/4 dose then ramped it up so my body could get used to it. Tymlos comes in a pen with an adjustable dose. Many docs seem to be prescribing Evenity these days. I have done two Evenity treatments (monthly) since finishing Tymlos and will soon transition to Reclast (low dose at first, hydrated, slow infusion, tylenol). I am hoping for a med break at some point.

I have 7 spinal fractures. The first ones are thoracic, from a terrible fall in 2006. The more recent ones are lumbar and from one unwise movement. I will suffer a lot of side effects to avoid the pain and disability of fractures. I was feeling strong at the time: there are no symptoms for osteoporosis. Good luck! Hope this wasn't too much info!

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@windyshores

HI @malliecallie. We don't know how severe your osteoporosis is or what your insurance will cover. I suggest you read Keith McCormick's book "Great Bones," watch his You Tube videos or those of Dr. Ben Leder ("Combinations and Sequencing."), especially Leder.

Bone builders are suggested first, as Chris mentioned, but insurance companies often require anti-resorptives like either bisphosphonates (Fosamax), or Prolia. This needs to change! Bone builders like Tymlos, Forteo and Evenity (Evenity is both bone builder and anti-resorptive) build a foundation of quality bone. See if your doc will advocate for you. Do you see an endocrinologist?

Anti-resorptives like Prolia can reduce the effectiveness of bone builders later on, if they are needed. But the most important issue with Prolia is that it is hard to get off. It is conceivable that at an older age, we/you can stay on it for the rest of our lives. But most likely you will want to get off, and there is a serious rebound when you stop. Bone density goes down and fracture risk goes up abruptly and you can even lose what you gained unless you transition to Reclast. That transition is tricky too in terms of timing.

Some people have posted on here that Keith McCormick a chiropractor who is an expert on osteoporosis, is suggesting just 3 Prolia's and then transitioning, and the risks might be lower for rebound. I don't know anything about this, myself.

I chose Tymlos and after trying a full dose, talked to my doc and lowered it to 1/4 dose then ramped it up so my body could get used to it. Tymlos comes in a pen with an adjustable dose. Many docs seem to be prescribing Evenity these days. I have done two Evenity treatments (monthly) since finishing Tymlos and will soon transition to Reclast (low dose at first, hydrated, slow infusion, tylenol). I am hoping for a med break at some point.

I have 7 spinal fractures. The first ones are thoracic, from a terrible fall in 2006. The more recent ones are lumbar and from one unwise movement. I will suffer a lot of side effects to avoid the pain and disability of fractures. I was feeling strong at the time: there are no symptoms for osteoporosis. Good luck! Hope this wasn't too much info!

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I am new to the group, and I am very grateful for comments like yours. My endocrinologist is recommending Tymolos as I had bad side effects on Actenol. Stopped after three months and fainting…uti’s etc. I am a total novice with these drugs.

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Thank you for commenting.....when you read the possible side effects of these drugs, it is quite alarming. My doctor says that your bones are more important than worrying about hair loss, increased blood pressure, etc. I am active now and want to remain that way as long as I can. That is why I am not infavor of taking Prolia.

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@artscaping

Good afternoon @malliecallie and welcome to Connect. Active at 79 and want to stay that way. I get it. I must admit I am surprised that Prolia was recommended for you as the first medication to control Osteoporosis. From everything I read and what I have been told by my endocrinologist, it is important to use a bone-building medication first. There are three of those, Forteo, Tymlos and Evenity. I don't know what your level of Osteoporosis is at this point. I am going to ask @windyshores to check in with you.

May you be safe, protected and free of inner and outer harm.
Chris

Jump to this post

Thank you for your reply. My doctor did not mention medications to take, he just immediately sent a prescription to pharmacy for Prolia. Did not offer alternatives. My level
of osteoporosis is pretty bad, but I have no symptoms...I did have two fractured ribs last year, and I have some pain from that....but otherwise so far, I am OK. I will ask about the medications you mentioned.

REPLY
@windyshores

HI @malliecallie. We don't know how severe your osteoporosis is or what your insurance will cover. I suggest you read Keith McCormick's book "Great Bones," watch his You Tube videos or those of Dr. Ben Leder ("Combinations and Sequencing."), especially Leder.

Bone builders are suggested first, as Chris mentioned, but insurance companies often require anti-resorptives like either bisphosphonates (Fosamax), or Prolia. This needs to change! Bone builders like Tymlos, Forteo and Evenity (Evenity is both bone builder and anti-resorptive) build a foundation of quality bone. See if your doc will advocate for you. Do you see an endocrinologist?

