Adults with absence seizures

Posted by sophiasmith01 @sophiasmith01, Jun 2, 2025

I am 21 years old and never grew out of my absence seizures like I was told I would. Is there anyone in this group who is an adult with absence seizures, or do you know anyone who is? I've never met anyone my age who has absence seizures, and I am just curious if there are people experiencing what I am.

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Profile picture for kim721 @kim721

Thank you Jake! Any advice is helpful since I’m still learning about this unfortunately I guess..

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@kim721

Dealing with such conditions will be a continuous marathon and not a sprint. Many here had highlighted there are so many things to try to figure out the cause or how to improve a condition. Sometimes we strike gold, but many a times we don't. It won't be over within a lifetime, unfortunaterly. But still, don't let it deter it from doing what you love, or at least try not to. Greeting the flight attendant and showing her my boarding pass at the aircraft door after not flying for a few years really brought a smile to my face.

Cheers,
Louis

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Thank you Jake! Any advice is helpful since I’m still learning about this unfortunately I guess..

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@kim721
I wanted to add that when taking seizure meds it's best if taking generics to have all refills from the same manufacturer. Not everyone is affected by the differences in generic drugs but when dealing with seizures it's better to rule out all potential triggers.
Take care,
Jake

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Thanks Jake, I’ll keep that in mind for future appointments as well, thank you!

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@kim721
I would recommend regular eye exams with an ophthalmologist because of the potential serious ocular complications that Topamax may pose.
Jake

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @kim721
It sounds like stress and poor sleep may well have played a role in last Sunday's seizure.
I can share from my own experience: once I became more attentive to my triggers and learned to respect my body's limits, I was able to reduce my seizure frequency without needing to increase my medication.
If I understood your message correctly, you haven't yet seen a neurologist — is that right? My strong advice would be to seek care from a neurologist with extensive experience in epilepsy, or ideally an epileptologist — it can help you find answers and a treatment plan that actually works best for you!
Wishing you all the best with your upcoming appointment — and please do keep me posted.
Chris

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@santosha thank you Chris!

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Profile picture for kim721 @kim721

@santosha I did reflect back on the few daws beforehand and I know I had been more stressed with things going on that I couldn’t control, I also hadn’t been sleeping well and that could have been a trigger. But as well as my keppra doses I take topamax for seizure control. But, I do have a doc appointment coming up soon and hopefully will be able to get n to a neurologist after that as soon as possible to get it figured out…

Jump to this post

Hi @kim721
It sounds like stress and poor sleep may well have played a role in last Sunday's seizure.
I can share from my own experience: once I became more attentive to my triggers and learned to respect my body's limits, I was able to reduce my seizure frequency without needing to increase my medication.
If I understood your message correctly, you haven't yet seen a neurologist — is that right? My strong advice would be to seek care from a neurologist with extensive experience in epilepsy, or ideally an epileptologist — it can help you find answers and a treatment plan that actually works best for you!
Wishing you all the best with your upcoming appointment — and please do keep me posted.
Chris

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @kim721
Welcome to our group!
I know firsthand how devastating it feels to have a seizure after months of freedom. I went through something very similar last year, after almost 8 months without one, so I truly understand your frustration.
First, congratulations on 8 months of sobriety — that's a remarkable achievement, and it matters enormously for your overall health and seizure control.
A couple of things worth reflecting on: in the days before last Sunday, were you sleeping well? Had you been under any unusual stress? Both sleep deprivation and stress are among the most well-known seizure triggers, and sometimes a breakthrough seizure has a clear cause once you look back carefully. This article from the Epilepsy Foundation may be helpful:
Seizure Triggers - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-triggers
Also, have you had the chance to speak with your doctor about this episode yet? It's worth discussing whether your current Keppra dose still needs adjusting, as @jakedduck1 has already mentioned.
One difficult Sunday doesn't erase the progress you've made — keep going, and those goals will come!
Chris

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@santosha I did reflect back on the few daws beforehand and I know I had been more stressed with things going on that I couldn’t control, I also hadn’t been sleeping well and that could have been a trigger. But as well as my keppra doses I take topamax for seizure control. But, I do have a doc appointment coming up soon and hopefully will be able to get n to a neurologist after that as soon as possible to get it figured out…

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Profile picture for kim721 @kim721

Hi there. I’ve only ever had alcohol withdrawal seizures before,… and am now on keppra twice a day and had been doing very well. And had been seizure free for at least some months. (Maybe since I’ve been sober) I am 8 months sober now, but I had a very bad one last Sunday and ended up in the er pretty much unconscious all day for no apparent reason that I could figure out? I’m sooo frustrated as my plans are to hopefully finally be able to get a drivers license and be able to work now..😞

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Hi @kim721
Welcome to our group!
I know firsthand how devastating it feels to have a seizure after months of freedom. I went through something very similar last year, after almost 8 months without one, so I truly understand your frustration.
First, congratulations on 8 months of sobriety — that's a remarkable achievement, and it matters enormously for your overall health and seizure control.
A couple of things worth reflecting on: in the days before last Sunday, were you sleeping well? Had you been under any unusual stress? Both sleep deprivation and stress are among the most well-known seizure triggers, and sometimes a breakthrough seizure has a clear cause once you look back carefully. This article from the Epilepsy Foundation may be helpful:
Seizure Triggers - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-triggers
Also, have you had the chance to speak with your doctor about this episode yet? It's worth discussing whether your current Keppra dose still needs adjusting, as @jakedduck1 has already mentioned.
One difficult Sunday doesn't erase the progress you've made — keep going, and those goals will come!
Chris

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@kim721
Perhaps your Sunday seizure was due to damage caused by the alcohol when you were drinking.
Alcohol kills brain cells, which can cause abnormal electrical activity because of atrophy or other issues which lowers the seizure threshold and may cause seizures long after discontinuation of alcohol.
How much Keppra do you take?
Did your doctor increase your medication or add an additional medicine since your last seizure?
Take care,
Jake

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