Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Hi @andrea69 I've been thinking about you and wondering if you heard back from the GYN/ONC. Do you have some new information to share? How can I help?

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Hello @ejrdevries Thank you for sharing your journey through endometrial cancer. I'm happy to know that your gynecologist referred you to GYN/ONC. My gynecologist did the same right away. Your journey provides hope for all of us, including myself (recently diagnosed with recurrent endometrial cancer). Like you I was presented with a cancer survivorship plan. My plan included recommended visits every 6 months (my cancer was Stage 1a with no evidence in lymph nodes) and I went back for visits as I was supposed to. It was at a recent visit when the recurrent cancer was discovered. I'm starting radiation on December 6 (25 days) followed by 3 brachytherapy visits (internal radiation). After that I will go back every 3 months in my new and then longer periods of time if no other cancer is diagnosed. You are 14 years out from your original diagnosis with no evidence of cancer. This is wonderful news. This gives me and I hope others who visit Mayo Connect hope that treatment does work.

If I may ask how old were you when you first diagnosed in 2007 and how is your life now?

Blessings to you and yours as we approach Thanksgiving.

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Hello Helen,

Thank you so much for checking on me. <3 I had my CT scans done a week ago - a chest scan, and abdomen/pelvic scans with and without contrast. I got all of the results back, and I am ecstatic. My chest was clear - nodes are clear and no suspicious nodules, and I saw this:

"No adenopathy or ascites. Normal caliber abdominal aorta. Unremarkable IVC."

I looked up what adenopathy is, and it means lymph nodes. My pelvic nodes are clear. 🙂

I see Oncology tomorrow for my consult, so hopefully I will have additional news then, but I am still in a state of happy shock from seeing this. All of my other organs were fine - except for a small kidney stone, and two compression fractures in my back. I also have a fatty liver, and I went on medication two days ago to address that.

I will write tomorrow or Tuesday to let you know what the plan is for treatment. Thank you again so much! 🙂

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I was 67 when first diagnosed and am now 81. My cancer was Stage3c2 and grade 3 tumor, about the worst. I had an excellent gyn/onc, very thorough, and very supportive. I did not hide myself, I went to deep water aerobics three times a week, missing only the week of chemo. I did not have any nausea thanks to many meds. Five meds by infusion before the actual chem and four more to take every 6 hours for the three days following. I never had a cough or sniffle throughout the treatment. I am truly blessed. I do have neuropathy in both sensory and motor nerves and have used a walker for most of the 14 years. We have traveled and I have seen grandchildren grow up, graduate from universities and make their way in life. I still do those water aerobics, lead a Bible study, go to church, make hand stitched quilts.

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Hello Helen,

Thank you so much for checking on me. <3 I had my CT scans done a week ago - a chest scan, and abdomen/pelvic scans with and without contrast. I got all of the results back, and I am ecstatic. My chest was clear - nodes are clear and no suspicious nodules, and I saw this:

"No adenopathy or ascites. Normal caliber abdominal aorta. Unremarkable IVC."

I looked up what adenopathy is, and it means lymph nodes. My pelvic nodes are clear. 🙂

I see Oncology tomorrow for my consult, so hopefully I will have additional news then, but I am still in a state of happy shock from seeing this. All of my other organs were fine - except for a small kidney stone, and two compression fractures in my back. I also have a fatty liver, and I went on medication two days ago to address that.

I will write tomorrow or Tuesday to let you know what the plan is for treatment. Thank you again so much! 🙂

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Hello again, @ejrdevries Thank you for sharing all this with me. I've been told by oncology that keeping active is so good for us and to continue to stay active even when you don't feel like it. You are such an example of that with keeping up with the deep water aerobics. Yes, you are blessed and you've had the opportunity to watch your family grow. I truly appreciate that you have shared here as show me following the treatment plan with your GYN/ONC has led to the full life you have now. I'm not a quilter but I love hand-made quilts. Did you quilt throughout your cancer treatment too?

Blessings this Thanksgiving

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Where you located? Are you seeing oncologist at Mayo?

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@rose53 We live in Michigan. Yes, I'm seeing a radiation oncologist at Mayo Clinic in Rochester, MN. The radiation oncologist and his team spent a lot of time with me and I feel I am in very good hands. How are you doing, @rose53? Are you recovering back at home?

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Helena,
Yes I had my surgery in Jacksonville. My doctor did not have to remove lympnodes because there was no visible spread. I'm still waiting from pathology for results from whatever they test. Haven't been told of any stage etc or any additional treatment. Does that come later after I receive pathology call in about a week Iwas told. My follow up is in a month. Now that the surgery is done, it took a heavy load of of me. Are you doing well? Thank you for your support .🥰

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