62 yo diagnosed with lumbar spine osteoporosis

Posted by marley169 @marley169, Jun 21 2:27pm

Good afternoon, I am new to this support group and grateful for all the information I have read so far. I need some direction please.

I am a 62-year-old woman who was recently diagnosed with osteoporosis, and I am feeling very anxious about starting medication because I am extremely sensitive to medications and worry about potential side effects. My rheumatologist recommended Reclast but also gave me the option of trying a natural approach for one year, followed by another DEXA scan. If my bone density worsens or does not improve, then we would start medication.
My DEXA results are:
Lumbar spine: BMD 0.740 g/cm², T-score -2.8, Z-score -1.2
Left femoral neck: BMD 0.679 g/cm², T-score -1.5, Z-score -0.3
I have never had a fracture, and my blood work for secondary causes of osteoporosis has been normal. I am struggling with whether I should start treatment now or try diet, exercise, calcium, and vitamin D for a year first.
Has anyone else been in a similar situation, especially if you are very sensitive to medications? If you chose Reclast, what was your experience with side effects? If you tried a natural approach first, did it help stabilize your bone density?
I would be very grateful for any advice or experiences you can share.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for nellybones @nellybones

@hdeff my Dr uses FarmaKeio which is patented bioidentical hormone replacement pellet. My dosage is 3mg Estradiol and 175 mg testosterone. But that base is determined by blood tests and where your levels are currently at. My testosterone level was almost non existent at testing. I will do another test next month and see where I am then.

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@nellybones thanks for the information

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Profile picture for dvargo @dvargo

@nellybones Did your nurse practitioner tell you the meds decrease quality of your bones?

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@dvargo Can you give more information on your thoughts on this? Is this because drugs such as bisphosphonates retain old bone and also slow the growth of new bone?

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Profile picture for daisy17 @daisy17

Reclast is a bisphosphonate medication. After reading about the severe side effects some people have experienced with it, if I were going to take a bisphosphonate, I would take an oral form first and see how I reacted to it. But, in the long rung, studies show that bisphosphonates don't offer much benefit in preventing fractures. They retain old bone and slow growth of new bone, so maybe the BMD you are gaining is not strong? Here are a couple of articles on bisphosphonates that might be of interest to you.
https://www.amjmed.com/article/S0002-9343(24)00101-3/fulltext
https://www.consumerreports.org/cro/2012/04/popular-osteoporosis-drugs-come-with-mounting-concerns/index.htm
Bones change very slowly, so take time to research so you are comfortable with your decision. In the meantime, check out Brick House Bones in Facebook by Dr Lisa Moore, a PT specializing in osteoporosis. She has free exercise videos and information, although drugs are not discussed. The Better Bones website also has great information. Here is one of their articles: https://betterbones.com/bone-drugs/anabolic-treatment/

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Brickhouse Bones is a great source for exercises. She also has guest that address food, medication etc

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Profile picture for bmt5496 @bmt5496

Brickhouse Bones is a great source for exercises. She also has guest that address food, medication etc

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@bmt5496 I so agree. Lisa Moore, DPT is excellent and she has so many free videos. Great recommendation.

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Profile picture for daisy17 @daisy17

@dvargo Can you give more information on your thoughts on this? Is this because drugs such as bisphosphonates retain old bone and also slow the growth of new bone?

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@daisy17 google do bone drugs degrade the quality of your bones.

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Profile picture for njx58 @njx58

I would not choose Reclast as my first option for medication. If you want to build bone density, you need Evenity, Tymlos, or Forteo.

I didn't have a fracture until... well, until I had a fracture. Until that point, I felt fine. Don't go by your history.

Unless the natural approach includes lots of specific weight training, it probably won't help, and your T-score will likely be worse in a year's time. Tymlos and Forteo are probably the meds that are least likely to provoke a reaction, but unfortunately nobody knows until they try. Also, they require daily self-injections for 18-24 months.

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I'm one of those that felt fine at 64 and primary doctor had me as osteopenia. Then I had a spinal fracture just getting out of bed one morning. After X-rays and blood work to rule out bone cancer, I was started on Evenity injections for a year. Btw, my dexa numbers improved after that year. One injection of Prolia followed but because I needed a tooth extraction the second dose was denied. After a lot of anxiety I switched doctors and started on Reclast as an annual infusion. I just received my 3rd round of Reclast and will probably be put on a drug holiday next year.

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Profile picture for dvargo @dvargo

@daisy17 google do bone drugs degrade the quality of your bones.

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@dvargo I did but only found articles about bisphosphonates.

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Profile picture for daisy17 @daisy17

@dvargo I did but only found articles about bisphosphonates.

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@daisy17 FROM AI:Yes, certain bone drugs can degrade bone quality by increasing the presence of microscopic cracks, even as they improve bone density. Research indicates that long-term use of bisphosphonates (such as alendronate and zoledronic acid) suppresses bone turnover to the extent that it leads to the accumulation of microdamage, potentially making bones more fragile and prone to rare atypical fractures despite higher bone mineral density.

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Hello, I have been successful bringing my scores up with natural supplements, HRT, and weightlifting. I started the HRT at 64 after getting a good evaluation from a functional medicine group. I had a T spine of -3.4 now -2.5 After 1 year. Everyone has a different situation so I encourage you to fully educate yourself on all possible options before starting medication. It still might be the better choice for you but it was not for me. Best of luck!

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Profile picture for dvargo @dvargo

@daisy17 FROM AI:Yes, certain bone drugs can degrade bone quality by increasing the presence of microscopic cracks, even as they improve bone density. Research indicates that long-term use of bisphosphonates (such as alendronate and zoledronic acid) suppresses bone turnover to the extent that it leads to the accumulation of microdamage, potentially making bones more fragile and prone to rare atypical fractures despite higher bone mineral density.

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@dvargo Yes, I've read that about bisphosphonates, along with articles saying the drugs may increase BMD but offer minimal protection against fractures. https://www.amjmed.com/article/S0002-9343(24)00101-3/fulltext

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