Stage 3 Kidney Disease and Diet: What can I eat?

Posted by carnes @carnes, Jun 11, 2018

It seems there is very little you can eat that is healthy for the Kidneys. The web site Davida has plenty of food on it but contradicts what other sources say. Anyone know anything for breakfast, lunch and dinner that does not have any sugar or flour bodies the obvious boring or bland foods good for Kidneys and I’m allergic to sugar of any kind of sweetener and flour. Thank you.

@contentandwell

@kamama94 Can this be published commercially at some point? Your efforts have been enormous, if you could get some payment for them it would be great, you deserve some compensation.
As I always told my kids, if you find something you love to do you will never “work” a day in your life, and your enjoyment for what you are doing shows.
Having restrictions because I am post-transplant has similarities to what you say about some foods really not being a problem unless, and that’s a big unless, you overdo it, but it is easier to just prohibit those things than to say in limited amounts. Even the prohibition on alcohol is not really necessary from what I have read, it does not affect the immunosuppressants, but alcohol is not good for anyone’s liver so it is prohibited. I abide by what I am told of course. I am just grateful to be alive so I will do as I’m told.
JK

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@contentandwell
Eat candy JK, it’ll fix you right up and prevent you from getting broken.
Jake

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@jakedduck1

@contentandwell
Eat candy JK, it’ll fix you right up and prevent you from getting broken.
Jake

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@jakedduck1 I eat DARK chocolate every day. They say red wine and dark chocolate are both good for your heart. Since I am prohibited from drinking alcohol due to being post liver-transplant I feel that I MUST do what’s right and eat dark chocolate. 😉. It’s a struggle but I do it in the name of better health.
Some days my heart feels like it needs what is probably too much. Thankfully dark chocolate is not high in carbs. Milk chocolate would probably be better for my bones but I’m not a fan.
JK

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@contentandwell

@kamama94 Can this be published commercially at some point? Your efforts have been enormous, if you could get some payment for them it would be great, you deserve some compensation.
As I always told my kids, if you find something you love to do you will never “work” a day in your life, and your enjoyment for what you are doing shows.
Having restrictions because I am post-transplant has similarities to what you say about some foods really not being a problem unless, and that’s a big unless, you overdo it, but it is easier to just prohibit those things than to say in limited amounts. Even the prohibition on alcohol is not really necessary from what I have read, it does not affect the immunosuppressants, but alcohol is not good for anyone’s liver so it is prohibited. I abide by what I am told of course. I am just grateful to be alive so I will do as I’m told.
JK

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@contentandwell, I already have been compensated – eGFR up to 35 from 24, BUN & Cr decreasing, A1C normal, etc., etc. Just the idea that someone might possibly benefit from something I've found out makes me giddy with joy. No money could touch that. Besides, I make a teeny bit with my fiction novels, although a world where you pay for entertainment OR for health care puzzles me some. JMHO. Peace and blessings to you and everyone.

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@gingerw

@teachaero Checking in with you to find out how your nephrology appointment went? Were you able to get any answers to your concerns for being a Stage 3 kidney disease patient? I was impressed to read you are teaching spin classes, which takes a lot of stamina! How have you changed your lifestyle since we last heard from you?
Ginger

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Thanks for asking! The nephrologist doesn’t think I have ckd. She ordered more tests to check. I’m getting a second opinion with another nephrologist in October, though. I think my levels run borderline, and with my family health history I want to be proactive. I’ve been staying away from meat and most dairy, and watching my blood pressure.

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@teachaero

Thanks for asking! The nephrologist doesn’t think I have ckd. She ordered more tests to check. I’m getting a second opinion with another nephrologist in October, though. I think my levels run borderline, and with my family health history I want to be proactive. I’ve been staying away from meat and most dairy, and watching my blood pressure.

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@teachaero Being proactive and staying on top of health concerns and potential issues, is so important. And I find it makes me really feel like I am part of the decision making! Good for you for getting a second opinion if you are not ready to accept the first dr's thoughts; absolutely nothing wrong with that! Maintaining a good blood pressure is so critical, and is the number one cause of chronic kidney disease. The added benefit is you just feel better, watching your diet and lifestyle, isn't it? I hope you will come back and let us know what the second dr says!
Ginger

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Hi, I am new and very scared. I was diagnosed borderline four months ago. My GFR,sorry I don't know all these terms yet., was 56. I was referred to a Kidney Dr. two months ago when it dropped to 47. I read the reviews for that Dr. And so many bad reviews. I was just referred to a good Kidney Dr. that has very good
reviews and will see him Oct. 22. Since then my GFR has dropped to 35 and that was a month ago. Finally was sent to a dietician who gave me a diet but not for kidneys. I have been living on a veggie stew with meat broth and have lost 60 lbs. But loosing way too fast. Gave up all salt and goodies. I am completely lost on the making of meals. I try to read what to eat but I get all mixed up. I am almost 75. I just need to find a few recipes for the three meals a day. My oven went out so no baking. My Kidney Dr., I already found out does not have a dietician. What can I do? I love reading all the positive things you
wonderful ladies say..I also am on a very bad medication for Arthritis and was taken off cold turkey
but couldn't hardly get around without it. So was put back on it until I see the kidney dr. I'm sorry I'm such a novice at this and so scared.

