Kommerell’s Diverticulum with aberrant right subclavian artery

Hi @abutler27 . I was diagnosed 2 yrs ago with a kink in my aorta. This led to large transverse aortic aneurysm and left subclavian aneurysm. I also had a right aberrant subclavian artery. I was referred to Mayo and Nov 2019 had 2 surgeries, one by Dr. Pochettino to repair aorta and left subclavian and Dr.Bower relocated the aberrant right subclavian. I was told the right aberrant did not have an aneurysm so I did not have Kommerells. I was really happy I went to Mayo. I saw 2 other surgeons prior- both did not want to operate on me. Dr.Pochettino never hesitated was confident from the first conversation he could repair. It was not an easy surgery or recovery but 2 years later I have worked up to running 2 miles a day and can pretty much do everything as before. I highly recommend the Mayo surgeons- they took my case when no one else would. Best of luck with everything!
Jeane

Hi @abutler27 and welcome to Mayo Clinic Connect. Are you looking to connect with others who have the same thing or looking to get questions answered?

I found out that I have a right sided aortic arch with a abberent left subclavian artery with a kommerell diverticulum and is having coughing shortness of breath when exercising and coughing after eating a big meal I also have a positive Ana titer hypertension and I have noticed a difference in my Bp readings in my arms like my left arm will read 146/90 and my right would read 120/90

burden to my family

Thank you I am almost 79 years old and just do not want to be burden

Hi!! I did have hypertension, but I also have bicuspid aorta and some other cardiac issues- which contribute to that. I have never had chest pain. I was told normally surgery is not recommended unless you have an aneurysm (Kommerells ) and only when that reaches a certain size. I did have mine relocated because I had to have an aortic graft which was where my ARSA was- due to my coarctation. It was done through my neck by Dr.Bower a vascular surgeon. I have done well- no restrictions. It’s not a common issue- I suggest making sure you find a dr experienced with treating it.
Especially because everyone is different and treatment should be decided on your specific case. There is some information on the Mayo website.
Best wishes!

yes I do sometimes also voice becomes hearse

Thank you for the information....I too was diagnosed with ARSA..at what point do you need surgery. No one can explain much to me .Would appreciate any information you have to share. Do you have chest pain or hypertension?

I went to Mayo for a few reasons. One my cardiologist was not familiar with treating aberrant artery, also I had many other anatomical issues that my dr and surgeon here did not feel comfortable treating ( and I highly respect that both were honest enough with me to tell me that--instead of trying to treat me and risk my health). Mayo has an affiliation with our hospital- so it was the best place for me to start. I got an appt there quickly- within a month, and in the time before that--spoke to Dr. Dearni over the phone. I was scheduled for surgery a little over a month later. As for Mayo having the top physicians-- I feel they do. Dr. Pochettino had only a few minutes-due to being called away for an emergent surgery- but he pulled up my scan--in a matter of minutes told me confidently a plan- he told me he had only seen maybe five patients with similar anatomical issues such as me--but that the surgery to fix my problems was one he had done many, many times. And he said because of his experience with working mainly with the aorta- he wanted to do surgery now. Thats what makes Mayo better in my opinion--they see the most uncommon problems on a regular basis--because like me--many of the patients are referred to them from all over the world. Also their surgeons have a focus--Dr. Pochettino was a cardiosurgeon who focused on aorta-so that's who i was initially referred to. He does many of his ARSA surgeries with Dr.Bower. I imagine there must be some type of virtual appts. I was supposed to go there to meet with Dr.Bower for my year follow up for my ARSA surgery. I was able to get my scans here in Florida, mail them to Dr.Bower and the office called me and basically did the follow up over the phone. This is the most organized medical facility I have been to-- I am a nurse and my husband a physician-- both of us where amazed at how well Mayo operated. I don't know if I was able to help answer any of your questions....

Best Wishes,
Jeane

I had a consult first with Dr. Pochettino(cardio-vascular surgeon)-just because my main reason for going to Mayo was my tortuous aorta with aneurysms on my aorta and left subclavian--the aberrant artery was just a chance finding on the MRI. Dr. Pochettino is the one who set me up with Dr.Bower (the vascular surgeon). I would say if your issue is just the aberrant artery then vascular surgeon would be where to start ? But everyone at Mayo was so helpful and nice-- I am positive if your case required another surgeon or dr. they would set all that up. I had almost like a case manager--she scheduled and set up all my appts. consults, labs, tests...she worked with each dr and had all of this set up before I even arrived at Mayo. So no going and seeing one dr. and being told I need to see another and come back. They take a very comprehensive and team approach. I had both surgeons and cardiologist already set up-- I did all my test and saw the three drs all in the same day. My suggestion when you reach out initially is call the appt number, describe your problems, more than likely she will connect you to the office you need, and get the process started- if Mayo is where you choose to go.

Best wishes,
Jeane