Afib and taking only Sotalol

Posted by payette78 @payette78, 1 day ago

I just found out i have paroxysmal afib. Showed up on a holter test 4 years ago. My primary care doc didn't bother to tell me. Cardio put me on Sotalol back then and i have had no episodes in 4 years. Also have SVT. Had a normal ECG yesterday; cardiologist is OK with Sotalol only. Ordered echo but the wait is a year here. Anyone else on just Sotalol for Afib? Thoughts? Concerns?

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Never heard of this medication. I’m going to look it up. Has it resolved your a fib?

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Profile picture for sand7263 @sand7263

Never heard of this medication. I’m going to look it up. Has it resolved your a fib?

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Yes. No episodes in 4 years. I havechad SVT for 17 years and thought it wascforvthat. Just found out i have had both SVT and afib for at least that long. Cardiologist did not change anything yesterday. Feels i am doing fine as is. Mildest form of afib. Total of only 4 minutes in 24 hours on holter.

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I am not a physician, so please take what I say with that in mind.
You have used to terms, SVT and AFib. Do you have both, or only one?
If you have only SVT, I do think that just taking Sotalol is probably exactly what you need, and all that is necessary. In my case, as a sufferer of atrial fibrillation (AF), the risk of a speedy atrium and of clotting in the left atrial appendage is high, so I was put only on metoprolol (you can look it up if you wish) to keep my heart rate down if I were fibrillating. This is a rate control drug, not an anti-arrhythmic drug like Sotalol is. But, the risk of clots forming in the left atrium is high for those with AF, so I was immediately placed also on a direct-acting oral anti-coagulant. No anti-arrhythmic was ever prescribed for me, probably because, like your arrhythmia, it came and went on its own after maybe 20-40 minutes.
So, your cardiologist isn't worried about your atrial rate, at least not for now, but he wants to keep the tachyarrhythmia itself at bay. This is what Sotalol seems to have done for you, and worked well...a whole 4 years! Good for you.
BUT!!! If you really do have AF, and not SVT, my understanding, again as a non-expert, is that you should probably be on a DOAC as well (the anti-coagulant). This is because AF can cause a stroke due to clots leaving the left atrial appendage, where about 90% of the risk of a stroke lies for AF patients.
Please come back with a statement about which arrhythmia you have!

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Profile picture for gloaming @gloaming

I am not a physician, so please take what I say with that in mind.
You have used to terms, SVT and AFib. Do you have both, or only one?
If you have only SVT, I do think that just taking Sotalol is probably exactly what you need, and all that is necessary. In my case, as a sufferer of atrial fibrillation (AF), the risk of a speedy atrium and of clotting in the left atrial appendage is high, so I was put only on metoprolol (you can look it up if you wish) to keep my heart rate down if I were fibrillating. This is a rate control drug, not an anti-arrhythmic drug like Sotalol is. But, the risk of clots forming in the left atrium is high for those with AF, so I was immediately placed also on a direct-acting oral anti-coagulant. No anti-arrhythmic was ever prescribed for me, probably because, like your arrhythmia, it came and went on its own after maybe 20-40 minutes.
So, your cardiologist isn't worried about your atrial rate, at least not for now, but he wants to keep the tachyarrhythmia itself at bay. This is what Sotalol seems to have done for you, and worked well...a whole 4 years! Good for you.
BUT!!! If you really do have AF, and not SVT, my understanding, again as a non-expert, is that you should probably be on a DOAC as well (the anti-coagulant). This is because AF can cause a stroke due to clots leaving the left atrial appendage, where about 90% of the risk of a stroke lies for AF patients.
Please come back with a statement about which arrhythmia you have!

