3 yrs 8 months still unable to work

Posted by bellableu125 @bellableu125, 13 hours ago

RN here still on medical leave, almost 4 years later. Losing hope. Anyone out there experience improvements this far into Long Haul? I have one doc who thinks I should “call it” and another who thinks I can still improve. I love being a nurse and want nothing more than to get back to work. My ongoing symptoms are severe headaches, brain fog, PEM, POTS, memory/confusion/processing issues, anxiety/ depression, constipation, tremors, numbness feet/hands

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

covidstinks2023 | @covidstinks2023 | 12 hours ago

bellableu125, Bless you. I went to a COVID Recovery Clinic and got the diagnosis of Long Covid. I have COVID twice. I then went to an Integrative Medicine doctor who recommended a lot of supplements. I could not tolerate the infusions to boost my immune system and help with the inflammation. I have some of the same symptoms that you do, but, not all of them.

I am so sorry you are battling so much. Doctors were not prepared nor are they trained in how to treat LC.
You have to be your own advocate on this I have found. There are a lot of good recommendations on here of people battling the same things you are.

COVID wiped out my B12. I was having tingling/burning (parasthesia) in my hands and feet. My body does not
absorb the folates very well. I am on a B12 injection weekly. The parasthesia is gone and I am so grateful.

Praying for you right now to get better. Blessings & Prayers....

joanland | @joanland | 6 hours ago

My daughter, who had what was then called CFS, began to improve after about year 5, started taking 1 class at a time, and after 18 years was fully well again and working full time. Don´t give up!