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Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Posted by rose53 @rose53, Oct 21, 2021

I was just diagnosed with this uterine cancer. I am 68 and I'm so freightened. Waiting to see doctor for hysteroctomy. This is all I know. I had a biopsy done and this is the result. Anyone please let me know what ro expect and do before hand and any suggestions are embraced. ❤

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ejrdevries | @ejrdevries | Nov 23, 2021
In reply to @naturegirl5 "@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester,..." + (show)
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@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester, MN. The radiation oncologist and his team spent a lot of time with me and I feel I am in very good hands. How are you doing, @rose53? Are you recovering back at home?

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I live in the Grand Rapids area of Michigan. When I had radiation I had it a Blodgett Hospital. The radiation oncologist has since moved to U of M Metro Health in Grand Rapids. Dr. Julie Forstner was very good.

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Helen, Volunteer Mentor | @naturegirl5 | Nov 23, 2021
In reply to @ejrdevries "I did not quilt during that time, but did crochet baby blankets for pregnancy resource center...." + (show)
Profile picture for ejrdevries @ejrdevries

I did not quilt during that time, but did crochet baby blankets for pregnancy resource center. The week of chemo I did very little as I was too weak and had a foggy brain. Hard to read a book, even.

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@ejrdevries It's lovely that you crochet baby blankets for a pregnancy resource center. I've learned that when I'm feeling something intensely or ill that doing something for someone else really helps. Do you agree? Like posting here on Mayo Clinic Connect and how we can help and support one another.

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Helen, Volunteer Mentor | @naturegirl5 | Nov 23, 2021
In reply to @rose53 "Helena, Yes I had my surgery in Jacksonville. My doctor did not have to remove lympnodes..." + (show)
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Helena,
Yes I had my surgery in Jacksonville. My doctor did not have to remove lympnodes because there was no visible spread. I'm still waiting from pathology for results from whatever they test. Haven't been told of any stage etc or any additional treatment. Does that come later after I receive pathology call in about a week Iwas told. My follow up is in a month. Now that the surgery is done, it took a heavy load of of me. Are you doing well? Thank you for your support .🥰

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Hello, @rose53 This is excellent news! Yes, it takes a few days for pathology to review and then report the results. I got a call about a week after my surgery from the doctor's office to tell me the results of the pathology. Do you have a Mayo Clinic portal that you can sign into? If so, you can access reports on the portal. Reports from labs, scans, and pathology are first reviewed by your doctor before you can see them so if you don't see something you can message your doctor and ask. I've found that messages on the portal are answered very quickly.
Yes, that big sign of huge relief you are experiencing after the surgery. It was like that for me too. It took me a few weeks to get my energy back. I hope you take care of you and take the rest you need. My doctor told me that even though I had only a few visible incisions there were big changes inside me that take some time to heal.

Thank you for asking about me. Yes, I'm doing well and have my up and down moments - you know, that emotional rollercoaster you posted about.

At that one month followup my doctor discussed my cancer survivorship plan and gave me a written copy. If you need more treatment I think that's when you'll have that discussion with your doctor as you need to heal before doing anything else. Will you come back here and let me know what you find out from pathology?

Blessings to you and yours for Thanksgiving.

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rose53 | @rose53 | Nov 23, 2021
In reply to @naturegirl5 "@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester,..." + (show)
Profile picture for Helen, Volunteer Mentor @naturegirl5

@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester, MN. The radiation oncologist and his team spent a lot of time with me and I feel I am in very good hands. How are you doing, @rose53? Are you recovering back at home?

Jump to this post

Helena,
Yes I had my surgery in Jacksonville. My doctor did not have to remove lympnodes because there was no visible spread. I'm still waiting from pathology for results from whatever they test. Haven't been told of any stage etc or any additional treatment. Does that come later after I receive pathology call in about a week Iwas told. My follow up is in a month. Now that the surgery is done, it took a heavy load of of me. Are you doing well? Thank you for your support .🥰

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Helen, Volunteer Mentor | @naturegirl5 | Nov 23, 2021
In reply to @rose53 "Where you located? Are you seeing oncologist at Mayo?" + (show)
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Where you located? Are you seeing oncologist at Mayo?

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@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester, MN. The radiation oncologist and his team spent a lot of time with me and I feel I am in very good hands. How are you doing, @rose53? Are you recovering back at home?

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ejrdevries | @ejrdevries | Nov 22, 2021

Read my comments on this sight. I had this cancer 14 years ago. Advice: Ask questions, look up stuff on medical sites, follow the doctors advice along the way, and talk to all of us on here.

