Allodynia: Anyone else sensitive to touch?
Has anyone heard of the term allodynia?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Has anyone heard of the term allodynia?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hey guys! Does anyone have any suggestions for gloves etc - my hands have been overly sensitive, on fire and anything I touch makes me want to vomit. I've been researching it, but can't seem to settle on anything. Need something for at work and at home etc. Thanks a million 🙂 I forgot to mention, also, that my feet are sensitive too, so any suggestions for socks/shoes etc are welcomed. Thx!
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1 ReactionGoogle,reflex, sympathetic dystrophy
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1 ReactionI have CRPS (RSD), unfortunately, and I know that allodynia is a symptom. But, I need something to help alleviate it (or, take the edge off) when it gets really bad, especially during a flare period.
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1 ReactionLet me specify - "researching it" i.e. NOT the condition, but the product(s)...if that makes sense.
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1 ReactionI’m sorry I can’t help too much. My doctor has sorta washed his hands of any further diagnosis beyond PN.
I have found Copper Fit gloves to help. Once they stretch a bit I find them not abrasive. And act as padding.
Socks: weird, but I wear them inside out. It prevents the rubbing. I hate sheets and blankets. The weight.
I don’t know if that helped. I also am in a continuous search for fabrics that don’t pinch or feel like sandpaper on my skin. Good luck!
Hi. I'm fairly new to this blog. I have allodynia on my back since it started abruptly (hence, I don't think it's diabetic neuropathy, as I understand that starts slowly and progresses, though I am diabetic) last January. Gabapentin helps keep me sane.
What is PRC? I will ask my doctor if cymbalta is worth a try and not contraindicated as I take a load of meds already.
Thanks for the info.
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1 ReactionHi. I take gabapentin (Neurontin) for allodynia. It helps a lot but doesn't totally relieve the pain.
What is CRSP (RSD)?
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1 ReactionHello @andiedeluca1949, welcome. So glad you receive some relief from Gabapentin. Sanity is key!
Thanks for asking what PRC is - it stands for Pain Rehabilitation Center which is where the Mayo Clinic offers a 3 week pain rehabilitation program at each of their 3 locations. PRC is a fantastic learning experience that focuses on the four pillars of physical, behavioral, emotional and chemical well-being.
Here's more about the PRC program:
Mayo Clinic Pain Rehabilitation Center -
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
In addition to medications that treat allodynia and neuropathy, what self-help tools have you tried or find benefit from?
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1 ReactionCRPS stands for chronic regional pain syndrome
RSD stands for reflex sympathetic dystrophy
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3 ReactionsYes, I have, I was diagnosed with it in October. Does anyone have any suggestions about clothing that can help with the allodynia and not make it so painful?