Jump to this post

I had a stroke about 12 months ago (Sep 2024) that originated from a series of tiny clots from my heart. That stroke should have killed me but I truly believe my brain was creating corollary (alternate) forms of circulation (the heart will also do this if it senses a pending heart attack). I was having episodes of double vision and spinning room sensations for 8 months prior to the "big" stroke. The stroke was a 100% blockage of the Basilar Artery. The hospital Neurologist told me he didn't know why I was still alive. AFTER the stroke ALL of those symptoms disappeared. The complete blockage is still there and will never go away but because I survived the stroke a thrombectomy wasn't done. I even walked into the ER on my own, though rather slowly and wobbly while my husband parked the car.
I believe it was all initiated by a fall backwards hitting the back of my head back on a metal table edge back in 2014 damaging my Vagus nerve. After the fall I could no longer sleep on my left side without getting headaches, heart arrythmias, nausea, vomiting and spinning room sensations. That fall also broke my left jaw which required ongoing dental intervention for over 2 years after. That should have been the first clue that all was not well with me. I went to the local hospital in an ambulance but the hospital personnel said I was OK - no blood clot from the impact or any visible damage. HA! Boy were they wrong! One month to the day I had my first big TIA while traveling in another state; total loss of use in left arm and leg side and incomprehensible speech for about 10 minutes.
The hospital in the city where that TIA happened did numerous tests at that time but the tests were inconclusive (except they found a small brain tumor called a meningioma during the MRI). The neuro there warned me then that once you have a TIA you will probably have more of them that will eventually kill you (He had a menagerie of medical students attending also). After all that it took about ten years of irregular heartbeats (Afib) and several more TIAs before I had the final major stroke last year. They never put 2 & 2 together or even bothered to listen to my story or opinion, afterall, what do I know? I am far less patient now and am willing to actually argue with my current doctor (He's actually a friend so I can do that). However, I will never be the same again, but at age 75 I'm still alive! I can reason and speak well but I have ongoing issues with balance and strength and I sleep a lot. For several months after I felt like I was drugged; it felt like an opioid high but without the pain relief.
Do your own research! I used U-tube to finally put all the pieces together. I suspect if I had the opportunity to have a doctor listen to me long enough (more than a 15-minute office visit?) they still wouldn't come to the same conclusion. Don't trust your health and life to the AMA. There is so much information available now there is no excuse to keep our heads in the sand.
My point here is also do your own research and listen to others' experiences; don't rely only on your GP. He or she is already overworked!

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@payette78 where do you live that you have to wait a year for an echocardiogram? Are you in Canada or UK?

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She mentioned AMA, so I'm guessing it must be an American resident/citizen.

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Profile picture for crewsr @crewsr

I had a stroke about 12 months ago (Sep 2024) that originated from a series of tiny clots from my heart. That stroke should have killed me but I truly believe my brain was creating corollary (alternate) forms of circulation (the heart will also do this if it senses a pending heart attack). I was having episodes of double vision and spinning room sensations for 8 months prior to the "big" stroke. The stroke was a 100% blockage of the Basilar Artery. The hospital Neurologist told me he didn't know why I was still alive. AFTER the stroke ALL of those symptoms disappeared. The complete blockage is still there and will never go away but because I survived the stroke a thrombectomy wasn't done. I even walked into the ER on my own, though rather slowly and wobbly while my husband parked the car.
I believe it was all initiated by a fall backwards hitting the back of my head back on a metal table edge back in 2014 damaging my Vagus nerve. After the fall I could no longer sleep on my left side without getting headaches, heart arrythmias, nausea, vomiting and spinning room sensations. That fall also broke my left jaw which required ongoing dental intervention for over 2 years after. That should have been the first clue that all was not well with me. I went to the local hospital in an ambulance but the hospital personnel said I was OK - no blood clot from the impact or any visible damage. HA! Boy were they wrong! One month to the day I had my first big TIA while traveling in another state; total loss of use in left arm and leg side and incomprehensible speech for about 10 minutes.
The hospital in the city where that TIA happened did numerous tests at that time but the tests were inconclusive (except they found a small brain tumor called a meningioma during the MRI). The neuro there warned me then that once you have a TIA you will probably have more of them that will eventually kill you (He had a menagerie of medical students attending also). After all that it took about ten years of irregular heartbeats (Afib) and several more TIAs before I had the final major stroke last year. They never put 2 & 2 together or even bothered to listen to my story or opinion, afterall, what do I know? I am far less patient now and am willing to actually argue with my current doctor (He's actually a friend so I can do that). However, I will never be the same again, but at age 75 I'm still alive! I can reason and speak well but I have ongoing issues with balance and strength and I sleep a lot. For several months after I felt like I was drugged; it felt like an opioid high but without the pain relief.
Do your own research! I used U-tube to finally put all the pieces together. I suspect if I had the opportunity to have a doctor listen to me long enough (more than a 15-minute office visit?) they still wouldn't come to the same conclusion. Don't trust your health and life to the AMA. There is so much information available now there is no excuse to keep our heads in the sand.
My point here is also do your own research and listen to others' experiences; don't rely only on your GP. He or she is already overworked!

