62 yo diagnosed with lumbar spine osteoporosis

Posted by marley169 @marley169, Jun 21 2:27pm

Good afternoon, I am new to this support group and grateful for all the information I have read so far. I need some direction please.

I am a 62-year-old woman who was recently diagnosed with osteoporosis, and I am feeling very anxious about starting medication because I am extremely sensitive to medications and worry about potential side effects. My rheumatologist recommended Reclast but also gave me the option of trying a natural approach for one year, followed by another DEXA scan. If my bone density worsens or does not improve, then we would start medication.
My DEXA results are:
Lumbar spine: BMD 0.740 g/cm², T-score -2.8, Z-score -1.2
Left femoral neck: BMD 0.679 g/cm², T-score -1.5, Z-score -0.3
I have never had a fracture, and my blood work for secondary causes of osteoporosis has been normal. I am struggling with whether I should start treatment now or try diet, exercise, calcium, and vitamin D for a year first.
Has anyone else been in a similar situation, especially if you are very sensitive to medications? If you chose Reclast, what was your experience with side effects? If you tried a natural approach first, did it help stabilize your bone density?
I would be very grateful for any advice or experiences you can share.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for gravity3 @gravity3

@susyt

Hi,
Can I ask your age? If you've been on mayo connect for awhile you've probably noticed that many women are not offered hormone replacement. Like many I was not successful getting them from any of my docs until I decided on using a functional medicine provider. I started at 77. I went through early nonsurgical menopause at 38.
So glad you are taking bone meds now and if you still want hrt then it is out there depending on your medical history.
Just to be clear, my primary motivation was getting my long list libido back not bone health. But I also knew that the bhrt would be helpful for my bones. Good luck.

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@gravity3 I'm 67. I went through menopause naturally at 49. I have been told it's too late to take HRT because it's more than 10 years past menopause. Good to know you found someone that would do that with you.

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Profile picture for nellybones @nellybones

I am 63 years old. Was diagnosed with osteoporosis in the severe category a year ago. I had my first dexa scan due to hip pain and started bioidentical hormone therapy at that time. I then did walking, some weight-bearing exercise, resistance training and started eating much better, increasing my protein and calcium through food along with supplements of vitamin D3, calcium and a multivitamin with lower amounts of vitamin A. Apparently vitamin A inhibits the absorption of calcium. My nurse practitioner/"bone specialist" recommended tymlos due to how bad my low back is. I was a -5.4 t score in the lumbar spine. I did not start the tymlos but after a year of the hormone therapy and exercise and vitamins, and pushing for another Dexa, I actually had a 17% increase in bone density in that time frame. Which was more than what the average tymlos increase is in a year's time. My nurse practitioner was shocked and didn't even really know what to say other than if he had taken a bet on me he would have lost. I'm still considering doing the tymlos but I'm waiting another 3 months to decide what I want to do because I had such a good increase with the bioidentical hormone therapy and exercise and eating right. My hormone specialist doesn't want me to do the Tymlos. I'm still very bad in the lumbar spine (-4.3) but my hips have almost come back into the osteopenia stage so I feel much better about not doing the tymlos at this time. I just feel like they push meds on you rather than a natural type of healing with your body.

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@nellybones

Hi! May I know what brand of BHRT are you taking right now?
How often to do you exercise?
Thank you

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Profile picture for susyt @susyt

@gravity3 I'm 67. I went through menopause naturally at 49. I have been told it's too late to take HRT because it's more than 10 years past menopause. Good to know you found someone that would do that with you.

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@susyt

Things are changing but I ended up going to functional medicine. Was this just a blanket statement made about the 10 year marker or did she go over your particular medical history and issues in your case that she is directly linkong to the 10 year marker? Also did you go over your list of post menopausal concerns that lead you to consider hrt/bhrt?

There are a few interesting tidbits in this paper:
https://pmc.ncbi.nlm.nih.gov/articles/PMC12565178/

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Profile picture for gravity3 @gravity3

@susyt

Things are changing but I ended up going to functional medicine. Was this just a blanket statement made about the 10 year marker or did she go over your particular medical history and issues in your case that she is directly linkong to the 10 year marker? Also did you go over your list of post menopausal concerns that lead you to consider hrt/bhrt?

There are a few interesting tidbits in this paper:
https://pmc.ncbi.nlm.nih.gov/articles/PMC12565178/

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@gravity3 She just said the blanket "10 years after menopause". This is helpful information, thank you!

