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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Posted by allegro @allegro, Apr 27, 2019

WE ARE DEALING WITH MY HUSBANDS ALS AND IT S DEVASTATING...I AM FIGHTING DEPRESSION AND PANIC ATTACKS,,,CAN ANYONE OFFER SOME HOPE????? JAN

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quimbie | @quimbie | Mar 31, 2023
In reply to @veronicamcckall "My grandma who has been Lou Gehrig’s disease for 2 years at the age of 75..." + (show)
@veronicamcckall

My grandma who has been Lou Gehrig’s disease for 2 years at the age of 75 had all her symptoms reversed with a Ayurveda medicine from health natural centre . org after undergoing their ALS natural treatment plan. God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

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I am just so curious about his. My Dad passed with ALS when he was only 56. I was a child but I remember how hard it was for my Mom and he died in his bed at home. She was his caregiver and never thought she did enough for him. I miss a great woman to this day; she has been gone for over 35 years. I have a niece that they think she has ALS. They can't find anything else to name that is wrong with her. She has been to 8 neurologists for tests and consultations. She is 68 maybe 69 now and been having symptoms for last 2 to 3 years of weakness and losing mobility. I am going to pass this on to her. Any other thing she did that might be of interest and help to my niece? I really appreciate any advice to pass on. Thank you.

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amybish | @amybish | Sep 18, 2023
In reply to @amandajro "Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other..." + (show)
@amandajro

Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other members who are also caregivers going through ALS with a family member so you will notice I have moved your post here:
- Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease: https://connect.mayoclinic.org/discussion/als-2/

Members like @722jo @allegro @julesa @bethclardy22 @laurahquayle11 along with @hopeful33250 may be able to come back in and share about their neurologist.

While we wait for others to come in, I'd thought I'd share more about ALS care at Mayo Clinic if interested:
- Amyotrophic lateral sclerosis (ALS) - Care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/care-at-mayo-clinic/mac-20354030

Are you set on finding care in a certain part of the country or open to travel anywhere?

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I need this too , my husband was just diagnosed 3 weeks ago! We are in Columbus area of Ohio. How do we get another opinion through Mayo?

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1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 19, 2023
In reply to @amybish "I need this too , my husband was just diagnosed 3 weeks ago! We are in..." + (show)
@amybish

I need this too , my husband was just diagnosed 3 weeks ago! We are in Columbus area of Ohio. How do we get another opinion through Mayo?

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@amybish ALS is a very difficult diagnosis to get so I understand if you are anxious and devastated. The Mayo Clinic has a Care Network of hospitals, one of which may be in your area. https://mayoclinic.org/about-mayo-clinic/care-network/members
You can also try a university hospital or comprehensive medical center in Ohio.
Let me know if you are able to get an appointment

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1 reply
amybish | @amybish | Sep 20, 2023
In reply to @becsbuddy "@amybish ALS is a very difficult diagnosis to get so I understand if you are anxious..." + (show)
@becsbuddy

@amybish ALS is a very difficult diagnosis to get so I understand if you are anxious and devastated. The Mayo Clinic has a Care Network of hospitals, one of which may be in your area. https://mayoclinic.org/about-mayo-clinic/care-network/members
You can also try a university hospital or comprehensive medical center in Ohio.
Let me know if you are able to get an appointment

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I thought it was hard, but he was referred to Dr at OSU and they seem to just say it right away. We’re in Ohio also but I just wondered if male clinic in Lake Florida or somewhere might be good place?

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1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 20, 2023
In reply to @amybish "I thought it was hard, but he was referred to Dr at OSU and they seem..." + (show)
@amybish

I thought it was hard, but he was referred to Dr at OSU and they seem to just say it right away. We’re in Ohio also but I just wondered if male clinic in Lake Florida or somewhere might be good place?

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@amybish there are 2 hospital in Ohio in the Mayo Clinic network. They are Blanchard Valley Health System and Memorial Health System. I’m not sure what you mean by Lake Florida, but these 2 hospitals would be great to try.
Will you let me know which one you choose?

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1 reply
amybish | @amybish | Sep 20, 2023
In reply to @becsbuddy "@amybish there are 2 hospital in Ohio in the Mayo Clinic network. They are Blanchard Valley..." + (show)
@becsbuddy

@amybish there are 2 hospital in Ohio in the Mayo Clinic network. They are Blanchard Valley Health System and Memorial Health System. I’m not sure what you mean by Lake Florida, but these 2 hospitals would be great to try.
Will you let me know which one you choose?

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I meant Jacksonville, Fla
I heard there or Arizona location are best

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 30, 2023
In reply to @amybish "I meant Jacksonville, Fla I heard there or Arizona location are best" + (show)
@amybish

I meant Jacksonville, Fla
I heard there or Arizona location are best

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Hi @amybish, Mayo Clinic has campuses in Jacksonville, Florida; Phoenix, Arizona and Rochester, Minnesota. To request an appointment, start here: http://mayocl.in/1mtmR63

Are any of these locations possible for you? How are you doing?

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meyerodeete | @meyerodeete | 4 days ago

I was diagnosed last July. I was wheelchair bound. My feet hurt horribly on the foot petals. I started ALS/MND programme about 4 months ago. I'm now able to walk down the street and back at least I couldn’t do that prior to the ALS treatment. It doesn’t make the ALS go away but it did give me better quality of life. I got the treatment from vine health centre. com
Thanks

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