1. < Gynecologic Cancers

Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Posted by rose53 @rose53, Oct 21, 2021

I was just diagnosed with this uterine cancer. I am 68 and I'm so freightened. Waiting to see doctor for hysteroctomy. This is all I know. I had a biopsy done and this is the result. Anyone please let me know what ro expect and do before hand and any suggestions are embraced. ❤

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

ejohn | @ejohn | Nov 9, 2021
In reply to @colleenyoung "Hi Rose, it sounds like you now have an outline of your treatment plan and surgery..." + (show)
@colleenyoung

Hi Rose, it sounds like you now have an outline of your treatment plan and surgery is the very first step. That's a good step forward and onward to recovery.

You'll notice that I moved your message to the Gynecological Cancers group https://connect.mayoclinic.org/group/gynecologic-cancer/ to the discussion where you connected with @ejohn and @naturegirl5. I did this so that they get your update and continue to support you.

You're so right that it is normal to experience an emotional roller coaster. In fact @hopeful33250 started a discussion by that title here:
- The Roller Coaster Ride of Cancer https://connect.mayoclinic.org/discussion/the-roller-coaster-ride-of-cancer/

Rose, While fear of the unknown remains, do you feel more oriented with a plan of action? What questions do you have about your upcoming surgery?

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Hi Rose, Wishing you an easy surgery and recovery. Feel all the emotions and know that you are supported in all of this. The unknown is so scary and hopefully after surgery it will really clear what is need to do. Sending you lots of love, Eileen

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rose53 | @rose53 | Nov 9, 2021

Eileen,
It is so encouraging to know that even though we don't know each other, you are wishing me well. I feel close to you already as if we have known each other. I needed this. Thank you and best wishes for you as well.🥰

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Nov 10, 2021
In reply to @rose53 "Hello, I have recently been diagnosed with uterine cancer; Adenocarcinoma. I was very freightened to first..." + (show)
@rose53

Hello,
I have recently been diagnosed with uterine cancer; Adenocarcinoma. I was very freightened to first hear it from my doctor. I cried everyday, couldn't eat, couldn't think but the worst that could happen to me. After a few days, I was able to face the fact that I had cancer. Three weeks ago today I finally got what I needed to do to get my treatment and the first and foremost I need done is surgery. I am scheduled for Nov. 17. My anxiety is still up there because of the unknown . I wanted to share this because it is normal to go through this emotional roller coaster. I find that praying to GOD
about my concerns helps me tremendously.

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Hello @rose53. Yes, the roller coaster ride of cancer is all too familiar for those of us who have dealt with it. While I've not had gynecological cancer, I have had three surgeries for carcinoid cancer of the digestive tract. It is not something you "get used to."

You are doing good things for yourself now in terms of getting support from others who have been down this road as well as getting a sound medical opinion. I'm glad to find that you have also found some spiritual support through prayer. I will be glad to join you in praying for your surgery on Nov. 17.

Keep posting on Connect as you feel you need support and some shoulders to lean on. That is why we are here!

Will your surgery be at a Mayo facility?

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1 reply
rose53 | @rose53 | Nov 10, 2021
In reply to @hopeful33250 "Hello @rose53. Yes, the roller coaster ride of cancer is all too familiar for those of..." + (show)
@hopeful33250

Hello @rose53. Yes, the roller coaster ride of cancer is all too familiar for those of us who have dealt with it. While I've not had gynecological cancer, I have had three surgeries for carcinoid cancer of the digestive tract. It is not something you "get used to."

You are doing good things for yourself now in terms of getting support from others who have been down this road as well as getting a sound medical opinion. I'm glad to find that you have also found some spiritual support through prayer. I will be glad to join you in praying for your surgery on Nov. 17.

Keep posting on Connect as you feel you need support and some shoulders to lean on. That is why we are here!

Will your surgery be at a Mayo facility?

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Hello everyone. Its finally approaching for that day to have my surgery at Mayo Jacksonville on the 17th of this month. I feel I have made the right decisions to go with Mayo. After visiting for the first time for my consult, I could not be more pleased at how nice and uncomplicated my visit was. The staffs, nurses were very pleasant and so helpful. I'm still anxious of the unknown but sharing thoughts with those who have reached out, thank you for your encouraging words. I thank you: Teresa, Nature girl, Ellen, Eileen, ejohn, and Colleen. Bless you all.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Nov 11, 2021
In reply to @rose53 "Hello everyone. Its finally approaching for that day to have my surgery at Mayo Jacksonville on..." + (show)
@rose53

Hello everyone. Its finally approaching for that day to have my surgery at Mayo Jacksonville on the 17th of this month. I feel I have made the right decisions to go with Mayo. After visiting for the first time for my consult, I could not be more pleased at how nice and uncomplicated my visit was. The staffs, nurses were very pleasant and so helpful. I'm still anxious of the unknown but sharing thoughts with those who have reached out, thank you for your encouraging words. I thank you: Teresa, Nature girl, Ellen, Eileen, ejohn, and Colleen. Bless you all.

