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Alpha lipoic acid for Neuropathy

Posted by bjbates53 @bjbates53, Oct 8, 2022

I have had CIDP for 20 years and have done fairly well. But when I have a setback, my legs are very weak. In the past, I have found ALA caps to help me a lot. However, I have reflux and can't tolerate it. A pharmacist suggesting putting the capsule inside an empty capsule and see if that would help. It did not. I take it with food and lots of water. Still causes problems. Has anyone tried ALA as a tablet and had success with it? Any other suggestions would be welcome. I also take Cerefolin NAC.

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joypalmer1 | @joypalmer1 | May 19, 2023
In reply to @judyingenes "Intense massage from a vibrating mat/pad helps me. I am not talking about the kind that..." + (show)
@judyingenes

Intense massage from a vibrating mat/pad helps me. I am not talking about the kind that kind of kneads you or pounds on you but it is a very quick stimulating action. I put it under the soles of my feet or put it under my thighs when I am sitting it is very tingling and it does help me. I think I got it at Amazon. Good luck

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Thank you for responding. So this works for your tingling? Can you just tell me what this mat is called?

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1 reply
Judyinjeans. | @judyingenes | May 19, 2023
In reply to @joypalmer1 "Thank you for responding. So this works for your tingling? Can you just tell me what..." + (show)
@joypalmer1

Thank you for responding. So this works for your tingling? Can you just tell me what this mat is called?

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It’s called an Acupressure Mat. The brand I have is “ Bed of Nails.” ….yeah I know!! LOL! Its a rather rough, prickly massage that gets some relief for me. Amazon has many kinds of mats so be sure and read all the info from manufacturers and users. Hope that helps.

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1 reply
joypalmer1 | @joypalmer1 | May 19, 2023
In reply to @judyingenes "It’s called an Acupressure Mat. The brand I have is “ Bed of Nails.” ….yeah I..." + (show)
@judyingenes

It’s called an Acupressure Mat. The brand I have is “ Bed of Nails.” ….yeah I know!! LOL! Its a rather rough, prickly massage that gets some relief for me. Amazon has many kinds of mats so be sure and read all the info from manufacturers and users. Hope that helps.

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Thank you so much!

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1 reply
Judyinjeans. | @judyingenes | May 19, 2023
In reply to @joypalmer1 "Thank you so much!" + (show)
@joypalmer1

Thank you so much!

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I have been checking on Amazon and I do not see the one that I have or the type that I have quite frankly. I did get mine a number of years ago and they might not make that type anymore… I thought I would just pass that along to you. Maybe another brand that might make something like that.

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2 replies
davidpn | @davidpn | May 19, 2023
In reply to @oceanwinds "I have tried several with little success. I have found Absorbine Veterinary Liniment Topical Analgesic Sore..." + (show)
@oceanwinds

I have tried several with little success. I have found
Absorbine Veterinary Liniment Topical Analgesic Sore Muscle and Arthritis Pain Relief Warming Liniment Rub on Amazon. Cheap and works great for me.

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Thanks for the info. Will be checking that out.

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patrickski98 | @patrickski98 | May 20, 2023
In reply to @judyingenes "I have been checking on Amazon and I do not see the one that I have..." + (show)
@judyingenes

I have been checking on Amazon and I do not see the one that I have or the type that I have quite frankly. I did get mine a number of years ago and they might not make that type anymore… I thought I would just pass that along to you. Maybe another brand that might make something like that.

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I believe that the brand name is less important than the dose - 300mg. Good luck.

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1 reply
joypalmer1 | @joypalmer1 | May 20, 2023
In reply to @judyingenes "I have been checking on Amazon and I do not see the one that I have..." + (show)
@judyingenes

I have been checking on Amazon and I do not see the one that I have or the type that I have quite frankly. I did get mine a number of years ago and they might not make that type anymore… I thought I would just pass that along to you. Maybe another brand that might make something like that.

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Thank you so much for checking for me. That was so kind. I will look into it.

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joypalmer1 | @joypalmer1 | May 20, 2023
In reply to @summerstar "ALA works for me too. I took 100 mg 2xday for a few months, then lowered..." + (show)
@summerstar

ALA works for me too. I took 100 mg 2xday for a few months, then lowered to 100 mg daily and now only 100mg on Tuesday, Thursday and Saturday. Has kept everything under control for about 5 years now. I also take Super B complex which makes me feel energetic without caffeine and is good for nerve restoration and also choline because I never got over the pain after my gall bladder was removed and a patient shared that on a medical website and it works moderately well. I may not be cured, but I am managing it and rarely have breakthrough stinging or crawling sensations on my feet and legs and they only last a second, literally. I also make sure I don't let my legs and feet swell because that causes more problems so I lay down a while in the afternoon and use a recliner when I watch TV at night. I know the stinging, burning, itching, and crawly feelings can really make you suffer. My step mother was in agony from it and nothing the doctors did helped at all. She would cry and cry from the pain. She finally passed away and doesn't have to suffer anymore.

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How long did you take alpha lipoic acid before you started to see it helping the tingling? I’ve been taking 600 mg for about 6 weeks and haven’t seen any results yet.

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3 replies
patrickski98 | @patrickski98 | May 20, 2023
In reply to @joypalmer1 "How long did you take alpha lipoic acid before you started to see it helping the..." + (show)
@joypalmer1

How long did you take alpha lipoic acid before you started to see it helping the tingling? I’ve been taking 600 mg for about 6 weeks and haven’t seen any results yet.

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I think it was about six weeks.

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1 reply
joypalmer1 | @joypalmer1 | May 20, 2023
In reply to @patrickski98 "I think it was about six weeks." + (show)
@patrickski98

I think it was about six weeks.

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Thank you.

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