Allergic Bronchopulmonary Aspergillosis

Posted by gretchenm @gretchenm, Mar 13, 2012

I would like to hear from anywho who has this condition and what treatment has worked. Would you recommend and allergist, a pulmonologist, or an infectious disease doctor? I am tired of being passed around and doctors not really understanding the condition.

Interested in more discussions like this? Go to the Infectious Diseases group.

@john1948

I am seeing pulmonary doctor for the last year. not sure this is the best route either. I am doing a 10mg of prednisone per day with Gabapentin 300mg 2 times daily and a nebulizer with perforomist and a steroid Budesonide 5mg once daily. My IgE serum level a year ago was 1834 two weeks ago it was up to 1870.
never ever had a problem till about two years ago. noticed a wheez but when I asked my MD about it at the time he commented "you can make yourself wheez". Needless to say he is no longer my MD! I also would like to have more information as I too was diagnosed with ABPA. Just hard for me to believe that at 68 I developed this after years of nothing like this.

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We took a trip to gulf shores two years ago soon after that is when mine developed

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Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

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@dc1950

Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

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I’m tagging @sueinmn to see if she has any info about the difference between aspergillosis and ABPA.

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@dc1950

Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

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ABPA is an allergic reaction to the presence of the aspergillus fungus, whereas I believe that aspergillosis is an infection by the fungus itself. There seem to be a difference in treatment recommendations. Aspergillosis is usually treated with an antifungal drug. ABPA is usually treated with corticosteroids to inhibit or stop the allergic reaction by the body. Antifungal drugs may or may not be used with the steroid.
It seems possible that having the fungus infecting your lungs for a long time could have caused your body to mount an allergic response, much the way one may become allergic to specific molds after being exposed over time.
What led to the referral for an ABPA evaluation?
Sue

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Hi Sue, I have had bacteria in my lungs ( aspergillosis and more recently pseudomonas) for a long time. I saw an Infectious Disease Dr at Mayo last month and he recommended the evaluation. I appreciate your explanation. Im starting to gather info. Thanks, Donna

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