Allergic Bronchopulmonary Aspergillosis

Posted by gretchenm @gretchenm, Mar 13, 2012

I would like to hear from anywho who has this condition and what treatment has worked. Would you recommend and allergist, a pulmonologist, or an infectious disease doctor? I am tired of being passed around and doctors not really understanding the condition.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

REPLY
@dc1950

Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

Jump to this post

I’m tagging @sueinmn to see if she has any info about the difference between aspergillosis and ABPA.

REPLY
@dc1950

Hello to this group. I have had aspergillosis in my lungs for years. The past spring my symptoms became much worse. I have an appointment with an allergist in a few weeks to determine if it is ABPA. I'm looking for info on the difference between aspergillosis that has colonized in the lung and ABPA. Can anyone give me info? Thanks in advance.

Jump to this post

ABPA is an allergic reaction to the presence of the aspergillus fungus, whereas I believe that aspergillosis is an infection by the fungus itself. There seem to be a difference in treatment recommendations. Aspergillosis is usually treated with an antifungal drug. ABPA is usually treated with corticosteroids to inhibit or stop the allergic reaction by the body. Antifungal drugs may or may not be used with the steroid.
It seems possible that having the fungus infecting your lungs for a long time could have caused your body to mount an allergic response, much the way one may become allergic to specific molds after being exposed over time.
What led to the referral for an ABPA evaluation?
Sue

REPLY

Hi Sue, I have had bacteria in my lungs ( aspergillosis and more recently pseudomonas) for a long time. I saw an Infectious Disease Dr at Mayo last month and he recommended the evaluation. I appreciate your explanation. Im starting to gather info. Thanks, Donna

REPLY

You need a specialist with Two fellowships:
Infectious disease
Immunology.
At Stanford in California you need to call 650–736–5200. It is called PACs and me/cfs center at Stanford health. Good luck.

REPLY
Please sign in or register to post a reply.