3C ovarian cancer: tumor markers gradually rising, what's next?

@cookercooker feeling better than with other chemo actually. Still have the taste buds that disappear for about 3 or 4 days. Bone pain isn't so bad, as of yet, but I've only had 2 treatments. Have mouthsores for few days also. Doxorubicins side effect isn't neuropathy and it's getting better in my feet. I was having regular echocardiograms because of the Herceptin and Enhertu so that stays same. Last one in June was fantastic my cardiologist said. I don't smoke or drink so that's a plus for me. I wanted to mention too that there is a group on Facebook for Endometrial cancer patients as well as ovarian and other cancers. I am a member of 3 with 2 being private and 1 public cancer so male and female are members of that one. You can find some great information from others who have gone through or are going through the same thing. It's a great support system. I'm just on pins and needles with anxiety knowing I'm having my CA125 done in a couple weeks and so praying it's going in the right direction. I'll keep trying chemo treatments and eventually trials if I must until we find something that works. Cancer research is continously progressing and soon it will become a medical condition that's not curable but treatable much like AIDS is today. Stage 3 and 4 cancers are already incurable, most anyway, and just treatable to stop progression. Even in remission there's the possibility it will return. Facebook group is full of people who have been cancer free for 10 and even 20 years and that always gives one hope. 🧡

@cookercooker feeling better than with other chemo actually. Still have the taste buds that disappear for about 3 or 4 days. Bone pain isn't so bad, as of yet, but I've only had 2 treatments. Have mouthsores for few days also. Doxorubicins side effect isn't neuropathy and it's getting better in my feet. I was having regular echocardiograms because of the Herceptin and Enhertu so that stays same. Last one in June was fantastic my cardiologist said. I don't smoke or drink so that's a plus for me. I wanted to mention too that there is a group on Facebook for Endometrial cancer patients as well as ovarian and other cancers. I am a member of 3 with 2 being private and 1 public cancer so male and female are members of that one. You can find some great information from others who have gone through or are going through the same thing. It's a great support system. I'm just on pins and needles with anxiety knowing I'm having my CA125 done in a couple weeks and so praying it's going in the right direction. I'll keep trying chemo treatments and eventually trials if I must until we find something that works. Cancer research is continously progressing and soon it will become a medical condition that's not curable but treatable much like AIDS is today. Stage 3 and 4 cancers are already incurable, most anyway, and just treatable to stop progression. Even in remission there's the possibility it will return. Facebook group is full of people who have been cancer free for 10 and even 20 years and that always gives one hope. 🧡

@carol1024 Your post shines with optimism and hope. My doctors have said that cancer research can now view cancers as a sort of chronic illness and that treatments and medications can stop progression. I do remember when the diagnoses of HIV and AIDS were dire with no treatments in view. That has all changed with the results of research.

I can relate to the feeling of anxiety awaiting scans and tests. That was every 6 months for more. Now it's annual. I'll be five years out in December from my endometrial cancer recurrence. My NP told me that if all looks good I can return annually. However, she also offered the option to return every 6 months if I want. I don't want that "lead" to be too long so I may opt for the 6 months check-ins. Anxiety and all.

Healing prayers to you as you go forward with treatment that is working and especially for good results (numbers going down) with the CA125.

@cookercooker feeling better than with other chemo actually. Still have the taste buds that disappear for about 3 or 4 days. Bone pain isn't so bad, as of yet, but I've only had 2 treatments. Have mouthsores for few days also. Doxorubicins side effect isn't neuropathy and it's getting better in my feet. I was having regular echocardiograms because of the Herceptin and Enhertu so that stays same. Last one in June was fantastic my cardiologist said. I don't smoke or drink so that's a plus for me. I wanted to mention too that there is a group on Facebook for Endometrial cancer patients as well as ovarian and other cancers. I am a member of 3 with 2 being private and 1 public cancer so male and female are members of that one. You can find some great information from others who have gone through or are going through the same thing. It's a great support system. I'm just on pins and needles with anxiety knowing I'm having my CA125 done in a couple weeks and so praying it's going in the right direction. I'll keep trying chemo treatments and eventually trials if I must until we find something that works. Cancer research is continously progressing and soon it will become a medical condition that's not curable but treatable much like AIDS is today. Stage 3 and 4 cancers are already incurable, most anyway, and just treatable to stop progression. Even in remission there's the possibility it will return. Facebook group is full of people who have been cancer free for 10 and even 20 years and that always gives one hope. 🧡

@starko
What symptoms were you having that resulted in the MRI?

I read that your tumor markers were increasing but I was just curious what symptoms you were experiencing that resulted in an a MRI of your head.

@gigk I will add my welcome. What brought you to Mayo Clinic Connect and to our Gynecological Cancers Support Group? Have you or a loved one been diagnosed with a gynecological cancer such as ovarian cancer?