5 CRP tests resulting as High, but no Dx!

Did they repeat the lupus test ? I am sorry you are going through this. I have had 2 bouts of uveitis this year. With the second diagnosis my eye doctor referred me to a rheumatologist as it can have an autoimmune cause. Except for the elevated CRP all my tests were negative. Since I have psoriasis the rheumatologist said she thinks there could still be an autoimmune component. Who knows ??

I had a neurologist at UPenn years ago, and when labs were done my CRP was 4x what norm was supposed to be, so I asked him what that meant.
His reply to me was “you don’t appear to be that ill”

To "walk4life" and "harley22",
I GET IT, believe me, I DO!!
"Who knows??" is right!
I really do understand how very frustrating the Drs responses, or lack of responses, can be. I told a friend that I am exhausted with being my own advocate because I am not being HEARD!
P

With high CRP and positive ANA, I would push you PC harder to investigate. It might be something that could be helped by timely diagnosis. I've been there before and I'm going through it again I have high CRP and other blood abnormalities and have nearly died twice in the last month. I'm pushing hard to find out why my iron is so low that I need infusions. Don't give up.. you are your best expert and advocate for your own health.

Thank you and I am so sorry for all that you are going through, and have gone through. Can I ask for your first name or initial to add you to my prayers?
P

It is so frustrating when you know something is wrong and the doctors are no help. I wonder why they spent all that time in medical school! My health issues may be minor, but i know there is something wrong with my body. I am going to ask for a cortisol test when i see the rheumatoid in two weeks.

I know it’s very frustrating.
Been thru so much testing and prodding over the years with no help from any of 6 neurologists I went to.
All I was told is that I’m very unique and sorry we can’t help you!
Going to start a new infusion this month called Retuximab, for many things including CIDP.
It’s a monoclonal antibody.
IVIG infusions did not work for me in the past.

I thought Mayo IS supposed to be a major medical center? Isn't that why we are here? Its crazy in my book to feel you've gotten rotten care on their own forum without them contacting you even from this post. Just to protect their own reputation. I wish big medical orgs cared more. Sometimes is you find a small practice nearby, well, a big fish in a small pond? I need to look up CRP. My body is so inflamed. Constant pain and IBS too. Manage your expectations? Like stop asking me to care? Annoying and esp disheartening to have this be Mayo itself as many across the country see them as a big medical system. Like Duke and Mayo should kind if be equal? Disheartening. I need to write a book about bad care too. Keep talking.

I totally agree, I’m hoping someday I’ll stumble upon my Dr. House, and he’ll figure out what’s wrong with me before I die.

@pkh3381, clearly the diarrhea is negatively affecting your quality of life. It sounds like you've taken all the right steps to make this clear during your consultations and need this serious symptom to be addressed.

You may wish to speak with some at Mayo's Office of Patient Experience. You can call them at 844-544-0036
If you prefer written communication, you can use the online form provided on the webpage here: https://www.mayoclinic.org/about-mayo-clinic/patient-experience
A specialist at the Office of Patient Experience can facilitate communication between you and your GI specialist to help find a solution.

As @bebold rightly said, Mayo Clinic is a major medical center. I'm glad that you are already a patient at Mayo Clinic and can benefit from their team approach.