Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

@sharshar1209, checking to see how your recovery from surgery is going. Have you had a surgical follow-up in the meantime? How are you doing?

Hi I’m so sorry to hear what you’re going through. I myself was recently diagnosed with endometrial cancer. I had a total hysterectomy a few days ago. I haven’t even had my follow up yet. Everything is moving so fast and yes, I’m a nervous wreck. Keep the faith that’s what I keep telling myself.
Sending blessings to everyone
Shar🌹

Thank you, Greatgrandma2025! I appreciate your response!

Keep on keeping on, and god bless you ~

@emeryenglish333 Be vigilant about your concerns and research everything. Good luck and Merry Christmas. My journey started on Christmas Day 2024 and I am thankful I am here for this Christmas. this year. I will be 81 soon so that's my next hurdle.

Hi All,
just received biopsy results of
Endocervical polyp and fibroid; polypectomy: - Endometrial endometrioid adenocarcinoma, consistent with FIGO grade 2.

I think I’m in shock because I don’t feel anything. I don’t know what I’m supposed to feel… I’ve read the definitions of the above, including the FIGO grade.

I just switched out of the insurance that diagnosed this to another carrier. Right now that is worrying me more than the actual diagnosis. I live alone away from family, but I know I’m not alone… 69, turning 70 soon.

No bleeding, but back pain. I’m really angry at the system and the doctors, particularly the PCP’s who provide 20 minutes of time to discuss my “health concerns.” I asked one PCP about treatment for being obese and she told me to go to over eaters anonymous, which there are none where I live. Two years ago, I went to a pelvic exam and it was the most bizarre gynecological exam I’ve ever had in my life.. the doctor was clearly uncomfortable and unused to using a speculum. Totally ridiculous and bizarre and it took me two more years to get to see this really wonderful doctor and surgeon and through an ultrasound found a mass on my cervix and a fibroid. She’s is filling in for a doctor on pregnancy leave at the clinic I go to and is leaving December 31…

I’m angry. So angry…

@naturegirl5
Last week went surprisingly well. I am happy to say that those are done and hopefully I can move on. This week I am super tired and have a lot of stomach cramping and some swelling. My radiation oncologist said to expect that. Now we wait for another MRI in February and pray for the tumor to be gone.

I am so glad I found this post, it gives me some hope with my third round of chemo tomorrow,
and will be starting the 25 rounds of radiation soon after, then 2 brachy, and 3 rounds of chemo follow-up, were yours the same strength as the first three chemo??? Wish it was less severe I get bad bone pain starting at day 3 & 4 and everything gets better around week later. Constipation till day 3 & 4. Hoping this time will be better. But, am more hopefully this is the way to go. Thank You for your post.

@cmb22. It's such good news that your previous treatment (external beam radiation that you posted about earlier in this discussion) reduced the tumor by one third. I had high dose brachytherapy and while I was very nervous for the first one since it was a complete unknown for me I found it to be surprisingly not all that uncomfortable. I felt SO good after the first brachytherapy that it was over with and I felt Ok that I celebrated by having ice cream. It was January in Minnesota then. Who eats ice cream in winter? I did!

Will you let me know how it goes for you next week?

Next week I will have the first of 3 aggressive high dose brachytherapy treatments. I am quite nervous, but anxious to get these behind me. I had an MRI and my tumor is about a third smaller than when I began.

I've been praying for you since your original post. I'm nearly 6 weeks post op and kept good daily notes of my surgery and after. My surgery went very well and I had no pain. I watched youtube videos - women who had a hysterectomy and their tips. Also I loved videos by a physical therapist one was how to sleep after a hysterectomy, another was how to get out of bed after a hysterectomy and another was how to get rid of gas after a hysterectomy. You are welcome to ask questions and/or send me a message. Take one day at a time. Each day you will feel better. On the day of surgery, ask questions. The nurse will come in, the doctor, the anesthesiologist, etc. Ask them questions if you have them. When the anesthesiologist came in and introduced himself, I told him how happy I was to meet him! He said he wanted to review what he would be doing and how much anesthesia to give me....I told him I have never been pregnant nor had kids and a total wimp with pain so give me more than less - keep me as pain free as possible after surgery as long as possible! He laughed and said he made a note of it lol! All I can say, I LOVE that guy. I still haven't had any pain lol. When I woke up everyone was asking me if I had pain and praise God I was able to say no! I had discomfort, felt 60% of myself when I woke up...each day I felt about 5% better. They only told me to alternate advil and tylenol every 6 hours and after the 3rd day I didn't take anything. I was told by my regular gyn..being relaxed, in good spirits, thinking positively, praying/meditation will help with my healing - it did. Try to relax, prepare, and take one day at a time.