1. < Autoimmune Diseases

Allergic to Most Foods After Two Anaphylactic Reactions: Non-Allergy

Posted by seemarie @seemarie, Oct 27, 2024

Looking for some support, or anyone that has had similar experiences: I have mild pulmonary sarcoidosis, and hasimotos thyroiditis, my thyroid is underactive.

I had covid in Mid September- 15-21ish, then began to develop what I thought was allergic reactions to food. And had three major reactions, with two requiring epi and hospital visits. After the third incident, it seems my body reacts to everything I eat, foods I have had no issues with before triggers flushing, itchy face and digestive problems. Not always as intense as the first threereactions but that's because I am sticking to my safe foods, and eating new (really old foods) in a smaller portion to see my reaction. Generally if i take bendryl after a while the allergic reaction subsides but I am drained from it. I have visited an Allergist and Immunologist, where he conducted allergy testing and he did not seem convinced that food was the culprit, put me on a anti-histamine and pepcid, however, I dont see him again until Nov. My Primary thinks this is my immune system in a storm or out of whack. Does this happen when it is? Does it attack food as if it's toxic to the body?

Safe foods generally are chicken, yogurt, milk, oatmeal, broccoli and carrots, 100 percent whole wheat protein mix (which I can make pancakes etc) and more recently Beet/Cabbage/Carrot soup broth.
Was told to stay awy from Soy, Rice, Peas(Legumes in General) and All Corn products.

Any support around similar experiences and/ or things you did to cope.
Thank You 🙂

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Mentor
Becky, Volunteer Mentor | @becsbuddy | 1 day ago
In reply to @scarzy1957 "Thank-you Becky, I believe my center is affiliated with UWM Madison. I am looking into counseling..." + (show)
@scarzy1957

Thank-you Becky,
I believe my center is affiliated with UWM Madison. I am looking into counseling through my breast cancer support counselor. I am sorry you also are struggling as well. I may also try an online support that I just noticed on my mayo connect info. So many of my symptoms were diagnosed late and thought to be just anxiety related till they did many blood draws. I really appreciate you reaching out with support . What is ELI and it's symptoms? Sounds like a lot as well ! Hope to keep in touch on this site. Never knew so many people are struggling.

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@scarzy1957 It should be a crime for doctors to claim that you have anxiety instead of looking for a real cause! Aaagghh! I asked my PCP for a referral to get an MRI. With all my symptoms, I thought I was on the verge of a stroke. She said ‘no’. Not needed. A few days later, I called and asked for an appointment with her office mate. She quickly gave me a referral! That’s how I was diagnosed with my AD, Clippers. It’s been a long road.
You ask about EPI. Don’t think it’s an autoimmune disease, though. Symptoms are sudden, unexplained diarrhea. Awful! I, suddenly, at age 74, don’t have any pancreatic enzymes so I don’t digest my food. Lovely. It’s finally 90% under control.
But, now you. Sounds like nothing is almost fixed. UWM hasn’t really fixed the problem.
I know that there are hospitals that are connected to Mayo Clinic and can share info. Let me know and I can send you the information. That’s too much about me. I hope you get some answers!

REPLY
1 reply
scarzy1957 | @scarzy1957 | 9 hours ago
In reply to @becsbuddy "@scarzy1957 It should be a crime for doctors to claim that you have anxiety instead of..." + (show)
@becsbuddy

@scarzy1957 It should be a crime for doctors to claim that you have anxiety instead of looking for a real cause! Aaagghh! I asked my PCP for a referral to get an MRI. With all my symptoms, I thought I was on the verge of a stroke. She said ‘no’. Not needed. A few days later, I called and asked for an appointment with her office mate. She quickly gave me a referral! That’s how I was diagnosed with my AD, Clippers. It’s been a long road.
You ask about EPI. Don’t think it’s an autoimmune disease, though. Symptoms are sudden, unexplained diarrhea. Awful! I, suddenly, at age 74, don’t have any pancreatic enzymes so I don’t digest my food. Lovely. It’s finally 90% under control.
But, now you. Sounds like nothing is almost fixed. UWM hasn’t really fixed the problem.
I know that there are hospitals that are connected to Mayo Clinic and can share info. Let me know and I can send you the information. That’s too much about me. I hope you get some answers!

Jump to this post

Thank- you Becky, If you could post the hospital's that are connected to Mayo Clinic, that might be a start. Appreciate the info. Struggling with such a limited diet.

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | 5 hours ago
In reply to @scarzy1957 "Thank- you Becky, If you could post the hospital's that are connected to Mayo Clinic, that..." + (show)
@scarzy1957

Thank- you Becky, If you could post the hospital's that are connected to Mayo Clinic, that might be a start. Appreciate the info. Struggling with such a limited diet.

Jump to this post

@scarzy1957 Here are lists for the two systems. See id 1 is near you!
here is the list: https://www.mayoclinichealthsystem.org/
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
Will you let me know if the process is easy or hard?

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