Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who have experience with Amyloidosis, Waldenstrom's macroglobulinemia and bone marrow transplant (BMT) like @loribmt @gaetanche @irishk @jam5 @puffwithfluff @ejrquast to share their experience and advice.

While we wait for others to chime in, you may also be interested in reading about others in this related discussion:
- Waldenstroms and amyloidosis: https://connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis/

It sounds like you are also looking for an expert consultation to discuss your next steps for treatment and possible BMT. I might suggest reaching out for Mayo Clinic. Here's the contact information and how to request an appointment or a physician referral http://mayocl.in/1mtmR63

Is going to Mayo Clinic an option for you?