Afraid it the treatment meds for osteoporosis

Posted by mahonlye @mahonlye, 4 days ago

I’m 68 with latest spine score of-37. My body type is very thin with BMI 19- but I eat extremely healthy diet and do excellent exercise every day - no falls. I have no other health issues so dont need to take medications. I’m totally petrified to take any of the medications I’ve been told I need for treatment of osteoporosis. I don’t know what to do! I know breaking bones will be awful but I’m so weary of these poisons they want to put in my body.

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Can anyone reply to this concern.

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Profile picture for bocabird @bocabird

@mahonlye I still get severe gerd periodically from actonel- got off it after 3 months- and prolia was horrible for me

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Wow- what were the bad side effects for you from Prolia?

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Profile picture for mahonlye @mahonlye

Wow- what were the bad side effects for you from Prolia?

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@mahonlye Aching joints, bleeding gums ( you have to be very careful with certain types of dental work) , hair loss etc. and the worst is you cannot go off cold turkey - there can be sudden compression fractures- read about it online -I am sure there are others that do not have side effects however there are plenty that do and a lot of the Drs. do not divulge this info.

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Profile picture for mahonlye @mahonlye

Such a difficult situation- I did try an oral medication after my first BD Scan resulting in severe Gerd symptoms for about a month, so only did the one
dose. If you don’t mind me asking, what are your T scores?

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@mahonlye I also had severe Gerd with just one dose that lasted for weeks. My hips and femur have osteopenia. My lumbar spine composite score is -3.2. My overall risk for a hip fracture is 10 years is 1.3%. My risk for a lumbar fracture in 10 years is 9%.

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Profile picture for vga @vga

I feel the same way! I'm 62 and healthy--slender, runner, cyclist, clean eater, no alcohol, no smoking. I went through menopause in my early 50s when HRT was seen as a danger. I'm focusing on weight lifting and heavy weights. Search "The weights program doing heavy lifting in fight against osteoporosis | 7 News Australia" on youtube. I tried Fosamax one dose orally; it made me sicker than I've ever experienced--extreme aches for days.

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@vga,

I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

"The weights program doing heavy lifting in fight against osteoporosis | 7 News Australia"
- https://www.youtube.com/watch?v=TDUSlg4ryp4

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Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

@vga,

I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

"The weights program doing heavy lifting in fight against osteoporosis | 7 News Australia"
- https://www.youtube.com/watch?v=TDUSlg4ryp4

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That may have been accidental- I didn’t try to add article knowingly.

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Profile picture for daisy17 @daisy17

I am in the same situation. I'm 75, 117 lbs and have a small build, with my worst Dexa score in my spine at -4. I can't take Forteo or Tymlos due to parathyroid issues. For me, Evenity is too new. My Dr wants me to take Fosamax, but I've decided not to take it because I've read that bisphosphonates don't actually reduce fracture risk very much. I take calcium, vitamin D, a collagen product containing Fortibone, walk and exercise. I hope I don't regret my decision to go drug free as I know my fracture risk is high.

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@daisy17

I too have similar dexascan scores and won’t take the osteoporosis drugs. I am 75 weighing just 48kg . BMI of 17.3. I am eating a sensible diet but can’t do much dairy . I started fortibone six months ago and calcium with D3 and K2. Walk every day but can’t weight train due to lumbar spine problem and am waiting for an operation. No fractures at all. My bones might not be dense due to the fact that they are small!! My rheumatologist agrees with that. I had a fall during a house move down some indoor stairs onto a hard floor five years ago and no bones broken at all!! I pray each day that I am doing the right thing as I am very sensitive to medication of any kind.

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Clearly, we hope science comes up with better meds for Osteoporosis, ones without such awful side-effects…people who have been through cancer therapy are especially wary of ‘’bone chemo’’…..

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