1. < Neuropathy

Alpha lipoic acid for Neuropathy

Posted by bjbates53 @bjbates53, Oct 8, 2022

I have had CIDP for 20 years and have done fairly well. But when I have a setback, my legs are very weak. In the past, I have found ALA caps to help me a lot. However, I have reflux and can't tolerate it. A pharmacist suggesting putting the capsule inside an empty capsule and see if that would help. It did not. I take it with food and lots of water. Still causes problems. Has anyone tried ALA as a tablet and had success with it? Any other suggestions would be welcome. I also take Cerefolin NAC.

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kp6350 | @kp6350 | May 20, 2023
In reply to @njed "@oceanwinds - My official diagnosis from Mayo in MN was - idiopathic axonal sensory motor peripheral..." + (show)
@njed

@oceanwinds - My official diagnosis from Mayo in MN was - idiopathic axonal sensory motor peripheral neuropathy. Or, yes polyneuropathy but I don't have autonomic. Of course, my first question was "what's that"? Well, since going to Mayo in Feb 2020 I have l earned a lot, reading mostly and I have to give the folks at Mayo a pat on the back for this forum because as far as I'm concerned, I've learned a lot from others who have this horrible disease. And I attribute a great deal of knowledge from our mentors and those who contribute. Mine is numbness with no pain right below the knees to toes and now a little in fingertips. Balance is horrible, have not been on my boat for 5 years. Standard progression I understand. Sorry to hear that your PN is body wide. I can't imagine what you are experiencing. I wish you the best and be safe in your journey through this and I hope someday you will get some answers. Ed

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I have had idiopathic neuropathy in feet since my total knee replacements in 2016 and 2017. My diagnosis is my new knees flattened my feet more than they already were and the nerves on soles of feet are compressed. I have yet to meet a dr that will see it that way. I suffer daily with tingling, burning and numbness in my feet and going up calves. S pain management Dr suggested that I have my flat feet reconstructed but doesn’t know if that would solve the problem. My foot muscles are strong. Any suggestions?

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1 reply
patrickski98 | @patrickski98 | May 20, 2023
In reply to @kp6350 "I have had idiopathic neuropathy in feet since my total knee replacements in 2016 and 2017...." + (show)
@kp6350

I have had idiopathic neuropathy in feet since my total knee replacements in 2016 and 2017. My diagnosis is my new knees flattened my feet more than they already were and the nerves on soles of feet are compressed. I have yet to meet a dr that will see it that way. I suffer daily with tingling, burning and numbness in my feet and going up calves. S pain management Dr suggested that I have my flat feet reconstructed but doesn’t know if that would solve the problem. My foot muscles are strong. Any suggestions?

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Have you tried using insoles in your shoes to increase your arch? My recommendation is to see a podiatrist to have good ones made, or at least get the $30 Dr. Scholl’s to see if that provides any relief before buying good ones. I’ve used them in my ski boots for 30+ years and couldn’t ski without them (from a performance and comfort perspective). Good luck.

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1 reply
kp6350 | @kp6350 | May 20, 2023
In reply to @patrickski98 "Have you tried using insoles in your shoes to increase your arch? My recommendation is to..." + (show)
@patrickski98

Have you tried using insoles in your shoes to increase your arch? My recommendation is to see a podiatrist to have good ones made, or at least get the $30 Dr. Scholl’s to see if that provides any relief before buying good ones. I’ve used them in my ski boots for 30+ years and couldn’t ski without them (from a performance and comfort perspective). Good luck.

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I have custom made insoles that I won’t walk without. As a result sneakers are worn constantly. I had last ones made very shortly after last tkr. Podiatrists look from a distance and says they are good. Maybe I ought to find a new podiatrist. Seems most podiatrists hear nerve pain and don’t want to get involved. Btw had 3 nerve decompressions in tarsal tunnel no change. Last dr I saw said if one of those surgeries didn’t even help s little his though is it is not the tarsal tunnel. The front third of my feet (ball of feet and big toe) are where all discomfort is coming from. I need to find the right dr.

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2 replies
patrickski98 | @patrickski98 | May 21, 2023
In reply to @kp6350 "I have custom made insoles that I won’t walk without. As a result sneakers are worn..." + (show)
@kp6350

I have custom made insoles that I won’t walk without. As a result sneakers are worn constantly. I had last ones made very shortly after last tkr. Podiatrists look from a distance and says they are good. Maybe I ought to find a new podiatrist. Seems most podiatrists hear nerve pain and don’t want to get involved. Btw had 3 nerve decompressions in tarsal tunnel no change. Last dr I saw said if one of those surgeries didn’t even help s little his though is it is not the tarsal tunnel. The front third of my feet (ball of feet and big toe) are where all discomfort is coming from. I need to find the right dr.

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Try a ski shop. They make very customized insoles every day.

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1 reply
kp6350 | @kp6350 | May 21, 2023
In reply to @patrickski98 "Try a ski shop. They make very customized insoles every day." + (show)
@patrickski98

Try a ski shop. They make very customized insoles every day.

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Good to know. I feel like podiatrists aren’t spot on with this. I can almost feel where nerve compression is. Inside of foot more towards front than ankle. No one listens…

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ssjohns | @ssjohns | May 21, 2023
In reply to @patrickski98 "I was taking rAlpha Lipoic Acid (ALA) for my peripheral neuropathy with nearly 100% effectiveness. I..." + (show)
@patrickski98

I was taking rAlpha Lipoic Acid (ALA) for my peripheral neuropathy with nearly 100% effectiveness. I was admitted to the hospital for several days (an unrelated condition) and did not take the ALA. THE PN came back pretty hard. Has anyone else had experience with this product? Thank you.

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Yes, I am taking alpha lipoic acid 600 mg per day. I also noticed that the product Nervive has 600 mg also plus other herbal nutrients. I’m also taking 900 mg of gabapentin per day. No leg pain just back pain.

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summerstar | @summerstar | May 21, 2023
In reply to @joypalmer1 "How long did you take alpha lipoic acid before you started to see it helping the..." + (show)
@joypalmer1

How long did you take alpha lipoic acid before you started to see it helping the tingling? I’ve been taking 600 mg for about 6 weeks and haven’t seen any results yet.

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Significant results within 2 weeks.

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1 reply
joypalmer1 | @joypalmer1 | May 21, 2023
In reply to @patrickski98 "I was taking rAlpha Lipoic Acid (ALA) for my peripheral neuropathy with nearly 100% effectiveness. I..." + (show)
@patrickski98

I was taking rAlpha Lipoic Acid (ALA) for my peripheral neuropathy with nearly 100% effectiveness. I was admitted to the hospital for several days (an unrelated condition) and did not take the ALA. THE PN came back pretty hard. Has anyone else had experience with this product? Thank you.

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Wow that’s great! Did you have tingling that it helped? How many mg a day?
Thanks!

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joypalmer1 | @joypalmer1 | May 21, 2023
In reply to @summerstar "Significant results within 2 weeks." + (show)
@summerstar

Significant results within 2 weeks.

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Wow that’s great! Did you have tingling that it helped? How many mg a day?

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davidhpress | @davidhpress | May 21, 2023
In reply to @joypalmer1 "How long did you take alpha lipoic acid before you started to see it helping the..." + (show)
@joypalmer1

How long did you take alpha lipoic acid before you started to see it helping the tingling? I’ve been taking 600 mg for about 6 weeks and haven’t seen any results yet.

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Have you tried Benfotiamine? ALA helps me a little but Benfotiamine has made a big difference from day one.

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