Agent Orange/Dioxin related illnesses

Posted by Tiffie @tiffie, Mar 19, 2012

I know this is a touchy subject for many, but I am still looking for answers. My trip to Jacksonville helped with some, but not all. I am suffering from a mystery illness and it seems to be related to my father’s exposure to Agent Orange. Me and my sister both have the same symptoms, except she is more advanced. My niece is starting to show the symptoms. In my search online, I have found many other children of Vietnam Vets going through this. I guess I’m just wondering if there are any here, and if so, do you have a diagnosis yet? I have some such as fibromyalgia and connective tissue disease, but it doesn’t cover all of the symptoms. The symptoms are very ms like. I am 35 years old and some days have to use a walker. I fall. I lose feeling in limbs. I can not even hold a job right now. I have met many other children who have had a wide range of illnesses and birth defects. I know a lot of us are suffering from mental illness including bipolar. I’m bipolar myself. But I have that answer. I want the answers for the pain and weakness and fatigue. I plan on revisiting the mayo clinic after I get better insurance since new symptoms have come on since my last visit. I know they did everything they could. I know my local doctors are. I’m just hoping to get more information to take to both there and my local doctors of people with similar symptoms and had a hard time getting diagnosed. My own research on dioxin is showing that these are very common symptoms of it. So just wondering who else is in the same boat.

Liked by dawn976

I’m a 100% disabled Viet-Nam Vet, wresting with agent orange due to the war, it has effective my body organs like my kidneys which caused me to be put on dialysis three days a week which is pure hell, much joint pain and I could go on but, lest stop there, seeking information pertaining to artificial kidney’s or human kidney cloning, do anyone know anything about this?

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@gregsr

I’m a 100% disabled Viet-Nam Vet, wresting with agent orange due to the war, it has effective my body organs like my kidneys which caused me to be put on dialysis three days a week which is pure hell, much joint pain and I could go on but, lest stop there, seeking information pertaining to artificial kidney’s or human kidney cloning, do anyone know anything about this?

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Kidney

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Hi @gregsr. I see that my fellow moderators, and Connect community members, have replied to your previous queries about artificial kidney and provided some information. As noted, the bioartificial kidney is not yet available for standard use. Developments are still in the trial phase.

I’ve moved your post into this discussion thread where other Connect members are talking about the effects of Agent Orange. You might also appreciate connecting with @retairforceman and @Robert43DAP on this discussion thread https://connect.mayoclinic.org/discussion/autoimmune-diseases-research-with-the-iom-agent-orange-committee-update-2012-june/

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@alysebrunella

Hi @gregsr. I see that my fellow moderators, and Connect community members, have replied to your previous queries about artificial kidney and provided some information. As noted, the bioartificial kidney is not yet available for standard use. Developments are still in the trial phase.

I’ve moved your post into this discussion thread where other Connect members are talking about the effects of Agent Orange. You might also appreciate connecting with @retairforceman and @Robert43DAP on this discussion thread https://connect.mayoclinic.org/discussion/autoimmune-diseases-research-with-the-iom-agent-orange-committee-update-2012-june/

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Thank you

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Yes, I’m a 100% disabled Viet-Nam vet, suffering with the effects of agent orange, this chemical was used to kill vegetation in the jungles so that we could see the enemy, not knowing the effects this would have later in life, yes this agent orange has effected my eyes-liver-kidneys-joints, I’m on dialysis now, there is a compensation the va may pay the childen of viet-nam vets for they conditions-you will have to check with the va about how you would go about making this claim.

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@gregsr

Yes, I’m a 100% disabled Viet-Nam vet, suffering with the effects of agent orange, this chemical was used to kill vegetation in the jungles so that we could see the enemy, not knowing the effects this would have later in life, yes this agent orange has effected my eyes-liver-kidneys-joints, I’m on dialysis now, there is a compensation the va may pay the childen of viet-nam vets for they conditions-you will have to check with the va about how you would go about making this claim.

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I too suffer from many autoimmune diseases including severe spinal stenosis and ANKLYLOSING SPONDIOLYSIS with osteoporosis and osteoarthritis,  colon cancer, rectal cancer,  cancerous tumor,  thyroid cancer,  hypothyroidism,  bladder cancer,  bladder disease,  peripheral neuropathy,  sciatica,  ischemic heart disease,  psoriasis, degenerative joint and disc disease,  and more. I handled, mixed by hand and power sprayed AGENT ORANGE HERBICIDES ON ANDERSEN.AFB GUAM and off base from September 68 to June 78. My daughter is severely affected with joint disease, hip dysplasia, reproductive issues and cancer. My only grandchild suffers from multiple birth defects including 24 fingers and toes, heart disease,  autism, blindness, add/ADHD and more. 

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@gregsr

Yes, I’m a 100% disabled Viet-Nam vet, suffering with the effects of agent orange, this chemical was used to kill vegetation in the jungles so that we could see the enemy, not knowing the effects this would have later in life, yes this agent orange has effected my eyes-liver-kidneys-joints, I’m on dialysis now, there is a compensation the va may pay the childen of viet-nam vets for they conditions-you will have to check with the va about how you would go about making this claim.

