Linda Robertson
@l3440r
@l3440r
Posts: 36
Joined: Jul 24, 2017
I saw Dr Burdick
at Phoenix Mayo and had Linx surgery by Dr. Harold there also, it is a excellent facility if you don’t want to travel all the way east.
Who is your doctor at Mayo? I have thought of going there just for a consultation on What their treatment plan would be. I would like to know about you but I guess that is not kosher to be too personal. You are the one of two who have had treatment and issues. I am thinking of calling and making an appt to go back to MDAnderson for my next appt in December but the issue had always been my single mother daughter with two young children cannot always take off for two days to take me. I keep trying to work it out. The local doctor did an EMR instead of the RFA and it was not really necessary as the doctor suggested from MDA and I am afraid that will set me back a bit. I want to keep my esophagus working well as long as I can. THANKS FOR SHARING. How long have you been on treatment for high dysplasia? Mine has been since Feb (9 months) I am hoping it will go away in the next two treatments but like you it could always come back. I don’t know your age or sex or but can’t help but wonder. Ciao
Liked by Kanaaz Pereira, Connect Moderator
Kanaaz Pereira, Connect Moderator
@kanaazpereira
@kanaazpereira
Posts: 2496
Joined: Oct 09, 2016
Hi Linda @l3440r,
If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online.
The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments
When you call, the appointment desk will ask questions to help direct you to the best specialist, either at Mayo or closer to home.
dandl48 Dave
@dandl48
@dandl48
Posts: 169
Joined: Apr 10, 2016
I saw Dr Burdick
at Phoenix Mayo and had Linx surgery by Dr. Harold there also, it is a excellent facility if you don’t want to travel all the way east.
Dr Wang is my MD at Mayo in Rochester and as I told others on a scale of 1 to 10 with 10 being the highest he is a 12. When meeting with him he doesn’t rush you at all. Super nice and his staff is great. My High Dysplasia lasted for 2 treatments but Barrett’s comes and goes. Good luck, Dave
greenfitonline
@greenfitonline
@greenfitonline
Posts: 2
Joined: Aug 11, 2018
Thanks for your info. Allergies were the first thing I thought of. It was not allergies. I went to an ENT Dr. who knew it was “Silent Reflux” and prescribed PPI’s. I’ve tried all the PPI’s but none work.
Phil
I am so lucky as I no longer have an epiglottis due to throat cancer but omeprazole has completely managed it for the past 15 years.
654321
@654321
@654321
Posts: 105
Joined: May 29, 2018
Since I am a temporal arteries person my thoughts are that this terrible acid reflex is part of that . It got better and didn t take the protonics but it s back now. The medicine is wonderful so I have to take it daily. It s prescription called pantazone (spelling. Really helps . Also tomatoes is a big trigger. Hate that because they are so delicious.
I wrote about this in the past. I did have the LINX procedure, it does have it’s problems but does keep the acid down. The problem is if you eat foods that cause gas the gas puts pressure on the device and can be painful. If you have a compromised LES nothing will stop the acid from going up your esophagus and into your sinuses. The cough used to make me vomit!. I found out after the fact that I was fructose intolerant and that any fruit would produce gases, the gases push the acid up. The LINX now stops it from passing the LES but like I said can cause discomfort but not nearly as bad as the burping, bleching ,coughing,ect without it. All these acid reflux diets promote fruit and I love it but try going fruit and fructose free for a few days. It also lowered my blood sugar! I was tested for this at MAYO and it was negative but found out these tests are not reliable. It often takes a day for the fruit to cause problems due to the fact if you don’t have the enzyme to break it down it ferments and causes the gas. My gas was so bad I was undateable! Now that is under control also. You can google fructose intolerance or go to pubmed.com
I also do not produce enough enzymes to digest various sugars found in certain foods. Even though I follow a FODMAP diet which helps to reduce the sugars that I cannot digest, I was still having digestive issues with this along with acid reflux. I have now tried enzymes which are helping me to digest the sugars and as a side benefit are also helping me with my acid reflux.
I'm sorry to hear of your symptoms including having had COVID. I thought I was going to have to live with all of my symptoms which also included several hours of lost sleep b/c I couldn't digest the food I was eating. I had been on PPI's and famotidine for many years. After developing a rash over quite a bit of my body, my doctor removed PPI's from my medications and added Carafate. When Famotidine was found to be linked to possibly causing cancer I was switched to Ranitidine. But since I started the enzymes, I am now sleeping and am slowly decreasing my Carafate and Ranitidine dosages. Hopefully I will be off of them soon!!
I'm sorry to hear of your symptoms including having had COVID. I thought I was going to have to live with all of my symptoms which also included several hours of lost sleep b/c I couldn't digest the food I was eating. I had been on PPI's and famotidine for many years. After developing a rash over quite a bit of my body, my doctor removed PPI's from my medications and added Carafate. When Famotidine was found to be linked to possibly causing cancer I was switched to Ranitidine. But since I started the enzymes, I am now sleeping and am slowly decreasing my Carafate and Ranitidine dosages. Hopefully I will be off of them soon!!
Thank you. How wonderful for you. What type of enzymes are you taking? Does that help with your food digestion? I get nausea a lot too
654321
@654321
@654321
Posts: 105
Joined: May 29, 2018
Thank you. How wonderful for you. What type of enzymes are you taking? Does that help with your food digestion? I get nausea a lot too
Pantoprazole 40 mg. Hope to go to 20 soon
654321
@654321
@654321
Posts: 105
Joined: May 29, 2018
I'm sorry to hear of your symptoms including having had COVID. I thought I was going to have to live with all of my symptoms which also included several hours of lost sleep b/c I couldn't digest the food I was eating. I had been on PPI's and famotidine for many years. After developing a rash over quite a bit of my body, my doctor removed PPI's from my medications and added Carafate. When Famotidine was found to be linked to possibly causing cancer I was switched to Ranitidine. But since I started the enzymes, I am now sleeping and am slowly decreasing my Carafate and Ranitidine dosages. Hopefully I will be off of them soon!!
Yes hope you are off soon
654321
@654321
@654321
Posts: 105
Joined: May 29, 2018
I also do not produce enough enzymes to digest various sugars found in certain foods. Even though I follow a FODMAP diet which helps to reduce the sugars that I cannot digest, I was still having digestive issues with this along with acid reflux. I have now tried enzymes which are helping me to digest the sugars and as a side benefit are also helping me with my acid reflux.
That’s good
@dandl48
Personally since the did find cancer in June I would go to the best hospital you can afford. I don’t think you want your esophagus removed. I love my DR. and his team @ Mayo in Rochester and I’m now on the Southern OR coast like 2000 miles away from MN.
Liked by Kanaaz Pereira, Connect Moderator