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ejrdevries | @ejrdevries | Nov 22, 2021
In reply to @naturegirl5 "Hello again, @ejrdevries Thank you for sharing all this with me. I've been told by oncology..." + (show)
Profile picture for Helen, Volunteer Mentor @naturegirl5

Hello again, @ejrdevries Thank you for sharing all this with me. I've been told by oncology that keeping active is so good for us and to continue to stay active even when you don't feel like it. You are such an example of that with keeping up with the deep water aerobics. Yes, you are blessed and you've had the opportunity to watch your family grow. I truly appreciate that you have shared here as show me following the treatment plan with your GYN/ONC has led to the full life you have now. I'm not a quilter but I love hand-made quilts. Did you quilt throughout your cancer treatment too?

Blessings this Thanksgiving

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I did not quilt during that time, but did crochet baby blankets for pregnancy resource center. The week of chemo I did very little as I was too weak and had a foggy brain. Hard to read a book, even.

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rose53 | @rose53 | Nov 21, 2021
In reply to @andrea69 "Hello Helen, Thank you so much for checking on me. <3 I had my CT scans..." + (show)
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Hello Helen,

Thank you so much for checking on me. <3 I had my CT scans done a week ago - a chest scan, and abdomen/pelvic scans with and without contrast. I got all of the results back, and I am ecstatic. My chest was clear - nodes are clear and no suspicious nodules, and I saw this:

"No adenopathy or ascites. Normal caliber abdominal aorta. Unremarkable IVC."

I looked up what adenopathy is, and it means lymph nodes. My pelvic nodes are clear. 🙂

I see Oncology tomorrow for my consult, so hopefully I will have additional news then, but I am still in a state of happy shock from seeing this. All of my other organs were fine - except for a small kidney stone, and two compression fractures in my back. I also have a fatty liver, and I went on medication two days ago to address that.

I will write tomorrow or Tuesday to let you know what the plan is for treatment. Thank you again so much! 🙂

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Where you located? Are you seeing oncologist at Mayo?

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Helen, Volunteer Mentor | @naturegirl5 | Nov 21, 2021
In reply to @ejrdevries "I was 67 when first diagnosed and am now 81. My cancer was Stage3c2 and grade..." + (show)
Profile picture for ejrdevries @ejrdevries

I was 67 when first diagnosed and am now 81. My cancer was Stage3c2 and grade 3 tumor, about the worst. I had an excellent gyn/onc, very thorough, and very supportive. I did not hide myself, I went to deep water aerobics three times a week, missing only the week of chemo. I did not have any nausea thanks to many meds. Five meds by infusion before the actual chem and four more to take every 6 hours for the three days following. I never had a cough or sniffle throughout the treatment. I am truly blessed. I do have neuropathy in both sensory and motor nerves and have used a walker for most of the 14 years. We have traveled and I have seen grandchildren grow up, graduate from universities and make their way in life. I still do those water aerobics, lead a Bible study, go to church, make hand stitched quilts.

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Hello again, @ejrdevries Thank you for sharing all this with me. I've been told by oncology that keeping active is so good for us and to continue to stay active even when you don't feel like it. You are such an example of that with keeping up with the deep water aerobics. Yes, you are blessed and you've had the opportunity to watch your family grow. I truly appreciate that you have shared here as show me following the treatment plan with your GYN/ONC has led to the full life you have now. I'm not a quilter but I love hand-made quilts. Did you quilt throughout your cancer treatment too?

Blessings this Thanksgiving

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Helen, Volunteer Mentor | @naturegirl5 | Nov 21, 2021
In reply to @andrea69 "Hello Helen, Thank you so much for checking on me. <3 I had my CT scans..." + (show)
Profile picture for andrea69 @andrea69

Hello Helen,

Thank you so much for checking on me. <3 I had my CT scans done a week ago - a chest scan, and abdomen/pelvic scans with and without contrast. I got all of the results back, and I am ecstatic. My chest was clear - nodes are clear and no suspicious nodules, and I saw this:

"No adenopathy or ascites. Normal caliber abdominal aorta. Unremarkable IVC."

I looked up what adenopathy is, and it means lymph nodes. My pelvic nodes are clear. 🙂

I see Oncology tomorrow for my consult, so hopefully I will have additional news then, but I am still in a state of happy shock from seeing this. All of my other organs were fine - except for a small kidney stone, and two compression fractures in my back. I also have a fatty liver, and I went on medication two days ago to address that.

I will write tomorrow or Tuesday to let you know what the plan is for treatment. Thank you again so much! 🙂

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Hello, @andrea69 Andrea,

This is such wonderful news. I'm really happy for you and imagine you jumping in the air with excitement when you got this good news. Happy shock, indeed!!

Will you please write again after you see the oncologist and write about the treatment plan?

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