Activities with Chronic Fatigue

Posted by karmgreen @karmgreen, Jun 30 7:54am

I’m currently in the process of getting assessed for my general health, which I imagine will quite likely result in a ME/CFS and/or Fibro diagnosis. I’m finding my days are quite boring so to say. I’m mostly bedbound, pretty much the only reasons I leave bed is for necessities; food, refill water, reheat heat packs for my pain, bathroom. I struggle with depression, which I had before the fatigue got really bad, but having both definitely doesn’t help, the depression influences fatigue, the fatigue influences the depression, it’s a horrible, endless cycle. But I’m finding my days quite boring and want something to do, that’s super low energy. I see a lot of things like puzzles and colourings, which while I enjoy, are often still too much energy for me, and cause me pain. Any recommendations?

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celia16 | @celia16 | Jul 1 6:33am

Would increasing your activity help so you can build more energy? Does your condition improve with increased rest or is activity more therapeutic? Can you get PT to help with muscle strength? Perhaps the pending diagnosis will offer some guidance. Best wishes on your recovery.

leoandbear | @leoandbear | Jul 1 11:34am

I also have that problem of being bored. Amazon is a good place to buy kits for knitting/crocheting or paint by number. I usually get those in the children’s section so they’re really easy! lol! I do watch a lot of streaming on my tablet. On a tablet I find the picture/sound less stimulating than a tv. I read a lot but not with a book. I found a book too hard to hold and turn pages. So a kindle is my go to reader. I can check out books from our library online. It’s light to hold and you can size up the font. When it’s nice out I have an outside reclining outdoor chair I can sit in and listen to podcast. Three years ago I finally found a volunteer position that takes only 2 hours! I read to a kindergarten for 40 minutes. The rest is travel time. To do this I do have to stay home the day before and then stay home the day after to recover. But I find that my depression is so much better than I have one thing I do outside of the house involved with others. And of course it’s really hard to make friends which doesn’t help with my depression too. I do have a cat, which I think really helps with depression. And cats aren’t like dogs jumping on you or needing walks. I wouldn’t recommend getting a kitten though because they are a lot of work to train. I have usually gotten a cat who’s already two years or a little bit older. They get a home and they are already potty trained. Good luck.