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3 weeks post liver transplant: when will I feel better?
I had a liver transplant 3 weeks ago because of an autoimmune disease. I don't feel like myself right now. My face is all puffy and swollen which I assume is from the high doses of steroids. I've always been a thinner person but now I feel so fat and that is weighing on me mentally. My legs are still swollen. If I keep them down for even a short time, they become heavy and make it hard to walk. Everyone keeps telling me to be patient but right now nothing feels like it'll get better. I guess I just stupidly assumed things would bounce right back and that frustrates me. Im so miserable and even becoming more depressed. I tell people that and they make you feel guilty for feeling depressed. I guess I'm just looking to talk to people who actually been thru a similar experience. I would like to know how things went for you. Did you have bad side effects to the medicines? Did you ever get depressed after? Do things actually ever go back to normal again? As far as swelling and water retention. When they lowered your steroids did you lose weight and puffy ness in ur face?
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Hi Vivian, I will definitely look at it that way, thanks again for your input, it really makes a lot of sense when you put it the way you did.💚🌺🌻🌼
Gracias por responder! You are right, no matter how complicated this all is, it definitely beats the alternative as one only gets a liver transplant when it is the last resort. Each day truly is a Gift! Saludos.
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1 ReactionRejection is gnarly and needs close supervision. Think of your anti-rejection meds as your partners, they allow you to keep this foreign body(the organ) mellowed out and that allows you to live. It can be a roller coaster but you and your team will find what the magic dosage is. It will happen and it will be well worthwhile. Happy summer back at you, honey!
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5 ReactionsFootballmum, yes this happened to me last November . I was in acute liver rejection, I was admitted to the hospital put on high doses of steroids and increased my immunosuppressant's. Today my liver test is stable and hope to start decreasing immunosuppressants. The TP team takes baby steps after rejection.
If they were concerned about rejection they would probably have told u this. Did they increase your immunosuppressant meds? R u getting blood drawn every 2weeks to monitor them.
Best of luck hoping all will stable .💚😊
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2 ReactionsGood morning
On my recent blood draw report my liver enzymes have increased. Not a huge amount , but an increase nun the lest. Has anyone else experienced this?
Thank you 😊
I follow your advice about second transplant but it is fine for me if I do not get a respond, the MELD SCORE I did not ask yet. Because of my first liver Transplant I studied a lot before my transplant so I am specialist in Liver Transplant jajajaja... I am not a doctor Mary but my brother died 6 years ago he got a liver transplant but it wont work on him so I have experience in asking doctors about my liver, my brother lived in california also and he was a Doctor ( pediatrician ). He was transplanted in UCLA the first hospital my doctors send me but at beginning because I need to be in the list I accepted but when I had an opportunity to be transfer to Mayo I chose this Hospital
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1 ReactionHi
Would you happen to know your MELD score?
That might help you to find out what stage of the process you are at.
Take care
Rosemay thank you for your comment and yes I am so positive and graceful what I have 3 years of new life. yes I have cirrhosis symptoms but no bad as the first one and I am not in the list yet because liver condition is not bad yet but cirrhosis continue to affect the liver life Doctor wait until the liver condition shows for a new transplant for now as the first time they keep me in control with medicines
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2 ReactionsDoctors they do not know the reason but my Hepatology asumes the 9 times doctors went inside my liver to clean the viles duct MAY BE affected the liver. So for now they control my Hypertension with Nadodol in a couple of weeks I will have the 3th Endoscopy to see if no varices are in my esophagus this is the way I have to live but I am happy to live after the transplant 3 years
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1 ReactionHi Vivian, thank you for getting back with me.. I have had -rejection so I am taking a lot more prograf than I would like. I am looking forward to the day I have to NOT take so much celcept or not have to take any like u.
Happy summer and many more days ahead to you.💚💚
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