Anti-resorptives like Prolia can reduce the effectiveness of bone builders later on, if they are needed. But the most important issue with Prolia is that it is hard to get off. It is conceivable that at an older age, we/you can stay on it for the rest of our lives. But most likely you will want to get off, and there is a serious rebound when you stop. Bone density goes down and fracture risk goes up abruptly and you can even lose what you gained unless you transition to Reclast. That transition is tricky too in terms of timing.

Some people have posted on here that Keith McCormick a chiropractor who is an expert on osteoporosis, is suggesting just 3 Prolia's and then transitioning, and the risks might be lower for rebound. I don't know anything about this, myself.

I chose Tymlos and after trying a full dose, talked to my doc and lowered it to 1/4 dose then ramped it up so my body could get used to it. Tymlos comes in a pen with an adjustable dose. Many docs seem to be prescribing Evenity these days. I have done two Evenity treatments (monthly) since finishing Tymlos and will soon transition to Reclast (low dose at first, hydrated, slow infusion, tylenol). I am hoping for a med break at some point.

I have 7 spinal fractures. The first ones are thoracic, from a terrible fall in 2006. The more recent ones are lumbar and from one unwise movement. I will suffer a lot of side effects to avoid the pain and disability of fractures. I was feeling strong at the time: there are no symptoms for osteoporosis. Good luck! Hope this wasn't too much info!

Jump to this post

Hello and thank you for your information! My osteoporosis is pretty bad, I have done hours of research on Prolia and Fosamax, and at this point telling my doctor I am not going to take Prolia injections, No alternative treatments or medications were mentioned. Doctor did not mention seeing an endocrinologist. I had two ribs fractured/broken last year, due to extreme coughing spasms following an URI. I still have some pain from those, but otherwise feel good, and active. You have been very helpful also in referencing the books and videos.

REPLY
@windyshores

HI @malliecallie. We don't know how severe your osteoporosis is or what your insurance will cover. I suggest you read Keith McCormick's book "Great Bones," watch his You Tube videos or those of Dr. Ben Leder ("Combinations and Sequencing."), especially Leder.

Bone builders are suggested first, as Chris mentioned, but insurance companies often require anti-resorptives like either bisphosphonates (Fosamax), or Prolia. This needs to change! Bone builders like Tymlos, Forteo and Evenity (Evenity is both bone builder and anti-resorptive) build a foundation of quality bone. See if your doc will advocate for you. Do you see an endocrinologist?

Anti-resorptives like Prolia can reduce the effectiveness of bone builders later on, if they are needed. But the most important issue with Prolia is that it is hard to get off. It is conceivable that at an older age, we/you can stay on it for the rest of our lives. But most likely you will want to get off, and there is a serious rebound when you stop. Bone density goes down and fracture risk goes up abruptly and you can even lose what you gained unless you transition to Reclast. That transition is tricky too in terms of timing.

Some people have posted on here that Keith McCormick a chiropractor who is an expert on osteoporosis, is suggesting just 3 Prolia's and then transitioning, and the risks might be lower for rebound. I don't know anything about this, myself.

I chose Tymlos and after trying a full dose, talked to my doc and lowered it to 1/4 dose then ramped it up so my body could get used to it. Tymlos comes in a pen with an adjustable dose. Many docs seem to be prescribing Evenity these days. I have done two Evenity treatments (monthly) since finishing Tymlos and will soon transition to Reclast (low dose at first, hydrated, slow infusion, tylenol). I am hoping for a med break at some point.

I have 7 spinal fractures. The first ones are thoracic, from a terrible fall in 2006. The more recent ones are lumbar and from one unwise movement. I will suffer a lot of side effects to avoid the pain and disability of fractures. I was feeling strong at the time: there are no symptoms for osteoporosis. Good luck! Hope this wasn't too much info!

Jump to this post

Thanks for the info. My doctor too just send prescription for Prolia no further info. This was VERY helpful. I will ask for different cancer drug.

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My doctor gives me choices. An endocrinologist is a good idea. Osteoporosis has no symptoms, but fractures sure do!

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Has anyone used testosterone pellet therapy for osteoporosis? A friend had great results. Any thoughts?

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Hi
I do reclast I.v. this will be my 3rd yr. It's by I.v. I have had no side effects my bone density has improved well

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