4 week post Mitral report with 2 odd unpleasant effects:

Posted by Paul @phoenixpal, Dec 23, 2023

Merry Christmas everyone,

It’s been 4 weeks since my MV replacement (bovine). At 74ml regurgitation I was in the “severe” range. I’ve now had my followup with both the Mayo surgical team and the cardiologist. All agree that my progress is very good and right on track. I myself could tell right away, that I no longer get light headed when I stand up from sitting.

Quickly about me: I’m a young 70 yr old. I’ve worked cardio and strength since college, getting up early before work to run or swim. Now I also bike and do my age in burpees. I’m 6’ and 165lbs (22BMI). “He’s got abs” I’m told one nurse reported to the other lol.

All my pre-surgery reading led me to believe that recovery for me from a Minimally Invasive MV replacement would be a walk in the park. NOT SO, let me warn you! First of all, after my 5 night hospital stay (mostly waiting for arrhythmia to go away), I had to go back the next week for another surgery and 4 more nights so they could punch a couple more holes for drainage tubes for heart and lung “sacs” fluid buildup.

Apart from that, let me list for you the woes that the doctors say are normal:
1) For about 10 days after surgery, the worst pain was the muscle knot between my shoulder blades. Didn’t read about that! Had to take both narcotic pain meds and muscle relaxant just for that! Otherwise, no real actual surgical pain, even now that I’m off Tylenol.
2) Bronchial irritation is still causing some serious coughing.
3) My resting heart rate has now gone from mid 50s to mid 90s! This, I’ve now read can last a year or more and may never come down much, and is apparently “normal”.

A couple of positive effects: A very robust appetite. Suddenly I’m eating breakfast, and the protein shake for lunch no longer satisfies. And, I’m HAPPY all the time! No more occasional withdrawn moodiness. Cardiologist says this may be due to the increased blood flow to the brain.

But, here are the 2 odd effects that are the most annoying and which neither the surgical team not the cardiologist can explain: (BTW I’m off all my post surgery meds except for inflammation reducing Cochicine 1x/day, and Warfarin.

1) I now have to urinate every 60-90 minutes day and night. This makes for a very poor night’s sleep. Since the doctors have no answer, my wife and I are theorizing that after being catheterized twice in 10 days, I may have an angry prostate….(?)
2) But, THIS is the worst: Almost every day I have a horrible bout of dizziness and nausea. It lasts about 10 minutes. Last night it happened while I was standing, and I could barely make it to the chair as I listed sideways. It comes with a big body temp hot flash. Sometimes I can feel it low grade in the background. I AM staying hydrated.

Finally, there is this: Due to the festive holidays and to compensate for the recovery malaise , I have gone back to eating sugar (Christmas baking etc) and drinking a couple drinks in the evening. And since I’m not yet back to working out, (just a few half hours on my bike on a stand in the living room, but really not motivated) maybe all this new sugar/alcohol is doing a number on my system?

One indication of the body working hard to heal is that despite all this, I haven’t put on a single pound which would normally NOT be the case with this holiday lifestyle!

Very curious if anyone else has experienced the excessive peeing or dizziness.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

I can't even imagine the nightmare of what you are going through and admire your candor in what you reported here. However one of your closing comments referenced sugar and alcohol. I can't comment on the sugar; however even after my first cardioversion I was told no more alcohol, caffeine and chocolate for 30 days at a minimum. (So they can check you again at that point. ) The irony is that's what numbers of articles tell people is good for you heart. I gave it all up "cold turkey" ... not easy on several dimensions and I was never an abuser of the three. (Diet Coke was the most challenging ( McDonald's stock dropped when I quit that...) I stayed with that advice -- ditto even more challenging. It's an education in fact.

My preferred provider who has a specialty in cardio and is a practical guy and said "you have to live" and once in a while in limited amounts would be OK to try. I finally did with a small amount of wine at dinner (and I have a certificate from the CA Wine Advisory Board so that was a moment of freedom) . However, the result was shocking per the the negative degree of impact. If there ever was a "never again" that was it. Keep in mind the RX you likely are taking (I take several) --- may well have different degrees of tolerance, especially alcohol ... just a thought.

REPLY
@joaf37

I can't even imagine the nightmare of what you are going through and admire your candor in what you reported here. However one of your closing comments referenced sugar and alcohol. I can't comment on the sugar; however even after my first cardioversion I was told no more alcohol, caffeine and chocolate for 30 days at a minimum. (So they can check you again at that point. ) The irony is that's what numbers of articles tell people is good for you heart. I gave it all up "cold turkey" ... not easy on several dimensions and I was never an abuser of the three. (Diet Coke was the most challenging ( McDonald's stock dropped when I quit that...) I stayed with that advice -- ditto even more challenging. It's an education in fact.

My preferred provider who has a specialty in cardio and is a practical guy and said "you have to live" and once in a while in limited amounts would be OK to try. I finally did with a small amount of wine at dinner (and I have a certificate from the CA Wine Advisory Board so that was a moment of freedom) . However, the result was shocking per the the negative degree of impact. If there ever was a "never again" that was it. Keep in mind the RX you likely are taking (I take several) --- may well have different degrees of tolerance, especially alcohol ... just a thought.

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Thanks so much for your reply @joaf37. Funny, they were serving me coffee in the hospital right after surgery, with the cardio nurses bringing me the "better brew" from their break room!
Between alcohol and sugar, sugar was by far the hardest thing I've ever given up, taking 7-8 weeks to get over the cravings, and begin experiencing the "clear headedness" that is the result, (esp situational awareness while driving).

Alcohol has never been hard since I gave up 90% of my previous daily drinking. I've been experimenting to see a correlation between an occasional drink now at 1mo since surgery. The only correlation I've found, is that when I am having the vertigo in the evening (most of the time), I have no desire to have an alcoholic drink.

Meanwhile, after seeing my Primary Care yesterday, at her suggestion, I've asked Mayo for an appointment with their "Vestibular Therapy" unit (exercises for the inner ear).

And then there's this: I found this link with almost 300 replies of people having this same vertigo after heart surgery. And, universally..., none of their cardiologist and surgeons had heard of it or thought it was related to the surgery!

https://www.heart-valve-surgery.com/heart-surgery-blog/2009/06/22/vertigo-vision-problems-headaches/
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