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Abnormal bloodwork for years
I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has dealt with the same?
I’m 35 female and have had abnormal bloodwork for going on 5 years that none of my doctors can figure out.
My bloodwork abnormalities (recurrent or notable lab abnormalities)
• White Blood Cells (WBC): Elevated (leukocytosis)
• Neutrophils: Elevated (neutrophilia)
• Platelets: Elevated (thrombocytosis)
• C-Reactive Protein (CRP): Severely Elevated
• Erythrocyte Sedimentation Rate (ESR): Severely Elevated
• Ferritin: Elevated
• Iron: Low
• Iron Saturation: Low
• Mean Platelet Volume (MPV): Low
• Alkaline Phosphatase: Elevated
• Immunoglobulin E (IgE): Low
(tests that have been run and ruled out)
• ANA (Antinuclear Antibody): Negative
• JAK2 V617F mutation: Negative
• CALR exon 9 mutation: Negative
• MPL mutation: Negative
• BCR-ABL1 fusion (Philadelphia chromosome): Negative
• Leukemia/Lymphoma Flow Cytometry (Phenotyping): Normal
• Bone Marrow Biopsy: No malignancy detected (advanced cellular aging noted)
• Endoscopy & Colonoscopy: Normal, biopsy confirmed mild inflammation
• Pill Capsule Study: Normal
Diagnoses
Hypermobilility
Undifferentiated Connective Tissue Disorder
Small Fiber Neuropathy
Degenerative Disc Disease
Spinal Stenosis (moderate-severe L5-S1) Bulging Discs (L5-S1)
Fibromyalgia
Chronic Fatigue
Difficulty Standing and Walking
Lumbago with Sciatica
Major Depressive Disorder
Generalized Anxiety Disorder
PTSD
Polycystic Ovarian Syndrome (PCOS)
IBS-Mixed Type
GERD
Insomnia
Nausea & Vomiting
Obesity
Diverticulitis
Psoriasis
Restless Leg Syndrome
TMJ Dysfunction
Chronic Rhinitis
Joint Pain
Scoliosis
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Do you have symptoms?
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1 ReactionWell, goodness, @aliviaghormley, you have a lot going on and I’m sure you’re desperately trying to figure out the underlying cause of all these health issues. It’s not for lack of sleuthing. It sounds like you and your doctors have put a great deal of effort into finding a cause and treatment for you.
You mentioned Mayo Clinic…if you haven’t already requested an appointment, here is a link to get you started. http://mayocl.in/1mtmR63
You don’t need a referral but it can be helpful, especially considering some of your complications. Referrals from your specialists may have an impact.
You mentioned your blood work has been wonky for about 5 years. Do you remember anything that precipitated the change? What were your first symptoms?
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2 ReactionsWhat is your hemoglobin levels
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1 Reaction@loribmt thank you for responding. I should’ve included, I do have a referral placed and my doctor just wrote a letter to the ask for charity care since I am on Colorado Medicaid. I heard from the financial department this does take some time, so I’ll plan to call in about 6 weeks if I haven’t heard anything.
As far as what set it off, I think I had an early case of Covid, in February of 2020. It seems like that was a turning point medically speaking.
Symptoms-
- Fatigue
- Weakness
- hypermobility
- chronic pain
- tinnitus
- blurred vision
- nausea
- vomiting
- diarrhea
- constipation
- GERD
- shortness of breath
- palpitations
- urinary urgency
- urinary incontinence
- paresthesias
- leg weakness
- brain fog
- migraines
Of course with all of my diagnoses it is hard to know what is causing which symptom.
@montauk they are within the normal range.
@shmerdloff yes my symptoms are as follows-
- Fatigue
- Weakness
- hypermobility
- chronic pain
- tinnitus
- blurred vision
- nausea
- vomiting
- diarrhea
- constipation
- GERD
- shortness of breath
- palpitations
- urinary urgency
- urinary incontinence
- paresthesias
- leg weakness
- brain fog
- migraines