Mayo Clinic Connect
Does anyone have a variety of symptoms associated with Acid Reflux that are chronic? Such as chest pain, back pain, weird tastes, etc.? Please tell me your symptoms. A little worried here…thinking it may be something more serious.
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I saw Dr Burdick
at Phoenix Mayo and had Linx surgery by Dr. Harold there also, it is a excellent facility if you don’t want to travel all the way east.
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Just found out Dr Burdick retired. I’ve posted about the LINX in the past. If I eat foods that make me gassy it will put pressure on the device and it can be painful.. I found out after the surgery that I had a fructose intolerance even though Mayo tested me for it and it was negative. I still had to take 2 Zantac a day after surgery but when I cut out the fruit and sugar I haven’t taken any since. I would like to have the LINX stretched but waiting for a replacement Dr for Dr Burdick. I would suggest cutting out food groups before surgery and see if your intolerant to possibly grains, lactose, fructose, ect. They are more common then we think. Cutting out fruit, which I loved, also lowered my A1C to normal, stopped the foot cramps, lost weight, cystitis went away and burning stomach. Eating the wrong foods can cause autoimmune diseases. The “Plant Paradox” by Dr. Gundry is excellent in explaining this.
Thank you for your input. I, too, love fruit, but even bananas, apples, peaches, etc. cause me discomfort. I will avoid them and see if it helps. I take 300 mg. of ranitidine twice a day as I refuse to take PPIs so far. Now it isn’t working that well, but maybe if I avoid fruit and sugar it will improve things. My gastroenterologist has given me homework fo gather info on the LINX procedure and I am very interested in experiences from people who have had the procedure done and have lived with it for a at least a year.
I had my surgery Dec 4, 2014.
I have Barrett’s Esophagus and wondered if anyone has it that has gone into high dysplasia? I have had two RFA TREATMENTS but they have come back also high dysplasia. I have also had an EMR IN Sept 27 and am suppose to go back for another RFA treatment in December. I wonder if anyone else had had their high dysplasia cured by these endoscopic treatments. I would like to hear from you. How long did it take to get rid of the Barrett’s?
What is a LINX PROCEDURE?
@13440r, , Hi, I listened in on your post. I have severe GERD and now I have a sore throat that won’t go away. I have also had trouble swallowing for about 12 years. Can you tell me what Barrets esophagus feels like?
Foot cramps can come from that? I have foot cramps plus Barrett’s esophagus. Had ulcers colon plus diverticulosis. You name it wwith stomach trouble I’ve had it. Also silent gerd causes me to lose my voice sometimes. I’m at wits end what to do next. I’m gluten and dairy free. Glad you are feeling better
Linda, I had GERD, and was treated at U. Wisconsin Hospital, Madison. They first did a endoscopy and found that I had a 4″ Barrett’s Esophagus segment. There was no high grade dysplasia…. after a couple more endoscopies they found it had gone to High Grade Dysplasia…. which now is headed towards Esophagial Cancer. I was then given RFA (Radio Frequency Ablation) therapy. Barrett’s is where abnormal lining appears (much like in your intestine) to protect the lining from the stomach acid…. this being abnormal can lead to cancer. In RFA, first treatment, they used a 360 degree instrument that burnt off 3 microns of the abnormal lining all the way around… that first is the worse, but tolerable. After it heals they check it again and if needed they use a 90 degree instrument that they can aim at the abnormal lining. I just looked up the LINX procedure they use magnetic beads to help your hiatel valve to open and close. http://www.surgery.usc.edu/uppergi-general/gastroesophagealrefluxdisease-linx-howitworks.html.
Linda, my BE was 4″ long, discovered it during an endoscopy. I have had four RFA treatments…. one 360 Halo and three 90. They wouldn’t start treatments until it went to High Dysplasia. There was some dysplasia found in last endoscopy, so I will have another treatment most likely. This hasn’t surprised me Dr. Gopal said it may take longer due to the length of the segment. The pictures from the last treatment compared to the first ones are remarkably different.
I had high grade dysplasia before I started going to Mayo along with a node that required a mucosal resection. After about 6 RFA treatments every 3 months, Barrett’s was not detected. They moved me out to visiting every 6 months but when I got scoped my last visit Barett’s was back but with no Dysplasia. They moved be back to 3 mo visits and since they found Barretts the last time I am sure I will be having another RFA treatment when I return in December.
You can’t feel Barrett’s Esophagus. I was diagnosed with it in 2008 after an endoscopy. I took Prilosec every day since then and then in June 2016 some changes started happening with cells in the esophagus. It was diagnosed as LowDysplasia then in February it was diagnosed as high dysplasia. I have had two RFA and two EMR and WILL GO BACK FOR A RFA IN Dec. I just wonder if anyone Out there had been cured of the high dysplasia or if it did go into cancer. I wouldLove to Hear from someone about this. Linda
Thank you for the reply and information about Linx. I Don’t know yet what myPrognosis is so am concerned since I do not know what to expect. They found a cancer cell in June in biopsy but nothing showed up in the endoscopy of sept 29. So I guess I wait to see what developes by the next endoscopy in December 6. Has any one had cryotherapy which is a freezing treatment? How does it compare to the RFA? Thanks in advance for any comments.
Where do you Iive and go for treatment? I have been toMD Anderson one time but have had three treatments here in Dallas. With a local GI doctor. I may decide to go back toMD Anderson after this next treatment in December depending on the condition
I have obviously had reflux over the past 20 years but have not had any reflux in the past year that I can recall the 40mg proton I had kept me from having heartburn or reflux where I have the contents come back up my esophagus. So it surprises me that I don’t seem to hVe much symptoms but I still have high dysplasia. I have just wondered if it goes away completely after how many ? treatments.
I appreciate your report. Sounds like yours might be under control. I wonder if I should return to MD ANDERSON instead of going locally in Dallas. Perhaps after the next scope.
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