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A new diagnosis of Mycobacterium abscessus

Posted by Nancy @nlee1954, May 3 7:33am

I’ve had BE and MAC for 3-4 years. I started on the big 3 last Spring but had to quit because of the terrible side effects.
A couple of weeks ago my sputum grew
Mycobacterium abscessus. I’d like to have anyone here who has been diagnosed with this to share their experience. Thank you!

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louis228 | @louis228 | May 7 8:40am
In reply to @sueinmn "@louis228 Excellent! I find exercise the most important aspect of my airway clearance. But your routine..." + (show)
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@louis228 Excellent! I find exercise the most important aspect of my airway clearance. But your routine puts me to shame!
I stopped antibiotics over 6 years ago when some of my sputum cultures will still positive, relying on airway clearance with saline nebs (at mist daily, occasional now)and I have been MAC-free since 2020.

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@sueinmn I was a federal law enforcement officer for 32 years and I have exercised at least 5 days a week so I never stopped after I retired. I don’t think I know how to stop now. I just back off when my body says enough is enough. I’ve learned to excuse myself when I hit my wall of fatigue and and my family and friends are very understanding.

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