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Hello, @rose53 I'm so happy to hear back from you and to know that you feel good about your decision. Your experience at Mayo is much like my own. The physicians, nurses, and all staff I encounter are helpful and listen to me. Yes, the uncertainties you face are anxiety-provoking. Your faith and your prayers will sustain you.

I will keep you in my thoughts and prayers on November 17.

Blessings to you,

Helen

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rose53 | @rose53 | Nov 11, 2021
In reply to @naturegirl5 "Hello, @rose53 I'm so happy to hear back from you and to know that you feel..." + (show)
@naturegirl5

Hello, @rose53 I'm so happy to hear back from you and to know that you feel good about your decision. Your experience at Mayo is much like my own. The physicians, nurses, and all staff I encounter are helpful and listen to me. Yes, the uncertainties you face are anxiety-provoking. Your faith and your prayers will sustain you.

I will keep you in my thoughts and prayers on November 17.

Blessings to you,

Helen

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🙏❤

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Nov 20, 2021

@rose53 I believe you wrote that your surgery (hysterectomy) was scheduled at Mayo Jacksonville on November 17. You were in my thoughts on that day and you still are. How are you doing? Did you surgeon give you information about the surgery afterward? Please remember that you are supported here.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Nov 20, 2021
In reply to @andrea69 "Good morning Helen, Thank you so much for your reply. I spoke with a physician yesterday,..." + (show)
@andrea69

Good morning Helen,

Thank you so much for your reply. I spoke with a physician yesterday, who is filling in for my doctor who is currently on vacation. She told me that she had already sent a referral to the GYN/ONC department, so hopefully I will be speaking with them soon. I do have a copy of the pathology report, and it is indeed quite confusing in spots - especially the marker terminology, so I will def. have questions about the terminology.

I wish I could have children, but they told me I was walking a fine line between being menopausal and post-menopausal. One of the biggest risk factors I have right now is obesity. I have been told that I am indeed a candidate for robotic/laparoscopic surgery, but it seems whenever I breach the subject, they shy away from it. I am going to strongly press for it now. I am conscientiously dieting and have lost a fair amount of weight, and my goal is to lose at least 10-20% of my overall weight. Hopefully they will see that as an indication I am serious about getting this surgery and that I am doing everything I can on my end to get this excess weight off.

I will give the GYN/ONC today to get back to me. If I don't hear from them, I will give them a call tomorrow. I keep reminding myself that my doctor did tell my husband that "she got it all", and that the muscle underneath the concerning area was clean, pink and without discoloration or erosion. It did sound positive, so I am hoping that is an indication of everything as a whole.

Many, many thanks and blessings to you. I will report back when I have some more info.

Andrea

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Hi @andrea69 I've been thinking about you and wondering if you heard back from the GYN/ONC. Do you have some new information to share? How can I help?

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ejrdevries | @ejrdevries | Nov 21, 2021

I was diagnosed with endometrial adenocarcinoma in 2007. My gyn called to tell me that he wanted to refer me to the local gyn/onc team. He told me that when cancer is present he always refers to gyn/onc for surgery because that surgery involves tissue that only a gyn/onc has the ability to remove: uterus, tubes, ovaries, 29 lymph glands, omentum. All of these were removed by my gyn/onc in a 4 hour surgery. The lab reported cancer in uterus and in 11 of the lymph glands. I had 3 rounds of high dose chemo, 25 days of radiation, 3 internal radiation, and 3 more rounds of chemo. I saw my doctor every three months for a couple of years, then every 6 months for three more years and once a year until my 10 years were completed. It is now 14 years and no more evidence of cancer.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Nov 21, 2021

Hello @ejrdevries Thank you for sharing your journey through endometrial cancer. I'm happy to know that your gynecologist referred you to GYN/ONC. My gynecologist did the same right away. Your journey provides hope for all of us, including myself (recently diagnosed with recurrent endometrial cancer). Like you I was presented with a cancer survivorship plan. My plan included recommended visits every 6 months (my cancer was Stage 1a with no evidence in lymph nodes) and I went back for visits as I was supposed to. It was at a recent visit when the recurrent cancer was discovered. I'm starting radiation on December 6 (25 days) followed by 3 brachytherapy visits (internal radiation). After that I will go back every 3 months in my new and then longer periods of time if no other cancer is diagnosed. You are 14 years out from your original diagnosis with no evidence of cancer. This is wonderful news. This gives me and I hope others who visit Mayo Connect hope that treatment does work.

If I may ask how old were you when you first diagnosed in 2007 and how is your life now?

Blessings to you and yours as we approach Thanksgiving.

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