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@jeanice

Hi, I am new and very scared. I was diagnosed borderline four months ago. My GFR,sorry I don't know all these terms yet., was 56. I was referred to a Kidney Dr. two months ago when it dropped to 47. I read the reviews for that Dr. And so many bad reviews. I was just referred to a good Kidney Dr. that has very good
reviews and will see him Oct. 22. Since then my GFR has dropped to 35 and that was a month ago. Finally was sent to a dietician who gave me a diet but not for kidneys. I have been living on a veggie stew with meat broth and have lost 60 lbs. But loosing way too fast. Gave up all salt and goodies. I am completely lost on the making of meals. I try to read what to eat but I get all mixed up. I am almost 75. I just need to find a few recipes for the three meals a day. My oven went out so no baking. My Kidney Dr., I already found out does not have a dietician. What can I do? I love reading all the positive things you
wonderful ladies say..I also am on a very bad medication for Arthritis and was taken off cold turkey
but couldn't hardly get around without it. So was put back on it until I see the kidney dr. I'm sorry I'm such a novice at this and so scared.

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Welcome @jeanice. Diets and lab values and numbers can all be confusing. And diets can be different for different kidney patients, depending on the stage they're in. Let me know when you're ready and I'll send you some of my kidney recipes. Meanwhile, there's good information in this thrad and on certain websites. Here's one: https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/kidney-friendly-diet-for-ckd.html. Another one which i used not to care for but has been udated anad upgraded is: https://www.davita.com/diet-nutrition/articles/advice/top-15-healthy-foods-for-people-with-kidney-disease. And here's another one:https://www.niddk.nih.gov/health-information/kidney-disease/chronic-kidney-disease-ckd/eating-nutrition.

By all means see another doctor and seek a second or even a third or fourth opinion. You don't say how old you are but it's normal for eGFR to drop as we age and below 60 is early stage of kidney impairment but people live comfortably with much lower values and even can postpone dialysis by following a renal diet.

I'm not a doctor but I will share what my docs and I did to slow down my renal disease progression. They monitor my blood values and I have a thorough checkup about every three months. We've made a plan for if and when I might need dialysis. I see a nephrologist as well as highly-informed primary physician. My neph suggested I consider a vegetarian diet and avoid meat to take the strain of my partial remaining kidney (the other one has shriveled) and I have found that a vegetarian diabetic diet can be tasty, filling, and fairly easy to follow. Kidney patients need to limit sodium (salt,) phosphorus, and potassium as our kidneys become less efficient at filtering them out.

A renal diet for someone with an eGFR in the 40s is less strict than a diet for someone in, say, Stage Four.

Also lab values can vary from time to time so a drop from 56 to 47 may worry you but may not require immediate action unless further lab results show a pattern and it stays in the 40s or drops further.

You sound like you're being proactive and that's a plus. Take advantage of several oopinions, ask for a referral to a renal dietitian who specializes in kidney diets and if there isn't one in your area there are professionals who can help you online.

Hang in there. We're a grooup of caring people at various stages of kidney impairment and we support each other with encouragement and information. I'm so glad you found us!

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@kamama94

Welcome @jeanice. Diets and lab values and numbers can all be confusing. And diets can be different for different kidney patients, depending on the stage they're in. Let me know when you're ready and I'll send you some of my kidney recipes. Meanwhile, there's good information in this thrad and on certain websites. Here's one: https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/kidney-friendly-diet-for-ckd.html. Another one which i used not to care for but has been udated anad upgraded is: https://www.davita.com/diet-nutrition/articles/advice/top-15-healthy-foods-for-people-with-kidney-disease. And here's another one:https://www.niddk.nih.gov/health-information/kidney-disease/chronic-kidney-disease-ckd/eating-nutrition.

By all means see another doctor and seek a second or even a third or fourth opinion. You don't say how old you are but it's normal for eGFR to drop as we age and below 60 is early stage of kidney impairment but people live comfortably with much lower values and even can postpone dialysis by following a renal diet.

