Going to Mayo Rochester soon for aneurysm: Seeking tips

Posted by elainerb @elainerb, Aug 26 3:03pm

Hello all, I’m a new patient at the Rochester location. I’ll be traveling from St. Louis, MO.

I have a 6.3 mm post communicating artery bilobed with daughter sacs (3.8 and 3.2 mm) brain aneurysm. And family history of brain aneurysm and stroke.

I have also had a right basal ganglia stroke.

I called Mayo Clinic Rochester, MN and I was immediately directed to neurosurgery and I was given an appointment in less than a week. I was told this is serious and I need to be seen ASAP.

I’ve already got the diagnosis and I’ve had a 3D cerebral angiogram with contrast, CT with contrast, and an MRI w/w/o contrast.

Could anyone tell me what to expect at my initial appointment?
I have medical trauma PTSD (13 years of surgeries) and I am anxious and worried about getting up there and having to have surgery.
Would they schedule that while I am there?
Should I plan on being in Rochester for a week?
Thank you all so much for reading all this.

Interested in more discussions like this? Go to the Visiting Mayo Clinic Support Group.

Profile picture for elainerb @elainerb

@winterfox Hello, I would love to talk! I’ve been struggling with depression following this surgery.
I also have Thoracic Outlet syndrome and the arm that was used for my surgery has been through multiple traumas, so I think the recovery is taking longer.
I have Complex Regional Pain Syndrome too and it is making recovery difficult.
I’m just feeling very frustrated.
I used to be a Fine Art and Design professor - before all this - so I’ve been doing Art Therapy myself and it really helps.
I also see a pain psychologist regularly.
How has your life been effected? You can message me too!
Thank you for reaching out.

Jump to this post

@elainerb
Please text me. I will help out with what I can

REPLY

Do you have a phone that can and receive text msgs?

REPLY
Please sign in or register to post a reply.