Adults with absence seizures
I am 21 years old and never grew out of my absence seizures like I was told I would. Is there anyone in this group who is an adult with absence seizures, or do you know anyone who is? I've never met anyone my age who has absence seizures, and I am just curious if there are people experiencing what I am.
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@kim721
Dealing with such conditions will be a continuous marathon and not a sprint. Many here had highlighted there are so many things to try to figure out the cause or how to improve a condition. Sometimes we strike gold, but many a times we don't. It won't be over within a lifetime, unfortunaterly. But still, don't let it deter it from doing what you love, or at least try not to. Greeting the flight attendant and showing her my boarding pass at the aircraft door after not flying for a few years really brought a smile to my face.
Cheers,
Louis
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6 ReactionsThank you Jake! Any advice is helpful since I’m still learning about this unfortunately I guess..
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1 Reaction@kim721
I wanted to add that when taking seizure meds it's best if taking generics to have all refills from the same manufacturer. Not everyone is affected by the differences in generic drugs but when dealing with seizures it's better to rule out all potential triggers.
Take care,
Jake
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2 ReactionsThanks Jake, I’ll keep that in mind for future appointments as well, thank you!
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1 Reaction@kim721
I would recommend regular eye exams with an ophthalmologist because of the potential serious ocular complications that Topamax may pose.
Jake
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3 Reactions@santosha thank you Chris!
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1 ReactionHi @kim721
It sounds like stress and poor sleep may well have played a role in last Sunday's seizure.
I can share from my own experience: once I became more attentive to my triggers and learned to respect my body's limits, I was able to reduce my seizure frequency without needing to increase my medication.
If I understood your message correctly, you haven't yet seen a neurologist — is that right? My strong advice would be to seek care from a neurologist with extensive experience in epilepsy, or ideally an epileptologist — it can help you find answers and a treatment plan that actually works best for you!
Wishing you all the best with your upcoming appointment — and please do keep me posted.
Chris
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1 Reaction@santosha I did reflect back on the few daws beforehand and I know I had been more stressed with things going on that I couldn’t control, I also hadn’t been sleeping well and that could have been a trigger. But as well as my keppra doses I take topamax for seizure control. But, I do have a doc appointment coming up soon and hopefully will be able to get n to a neurologist after that as soon as possible to get it figured out…
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2 ReactionsHi @kim721
Welcome to our group!
I know firsthand how devastating it feels to have a seizure after months of freedom. I went through something very similar last year, after almost 8 months without one, so I truly understand your frustration.
First, congratulations on 8 months of sobriety — that's a remarkable achievement, and it matters enormously for your overall health and seizure control.
A couple of things worth reflecting on: in the days before last Sunday, were you sleeping well? Had you been under any unusual stress? Both sleep deprivation and stress are among the most well-known seizure triggers, and sometimes a breakthrough seizure has a clear cause once you look back carefully. This article from the Epilepsy Foundation may be helpful:
Seizure Triggers - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-triggers
Also, have you had the chance to speak with your doctor about this episode yet? It's worth discussing whether your current Keppra dose still needs adjusting, as @jakedduck1 has already mentioned.
One difficult Sunday doesn't erase the progress you've made — keep going, and those goals will come!
Chris
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3 Reactions@kim721
Perhaps your Sunday seizure was due to damage caused by the alcohol when you were drinking.
Alcohol kills brain cells, which can cause abnormal electrical activity because of atrophy or other issues which lowers the seizure threshold and may cause seizures long after discontinuation of alcohol.
How much Keppra do you take?
Did your doctor increase your medication or add an additional medicine since your last seizure?
Take care,
Jake