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Profile picture for wondering1 @wondering1

@marley169 , I’m also 62 and was diagnosed with osteoporosis about 15 years ago. At the time, they put me on bisphosphenates, a decision I now regret, or at least I regret having gone on them without doing a lot of my own research first. So it’s great that you are asking questions and considering options before making a choice.

Everyone is different. And so is everyone’s health profile. What I would do today if I faced your set of DXA numbers is to first find a doc who is collaborative and open to working through the pros and cons of different approaches with me. Then I’d start with diet (adequate calcium, vitamin D, vitamin K2 and magnesium as much through diet a possible) and exercise ( supervised strength training along the lines of the LIFTMOR study), and I’d look into whether menopausal hormone replacement therapy would be a good fit. (I’m on that now and wish I’d started years ago as my first step.)

I’d try that for a year or two and see what happens before starting meds. If I were still losing bone, then I’d consider meds.

These decisions are best made working with a doc who you trust based on your own specific profile.

There usually isn’t a huge rush to making a decision, so do your research. Lots of good info in this forum. Another good place for info is OsteoBoston’s website. They gather some really good speakers. Dr Keith McCormick’s book Great Bones is a great resource for detailed understanding of osteoporosis.

Good luck and wishing you the best!

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@wondering1 Thank you for your very informative response. I’m doing research and will start PT tomorrow with Cleveland Clinic who work with osteoporosis patients. I will get a routine safe for me to do at home. I will need to work on my diet. I am 62 yo and had thyroid cancer at 42 yo and been on high dose thyroid replacement to prevent any further growth of cancer. This is what I believe is the cause of my osteoporosis. I am small 5’0. Thanks to all who provided me with additional information and websites to reference

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Profile picture for graciah @graciah

@nellybones

Hi! May I know what brand of BHRT are you taking right now?
How often to do you exercise?
Thank you

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@graciah I really don't know the brand of the pellets. They look like little pieces of pencil lead , lol. I will need to ask the brand and what the actual dosage is. They probably told me the first time I went, but have forgotten. I have not increased the dosage since I have started taking it, but have the opportunity if I feel like it may help. We have discussed it the last 2 times I have gone. Mine last right at 12 weeks. One time it was 13 weeks and I could really tell they had run out. But I try to get at least 10k steps 5 days a week. Some days I walk with ankle weights and switch partway thru the walk and put them on my wrists. The tia chi is supposed to be daily and started out at 7 minutes a day, then kept increasing to now it's about 15 minutes daily. I do the Walk Fit ap. I have to say, I am not as consistent in the last month or so because I seems to be outside more with lawn and garden time. It was a lot easier during the winter when I was stuck inside! It has definitely helped my balance. Sometimes I use green resistance bands. I bought the book "Holistic osteoporosis support Bible" by Luca Chambers. It has several exercises in it and you don't need anything special to do them. And I try to do those 3x a week. The book "Mayo Clinic on Osteoporosis" by Ann Kearns also has a lot of good information and several exercises in it. My Dr says less weights and more repetitions is better. I am not good at getting to the gym for actual weight training with machines. I keep saying I need to retire from my paying job, because trying to improve my bones is a full time job too! My motto is just keep moving, anything seems to help

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Profile picture for nellybones @nellybones

I am 63 years old. Was diagnosed with osteoporosis in the severe category a year ago. I had my first dexa scan due to hip pain and started bioidentical hormone therapy at that time. I then did walking, some weight-bearing exercise, resistance training and started eating much better, increasing my protein and calcium through food along with supplements of vitamin D3, calcium and a multivitamin with lower amounts of vitamin A. Apparently vitamin A inhibits the absorption of calcium. My nurse practitioner/"bone specialist" recommended tymlos due to how bad my low back is. I was a -5.4 t score in the lumbar spine. I did not start the tymlos but after a year of the hormone therapy and exercise and vitamins, and pushing for another Dexa, I actually had a 17% increase in bone density in that time frame. Which was more than what the average tymlos increase is in a year's time. My nurse practitioner was shocked and didn't even really know what to say other than if he had taken a bet on me he would have lost. I'm still considering doing the tymlos but I'm waiting another 3 months to decide what I want to do because I had such a good increase with the bioidentical hormone therapy and exercise and eating right. My hormone specialist doesn't want me to do the Tymlos. I'm still very bad in the lumbar spine (-4.3) but my hips have almost come back into the osteopenia stage so I feel much better about not doing the tymlos at this time. I just feel like they push meds on you rather than a natural type of healing with your body.

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@nellybones Did your nurse practitioner tell you the meds decrease quality of your bones?