I'm not a doctor but I will share what my docs and I did to slow down my renal disease progression. They monitor my blood values and I have a thorough checkup about every three months. We've made a plan for if and when I might need dialysis. I see a nephrologist as well as highly-informed primary physician. My neph suggested I consider a vegetarian diet and avoid meat to take the strain of my partial remaining kidney (the other one has shriveled) and I have found that a vegetarian diabetic diet can be tasty, filling, and fairly easy to follow. Kidney patients need to limit sodium (salt,) phosphorus, and potassium as our kidneys become less efficient at filtering them out.

A renal diet for someone with an eGFR in the 40s is less strict than a diet for someone in, say, Stage Four.

Also lab values can vary from time to time so a drop from 56 to 47 may worry you but may not require immediate action unless further lab results show a pattern and it stays in the 40s or drops further.

You sound like you're being proactive and that's a plus. Take advantage of several oopinions, ask for a referral to a renal dietitian who specializes in kidney diets and if there isn't one in your area there are professionals who can help you online.

Hang in there. We're a grooup of caring people at various stages of kidney impairment and we support each other with encouragement and information. I'm so glad you found us!

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Hi. Thank you for getting back to me. My GRF was 56 three months ago, two months ago it was 47 and four weeks ago it went down to 37. I have no idea what it is now as I will see the Kidney Dr. Oct. 22. And guess he will do blood work to see where I am. I would love s

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Sorry! I would love some easy recipes please. I have a very tight income and my oven just died. So if you have something I can make in microwave or refrigerate I would appreciate it so much. You are such wonderful and brave ladies. I li ve in a tiny town in the mountains and it's a 100 mile trip to Drs.which I can't drive. We don't have much up here. Looking forward to eating some safe food. Losing 60 lbs.
because of being afraid of eating I know is not good. Thank you very much.

Liked by kamama94

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By the way I'll be 75 soon!

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@jeanice

Hi, I am new and very scared. I was diagnosed borderline four months ago. My GFR,sorry I don't know all these terms yet., was 56. I was referred to a Kidney Dr. two months ago when it dropped to 47. I read the reviews for that Dr. And so many bad reviews. I was just referred to a good Kidney Dr. that has very good
reviews and will see him Oct. 22. Since then my GFR has dropped to 35 and that was a month ago. Finally was sent to a dietician who gave me a diet but not for kidneys. I have been living on a veggie stew with meat broth and have lost 60 lbs. But loosing way too fast. Gave up all salt and goodies. I am completely lost on the making of meals. I try to read what to eat but I get all mixed up. I am almost 75. I just need to find a few recipes for the three meals a day. My oven went out so no baking. My Kidney Dr., I already found out does not have a dietician. What can I do? I love reading all the positive things you
wonderful ladies say..I also am on a very bad medication for Arthritis and was taken off cold turkey
but couldn't hardly get around without it. So was put back on it until I see the kidney dr. I'm sorry I'm such a novice at this and so scared.

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@jeanice Welcome to Mayo Connect. We're glad you found us, and you will find out that we are a pretty diverse group of people. It's pretty scary to have a new condition to worry about, isn't it? Thank you for looking into our community here, and asking for help! I hope the experiences we share with you will help ease your mind.

I was diagnosed over 10 years ago with kidney disease, but didn't really do anything in my diet to help it out. It wasn't until 2015 when a new and unusual condition was discovered, that I paid attention to it. Since then, my GFR runs in the low 30s, thanks to diet and lifestyle changes.

These two site may be of use to you to look at, and help you https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521 and http://www.rsnhope.org Both have a lot of information.

As @kamama94 mentioned, there can be a range of lab results. One thing that was pointed out to me early, was the fact there can be a variety of lab results based on the laboratory that processes the tests, the different machines used, the time of day and even your hydration levels. Doctors will look for trends over time.

I hope this helps you out, and that you will continue to ask questions as they come to you!
Ginger

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@jeanice

Sorry! I would love some easy recipes please. I have a very tight income and my oven just died. So if you have something I can make in microwave or refrigerate I would appreciate it so much. You are such wonderful and brave ladies. I li ve in a tiny town in the mountains and it's a 100 mile trip to Drs.which I can't drive. We don't have much up here. Looking forward to eating some safe food. Losing 60 lbs.
because of being afraid of eating I know is not good. Thank you very much.

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@jeanice, I understand about the oven. A lot of my meals are microwaved so I hope this helps.

Shared files

DIABETIC AND RENAL FRIENDLY VEGAN AND NATIVE AMERICAN RECIPES - Copy - Copy (DIABETIC-AND-RENAL-FRIENDLY-VEGAN-AND-NATIVE-AMERICAN-RECIPES-Copy-Copy.pdf)

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@jeanice And some kidney-friendly snacks. I'm currently working on a list of portion-controlled servings of foods normally limited for renal patients. I'll post it when finished.

Shared files

Safe Vegan Snacks - Copy (Safe-Vegan-Snacks-Copy.pdf)

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@jeanice I just turned 74. We're about the same age. :0)

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