6 sinus surgeries and nothing better

Posted by jvo23 @jvo23, Jun 10, 2019

Has anyone had multiple sinus surgeries to remove polyps with little success? Doctors in Colorado can't seem to find a lasting solution. Been on new medications for eosinophils and this isn't helping either.

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Hi @jvo23 and welcome to Connect.
I'm tagging a few other members who have mentioned sinus surgeries and polyps. Please meet @huronshores @auntnanny @flott118 @samy @pfists and @danielad who may have experiences to share with you.

In the meantime Jvo23, can you tell us a bit more about yourself? Have the surgeries been unsuccessful at removing the polyps or have there been other complications? Do you have ongoing infections or allergic reactions that are leading to the high levels of eosinophils? Can you give us more info about your situation?

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polyps cant be avoided unfortunately need to use sinus washes and or nasal steroid to keep the nose mobbing and get screened from allergies

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colleen young…….. I probably have no information that would help anyone but Mayo's found I had a "ball" of fungus in right sinus. They assured me everyone has fungus in their sinus but that they needed to get the ball out so they could wash out behind it. When they cultured the infection, it was pseudomonas and they had Mayo Pharmacy mix up a special nasal rinse that I did for 10 days after the surgery. I have noticed no change in anything but I assume they needed to rid me of the fungus ball.

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the only other issue with sinuses could also be post nasal drip interms of polyps only scraping them out will fix

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@auntnanny

colleen young…….. I probably have no information that would help anyone but Mayo's found I had a "ball" of fungus in right sinus. They assured me everyone has fungus in their sinus but that they needed to get the ball out so they could wash out behind it. When they cultured the infection, it was pseudomonas and they had Mayo Pharmacy mix up a special nasal rinse that I did for 10 days after the surgery. I have noticed no change in anything but I assume they needed to rid me of the fungus ball.

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pseudomonas is a very nasty bacteria to be carrying around slows down wound healing and can lead to massive wound infections and also wounds wont heal

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See online https//drsummitshah.com/the role of platelets in allergic reactions. Studies such as this back up my feeling, that high platelets may result (at least in part) from inflammation of sinuses, polyps, asthma and allergies. I have had 2 sinus surgeries in past 12 years to remove polyps. I was warned it is not a cure but does help for awhile. The Hematologist does not think it has any connection but I continue to research and there are several articles that point to it. I am not happy taking Hydroxyurea for a year, as I can see it starting to affect my fingernails, weak leg muscles, makes asthma worse and fatigue etc. I was a reasonably healthy, active 78 year old prior to this. I know the Hematologist is trying to help me by medicating with Hydroxyurea but it seems to be bringing me down in other ways. I continue to live as usual, stay active and eat healthy and have thought about going off Hydroxyurea and take my chances. These are my own thoughts and I put forth the above info, which may or may not help someone else.

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@sirgalahad

polyps cant be avoided unfortunately need to use sinus washes and or nasal steroid to keep the nose mobbing and get screened from allergies

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I have been struggling with this for 10 years. Sinus washes don't work because of all the swelling (water gets trapped) and topical steroids have never worked.

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@huronshores

See online https//drsummitshah.com/the role of platelets in allergic reactions. Studies such as this back up my feeling, that high platelets may result (at least in part) from inflammation of sinuses, polyps, asthma and allergies. I have had 2 sinus surgeries in past 12 years to remove polyps. I was warned it is not a cure but does help for awhile. The Hematologist does not think it has any connection but I continue to research and there are several articles that point to it. I am not happy taking Hydroxyurea for a year, as I can see it starting to affect my fingernails, weak leg muscles, makes asthma worse and fatigue etc. I was a reasonably healthy, active 78 year old prior to this. I know the Hematologist is trying to help me by medicating with Hydroxyurea but it seems to be bringing me down in other ways. I continue to live as usual, stay active and eat healthy and have thought about going off Hydroxyurea and take my chances. These are my own thoughts and I put forth the above info, which may or may not help someone else.

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I'm sorry to hear about your struggles.

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@colleenyoung

Hi @jvo23 and welcome to Connect.
I'm tagging a few other members who have mentioned sinus surgeries and polyps. Please meet @huronshores @auntnanny @flott118 @samy @pfists and @danielad who may have experiences to share with you.

In the meantime Jvo23, can you tell us a bit more about yourself? Have the surgeries been unsuccessful at removing the polyps or have there been other complications? Do you have ongoing infections or allergic reactions that are leading to the high levels of eosinophils? Can you give us more info about your situation?

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I am 47. This all started 12 years ago when I was pregnant with my second son. Never had sinus problems or asthma before then. The doctor's have me on a medicine called Cinquar (like Nucala) for eosinophilic disorder. It helps with asthma a bit but not with sinuses. Haven't had a sense of smell in years! Oral steroids are the only thing that gets the swelling down, but it is short lived. Sinus surgeries only help for a little while.

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One other thing to mention regarding allergies, asthma, sinus nasal polyps. Allergist in past 6 years has helped with this quite a bit. He felt I was too old to start allergy shots again (have had in past but no great improvements). So he knew of something called Samter’s eTriad, which is when someone has all three things mentioned above. Indications are that the person may be allergic to salicylates (which are found naturally in many foods, fruits, vegetables etc). So he started me on very low dose aspirin and has built up to a 325 aspirin per day. This is a desensitization process to improve the Salicylate allergy. I have to say that this has helped a lot, not a complete cure all, as of course you may be allergic to other things too. It has seemed to keep things in check. Hope this might help someone else too. I take the coated aspirin to try to avoid other problems.

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