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Thanks for all that. So, you do have AF. And, going by all that you have shared, I am all but certain that you are taking a DOAC (rivaroxaban or apixaban? Plavix?)
I couldn't agree with you more about self-education, even extensive note-keeping. And it's true, a GP is only able to give you maybe 15 minutes, especially in the socialized medicine systems. That may, with his/her good will, allow some dialog over two problems. Here in Canada, if you whip out a list, the GP will hold his/her hand up and say one item per visit (although truthfully they don't usually mind a couple of conditions).
As for any medication for arrhythmia, it depends on the arrhythmia and on the patient. Some can tolerate flecainide, some can't. Tikosyn (Dofetilide), the 'second strongest drug' behind amiodarone, must be started in hospital under observation, usually a two to three day stay. But there are others like propafenone (Multaq).
https://www.drugs.com/drug-class/antiarrhythmic-agents.html

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Profile picture for gloaming @gloaming

She mentioned AMA, so I'm guessing it must be an American resident/citizen.

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@gloaming -I see no reference from @payette78 to AMA or any place. I can't imagine waiting a year for an echo. Seems not possible, its not a big deal test.

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Profile picture for gloaming @gloaming

I am not a physician, so please take what I say with that in mind.
You have used to terms, SVT and AFib. Do you have both, or only one?
If you have only SVT, I do think that just taking Sotalol is probably exactly what you need, and all that is necessary. In my case, as a sufferer of atrial fibrillation (AF), the risk of a speedy atrium and of clotting in the left atrial appendage is high, so I was put only on metoprolol (you can look it up if you wish) to keep my heart rate down if I were fibrillating. This is a rate control drug, not an anti-arrhythmic drug like Sotalol is. But, the risk of clots forming in the left atrium is high for those with AF, so I was immediately placed also on a direct-acting oral anti-coagulant. No anti-arrhythmic was ever prescribed for me, probably because, like your arrhythmia, it came and went on its own after maybe 20-40 minutes.
So, your cardiologist isn't worried about your atrial rate, at least not for now, but he wants to keep the tachyarrhythmia itself at bay. This is what Sotalol seems to have done for you, and worked well...a whole 4 years! Good for you.
BUT!!! If you really do have AF, and not SVT, my understanding, again as a non-expert, is that you should probably be on a DOAC as well (the anti-coagulant). This is because AF can cause a stroke due to clots leaving the left atrial appendage, where about 90% of the risk of a stroke lies for AF patients.
Please come back with a statement about which arrhythmia you have!

Jump to this post

I have both SVT and AF. I was on metoprolol for years when diagnosed with only SVT. Then a holter test in 2021 showed episodes of SVT and Afib and the cardiologist switched me to Sotalol. No talk of anticoagulants. The cardiologist has been practising medicine for 50 years. I got caught off guard by the Afib because i didn't discover it till i got home and read the holter report myself. I think he just assumed the doc who treated me 4 years ago had told me about the AF.

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Profile picture for tsch @tsch

@payette78 where do you live that you have to wait a year for an echocardiogram? Are you in Canada or UK?

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I live in Atlantic Canada. The wait times for tests and specialists are horrendous.

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