3 weeks post liver transplant: when will I feel better?

Posted by msfins @msfins, May 15, 2022

I had a liver transplant 3 weeks ago because of an autoimmune disease. I don't feel like myself right now. My face is all puffy and swollen which I assume is from the high doses of steroids. I've always been a thinner person but now I feel so fat and that is weighing on me mentally. My legs are still swollen. If I keep them down for even a short time, they become heavy and make it hard to walk. Everyone keeps telling me to be patient but right now nothing feels like it'll get better. I guess I just stupidly assumed things would bounce right back and that frustrates me. Im so miserable and even becoming more depressed. I tell people that and they make you feel guilty for feeling depressed. I guess I'm just looking to talk to people who actually been thru a similar experience. I would like to know how things went for you. Did you have bad side effects to the medicines? Did you ever get depressed after? Do things actually ever go back to normal again? As far as swelling and water retention. When they lowered your steroids did you lose weight and puffy ness in ur face?

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Hi I’m just on the liver transplant list but I have a friend 8 years post transplant & she is living a full life traveling, working out gently at a gym, living normally as possible. It eases up with time. Acceptance is the key. Get help with depression if you already aren’t. You are not alone.

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Except for my husband my family virtually abandoned me before and after transplant. My parents had died. My in-laws were suspicious and stayed far away. My siblings thought having HepC was nothing to worry about. Even after the transplant they became even more distant. They had no understanding of the toil a transplant takes on you both mentally and physically. They have chosen not to understand. I live with this every day. Be thankful for those who support you.

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@karen51 hi, I sure am glad you’re here then to get support and love from this group. Like family, sometimes we have to choose our own. Love to you.

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