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Profile picture for nellybones @nellybones

I am 63 years old. Was diagnosed with osteoporosis in the severe category a year ago. I had my first dexa scan due to hip pain and started bioidentical hormone therapy at that time. I then did walking, some weight-bearing exercise, resistance training and started eating much better, increasing my protein and calcium through food along with supplements of vitamin D3, calcium and a multivitamin with lower amounts of vitamin A. Apparently vitamin A inhibits the absorption of calcium. My nurse practitioner/"bone specialist" recommended tymlos due to how bad my low back is. I was a -5.4 t score in the lumbar spine. I did not start the tymlos but after a year of the hormone therapy and exercise and vitamins, and pushing for another Dexa, I actually had a 17% increase in bone density in that time frame. Which was more than what the average tymlos increase is in a year's time. My nurse practitioner was shocked and didn't even really know what to say other than if he had taken a bet on me he would have lost. I'm still considering doing the tymlos but I'm waiting another 3 months to decide what I want to do because I had such a good increase with the bioidentical hormone therapy and exercise and eating right. My hormone specialist doesn't want me to do the Tymlos. I'm still very bad in the lumbar spine (-4.3) but my hips have almost come back into the osteopenia stage so I feel much better about not doing the tymlos at this time. I just feel like they push meds on you rather than a natural type of healing with your body.

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@nellybones I am in a similar situation; 64 with a lumbar T score of -4.6 (with a -5 at L2 and L5!) and hips -2.6. I have been offered and approved for Tymlos by my MD bone specialist and Evenity by a PharmD. I will see an endocrinologist soon. I have never had a fracture, just loss of height and lower back pain. How do gals our age end up with columns of someone much older? I have always been active... I don't really want to start op drugs at 64 since there is longevity in my family - and I don't want to be on op drugs the rest of my life! I fear long term knock-on effects to other organ systems; yes we need our bones for structure and mobility but we need our heart and kidneys to sustain life. Your progress has given me hope that I may be able to do more of a natural path. My op was diagnosed five years ago at the start of covid and my scores haven't changed much since that first DEXA and last years. I did not change my life habits (eating, exercise - 2000 unit of D3 always) between DEXAs (maybe sitting more due to covid and working from home?) but this time I hit -5 on a couple vertebrae so I know I need to be more proactive to build new bone. I have to wait until September to see the endocrinologist. My hope is that she can bring more clarity to my individual case and help me make decisions about drug/no drug, or drug choice. My thyroid/parathyroid levels are fine, have good Ca, etc. - I thought HRT was off the table (14 years post-menopause) but who knows? Meanwhile, I educate myself. Thanks all for your comments on the op threads - even though we all may respond differently it's nice to know outcomes (and severity of side-effects) from first hand users before making our choices. Good luck to all!

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Profile picture for nellybones @nellybones

I am 63 years old. Was diagnosed with osteoporosis in the severe category a year ago. I had my first dexa scan due to hip pain and started bioidentical hormone therapy at that time. I then did walking, some weight-bearing exercise, resistance training and started eating much better, increasing my protein and calcium through food along with supplements of vitamin D3, calcium and a multivitamin with lower amounts of vitamin A. Apparently vitamin A inhibits the absorption of calcium. My nurse practitioner/"bone specialist" recommended tymlos due to how bad my low back is. I was a -5.4 t score in the lumbar spine. I did not start the tymlos but after a year of the hormone therapy and exercise and vitamins, and pushing for another Dexa, I actually had a 17% increase in bone density in that time frame. Which was more than what the average tymlos increase is in a year's time. My nurse practitioner was shocked and didn't even really know what to say other than if he had taken a bet on me he would have lost. I'm still considering doing the tymlos but I'm waiting another 3 months to decide what I want to do because I had such a good increase with the bioidentical hormone therapy and exercise and eating right. My hormone specialist doesn't want me to do the Tymlos. I'm still very bad in the lumbar spine (-4.3) but my hips have almost come back into the osteopenia stage so I feel much better about not doing the tymlos at this time. I just feel like they push meds on you rather than a natural type of healing with your body.

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@nellybones what hrt form and dosage are you on? Those are really great gains!

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Profile picture for hdeff @hdeff

@nellybones what hrt form and dosage are you on? Those are really great gains!

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@hdeff my Dr uses FarmaKeio which is patented bioidentical hormone replacement pellet. My dosage is 3mg Estradiol and 175 mg testosterone. But that base is determined by blood tests and where your levels are currently at. My testosterone level was almost non existent at testing. I will do another test next month and see where I am then.

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