Adenocarcinoma NSC Lung Cancer Stage 3. Advice? Success stories?

Posted by detroitmom23 @detroitmom23, Feb 7, 2023

I recently found out that I have stage 3 adenocarcinoma NSCLC with mass in lung and spread to lymph nodes in neck, they want to do four rounds of chemo and if shrunk enough possibly radiation afterwards. I have asked them not to give me a prognosis because my fragile mind can’t handle it.
My first chemo treatment is tomorrow and I’m a nervous wreck. Any advice on getting through it?
Any success stories would be SO welcome right now.

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@frouke

@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and what is best for you..I on the other hand tend to freeze up when I hear what some doctor says… I always had a strong voice but I’ve become more withdrawn and I don’t like it, thank you for the strength you show, it’s very inspiring for me and I truly wish only the best for you.

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Thank you so much. Not sure how brave I am but had this strong feeling that was the best thing to do. I’m pretty sure it’s the right call as the doc said I probably will have months to a year so I would rather be my healthier normal self then treatments that leave me sick etc when I have only that much time left. If it goes to another organ maybe quicker but as he said I’m in such good shape for my age I could last longer! That’s my hope. I wish you nothing but the best and will definitely pray for that! Only you know what you want so stand by your decisions. ❤️

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@frouke

@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and what is best for you..I on the other hand tend to freeze up when I hear what some doctor says… I always had a strong voice but I’ve become more withdrawn and I don’t like it, thank you for the strength you show, it’s very inspiring for me and I truly wish only the best for you.

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Hi again. I just went back to your original post and see your in Canada. Me also, I’m in British Columbia close to the Washington border.

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Hi I wanted to share a story with you about how long we have..I had a good friend years ago who had a double lung transplant.. he was a small man in stature but he had a strong life force, I could sense his energy when he was close by..he told me the doctors gave him 3-5 years with his new lungs, he lived for over 16 years after his surgery, in fact his in the medical journals in the UK. He told me his love of life and really wanting to be here as long as possible is what got him through. I don’t believe that doctors should tell patients how much time they have, instead they should keep their opinions to themselves because they really don’t have a clue what nature and God can do for you. I am a Canadian and I live in Toronto, it’s nice to hear from a fellow Canuck 👍🙏😊

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I have posted about my lung cancer before but here is a quick smmary and update. I was diagnosed with Stage 3B NSCLC in February 2022. I had 6 weeks of chemo, Paclitaxel and Carboplatin once a week. I also had Proton radiation therapy over those same 6 weeks, 5 days a week for a total of 30 sessions. Then I had 12 months of immunotherapy using Durvalumab every 4 weeks for 13 sessions.
The update is that the immunotherapy ended in April and I just had a CT scan checkup and it is NED (No Evidence of Disease). That is as good as it gets and of course that makes me feel very good. We will continue with the periodic scans but as of now Mayo Clinic has sure done a great job in treating my cancer. The outstanding result speaks for itself but I want to say how much I appreciate my entire oncology team and everybody that treated me. They really know how to deal with patients and were so wonderfully nice and they kept me feeling positive during this entire trying time.

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@millie5737

My husband also has stage IV meaning it metastasized to his other lung, in other words both lungs. PetScan showed no other spreading, this was done in Sept. He has just completed 4 rounds of chemo & immunotherapy. Very few side effects, other than lots of sleep.

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How is he doing?

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Just got the word from my Mayo Clinic Doctors, my Stage 3 lung cancer is now CURED, I am now cancer Free.

Ablation + 2 rounds of Immunotherapy + surgery to prove it = CURED.

But with all good news there is little bad mixed in. THC in all forms reduces the effeteness of Immunotherapy and must be avoided during and for a year after treatment. God Bless the Mayo...

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@mrnootz

Just got the word from my Mayo Clinic Doctors, my Stage 3 lung cancer is now CURED, I am now cancer Free.

Ablation + 2 rounds of Immunotherapy + surgery to prove it = CURED.

But with all good news there is little bad mixed in. THC in all forms reduces the effeteness of Immunotherapy and must be avoided during and for a year after treatment. God Bless the Mayo...

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Hi @mrnootz!, that’s great news. I’m so glad that the treatments were effective for you. Will you continue to have follow up scans, but to be sure things stay clear?

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CT scan every 3 months for 2 years, followed by CT scans every 6 months for the next 3 years. Once a year after the 5 year mark. I am patient #1 for the Mayo Clinic using Ablation first on lung tumors. Hopefully at some point, stage 3 can be treated out-patient.

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@mrnootz

CT scan every 3 months for 2 years, followed by CT scans every 6 months for the next 3 years. Once a year after the 5 year mark. I am patient #1 for the Mayo Clinic using Ablation first on lung tumors. Hopefully at some point, stage 3 can be treated out-patient.

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Go research! It makes me happy to know that a new treatment approach worked for you. Hoping for many others too!

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@frouke

@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and what is best for you..I on the other hand tend to freeze up when I hear what some doctor says… I always had a strong voice but I’ve become more withdrawn and I don’t like it, thank you for the strength you show, it’s very inspiring for me and I truly wish only the best for you.

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Hi @frouke : Thought I would give you an update. I talked to several cancer docs and they wanted me to get radiation. The last one at that time said I could do either 5 low dose or 10 high doses which he suggested the higher. He was leaving on a 2 mth sabbatical so I kinda rushed my answer and said I would do the 10. I thought about it and talked to my family Dr and said I was leaning toward getting the low dose so he suggested to try it and if there were bad side effects I could stop if that’s what I wanted. I did try that and started on Sept 8 and finished on the 14th. It did bother my esophagus but the clinic Dr suggested taking Pepcid A twice daily which pretty much did the trick. I lost some energy but went to California twice and just back from the last one which was one week and felt the best I’ve been. As usual I’ve just gone by my gut feeling! You never know it may have helped in slowing it down. Guess I’ll find that out probably I’m assuming in 3-4 months they’ll do another scan.
Hoping you’re doing well and to let you know I’m in White Rock so maybe you are too! If so let me know and I’ll buy you a coffee.
Joan

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