Hi George I pulled it up I have not read the documents yet but I can see some things that I know will help me after I read the entire brochure. Yes if I find something that’s great I will pass it onto you and thank you so much for being so sweet and sending me this. Have a sweet day

@ms9246 You're very welcome. I will be curious to hear from you what sounds like ideas you can put in to use, what recipes you find are on top of your list to try! Let me know what you find, will you?
Ginger

I am not happy either. There were a lot of things I could have done to "slow" down the progression if I had known it was serious. Zuccaro

My numbers took a dive when I lost a lot of weight, so be careful. Plenty of advice online regarding recipes and diet tips. Go plant based. That is a winner with nutrition and blood work. Learn to love fresh food. Eat a little at a time all day long. Food is medicine. And get to walking. Don't starve yourself. Stress is a killer.

I have similiar issues, but losing protein in my urine, which isn't good. The ACE is greatly helping that so far but wondering for how long. I was lifiting weights and being pretty active. Now Im scared to lift. This was after starving myself, but not know I had CKD. SMH.

I just read that (2017) …funny how they wanted to experiment with the COVID vac, but probably have to wait 100 years to try this out on humans.

probably the key factor. I suspect that I did not advance due to my eating habits. Mostly vegan. If someone would have told me sooner that I had CKD I would have stopped other things too. LIKE Salt.

my salt tolerance is way lower than 3000…

If you have protein in your urine, it is for sure CKD. Otherwise, dr. might have said your numbers were normal based on your age.

@czsalt64, I think you are referring to an old, old post of mine. I got shingles in late 2019 and tanked my kidney function to an eGFR of 8 – went into end stage kidney failure! – and had to go on dialysis in Aug of 2020. Made/still making a very slow recovery from the shingles damage and was able to stop dialysis in Dec of 2020. Now, in 2021, eGFR up to 19 and still improving, BUN and creatinine slowly coming back down. I feel much better, too. Part of the reason I'm alive today is a great primary doc and a great neprologist but another reason is my almost-vegan, ovovegetarian renal diet. The latest recommendation for sodium intake is 1.5 grams or 1500 mg daily but some specialists are saying it should even be reduced further. I happen to get severe cramps if I take in much less than 1500 mg and my potassium is below what it should be. 80 mg of furosemide daily is partly responsible for the salt cramps and potassium cramps and neph has said I can slightly increase the potassium. She did NOT tell me to increase my sodium but I have done that anyway, though very slightly, and no longer have the cramping. I certainly do not recommend increased or decreased sodium or potassium to others, just saying what is working for me.

So glad you found us! Lots of good people here and lots of good info. Don't hesitate to reach out. Welcome!

Holy COW!! that is awesome!! When I read these amazing stories, like the one you just told I am just in awe. My mom fought a rare stomach cancer for three years and she should have been dead in 3 months, so I know that with determination and hope, all is possible. Thanks for the diet advice. I am spilling protein, so even though I do not have high BP I was put on an ACE and that seems to be holding it back for now, but I am really paying attention to diet too. I plan to talk to a renal dietian in a couple of days, so I am curious to know what they will say, and I hope the hell they look over my blood work before the appointment.

@czsalt64 The 3000 mg sodium limit is the old (2018) recommendation for Stage Three CKD. The latest I have heard (as of August 2021) is 1500 mg or less for Stage Four CKD patients. Some kidney websites quote different amounts but what works for me personally is between 1500 and 2000 mg Na daily (including what occurs naturally in whole foods as well as – carefully used – processed foods.) If I am especially active and weather is hot, causing increased sodium loss through perspiration, I can tolerate the higher value. In such a case of perspiration loss of Na, the kidney is not called upon to excrete that which is lost through perspiration, therefore I am comfortable with a slight increase. However, I do not personally recommend ANY values, I merely share what my research shows the experts are saying and I share my own personal experience. Oh, please forgive me for a terrible pun, LOL, but we should take everything with a grain of salt. (Sorry, couldn't help myself.)