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For your information

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@gregsr

Yes, I’m a 100% disabled Viet-Nam vet, suffering with the effects of agent orange, this chemical was used to kill vegetation in the jungles so that we could see the enemy, not knowing the effects this would have later in life, yes this agent orange has effected my eyes-liver-kidneys-joints, I’m on dialysis now, there is a compensation the va may pay the childen of viet-nam vets for they conditions-you will have to check with the va about how you would go about making this claim.

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Thanks for jumping in on this discussion @retairforceman. I can’t believe the number of conditions this #%*&! agent orange caused and for generations!

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@1970vietnamvet

You are not alone. I am a Nam Vet, (1970) and have Type II Diabetes, pereipheral Neuropathy in all 4 extremities and a host of other problems. My 38 year old daughter has MS. She was diagnosed on her 21st Birthday. She started with occular, migrane headaches. She gets a infusion once a month for an hour and must sit still for another hour. My son has had allergies almost from birth and asthma from shortly there after. My two grandchildren also have asthmatic problems. There are over 12 cancers recognised by the Veterans Administration that are regarded as being presumtive for our exposure to Agent Orange, (actually it was the Diioxin created in cooking the Agent Orange). The latest conditions are Parkinsons Disease and isthemic heart disease. Go to Vietnam Veterans of America, click on The Faces of Agent Orange and be horrified by the stories of our children and grandchildren. They are stories of the ones that lived. I can’t tell you how many still birtgs happened to veterans wives. Please check it out.

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Welcome to Connect @eeversmann.

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@1970vietnamvet

You are not alone. I am a Nam Vet, (1970) and have Type II Diabetes, pereipheral Neuropathy in all 4 extremities and a host of other problems. My 38 year old daughter has MS. She was diagnosed on her 21st Birthday. She started with occular, migrane headaches. She gets a infusion once a month for an hour and must sit still for another hour. My son has had allergies almost from birth and asthma from shortly there after. My two grandchildren also have asthmatic problems. There are over 12 cancers recognised by the Veterans Administration that are regarded as being presumtive for our exposure to Agent Orange, (actually it was the Diioxin created in cooking the Agent Orange). The latest conditions are Parkinsons Disease and isthemic heart disease. Go to Vietnam Veterans of America, click on The Faces of Agent Orange and be horrified by the stories of our children and grandchildren. They are stories of the ones that lived. I can’t tell you how many still birtgs happened to veterans wives. Please check it out.

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I too have my only child suffering from asthmas, joint diseases, cancers, etc. And my only grandchild was born with multiple birth defects like 24 fingers and toes, autism aspergers syndrome,  eye deformities and blindness, growth problems , etc. I have 33 autoimmune diseases including 4 cancers, ischemic heart disease, , ANKLYLOSING SPONDIOLYSIS,  SPINAL STENOSIS,  DEGENERATIVE JOINT AND DISC DISEASE,   OSTEOPOROSIS and osteoarthritis,  psoriasis,  chloracne,  scar tissue,  peripheral neuropathy in all limbs and more. I handled, mixed by hand and power sprayed AGENT ORANGE HERBICIDES ON ANDERSEN.AFB GUAM DURING THE VIETNAM WAR AND LATER.  I am very ill and very short life left in me.
MSGT LEROY G FOSTER USAF.RET 

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OMG I will pray for UR child & grand child. I don’t know what to suggest to U .

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And I thought I had problems. I feel fine? I’ll pray for your whole family.

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Agent Orange is a chemical that will attack our immune system – I was told by my VA Nero/ Doctor, he diagnosed me with Agent Orange Parkinson’s two years ago- I went through a 4-5 hour agent orange exam at the VA Hospital in Phoenix, they also put me through an interview with the VA’ ” Agent Orange Registry Office” this is where they looked at my Army 201 file and my two tours in Viet Nam and where I was based both times, which was within the Iron Triangle – why this is important, 80% of troops within that area was sprayed the most and at times we were in the jungle for two weeks-wearing the same Jungle Fatigues( which was soaped with the chemicals) The reason I bring this up- the VA after looking at my record and seeing that were I was- gave me an approval Agent Orange Certificate- this proved that any health issues you have that is listed in the health problems that doctors from the VA has added, automatically assumed it’s from Agent Orange. I had My Certificate copy for all my children- which they use when they go to the VA and file a medical complaint that complied with the medical list approved by the VA-do to agent orange. I hope this makes sense- and it’s something that can help anyone fighting the system for approval and medical care. JJ

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@nurseleanne

I am an OR Nurse and have been suffering from what doctors are calling Dyshydrotic Eczema for 4 years. I have tried every steroid cream out there, been on high doses of steroids and nothing has really helped. My hands and arms break out in a severe blistering rah. At times, the skin just peels off. I wish I could find someone or something that could help me. My dad was in Vietnam and passed away in 1992 after complications from Agent Orange exposure.

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New clinic in texes!

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@gregsr

Yes, I’m a 100% disabled Viet-Nam vet, suffering with the effects of agent orange, this chemical was used to kill vegetation in the jungles so that we could see the enemy, not knowing the effects this would have later in life, yes this agent orange has effected my eyes-liver-kidneys-joints, I’m on dialysis now, there is a compensation the va may pay the childen of viet-nam vets for they conditions-you will have to check with the va about how you would go about making this claim.

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I see you are a mentor here; please look into the agent orange clinic in Texes. It seems very promising.

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