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Jen_b
@jenblalock

Posts: 168
Joined: Jan 02, 2017

24 Hr PH test for GERD - question for those who have had this done

Posted by @jenblalock, Sep 2, 2017

Tuesday morning I’m going to have a tube inserted for 24 hours to test for GERD. I went to National Jewish who diagnosed GERD as the cause of my bronchiectasis and cavitary lesions. I’m getting this test to confirm this diagnosis. Anyway, I am wondering if I should take someone to drive me home afterward. There is no anesthesia used so I should be able to drive myself, right?

REPLY

I’ve had it done twice, …….. and while I’m sure you can drive yourself home, I think it would be better if someone else did the driving. I think you would be more comfortable. I would ask someone to go with me just in case it made you feel a little queasy. (I was fine and you will be too, but take a driver).

@auntnanny

I’ve had it done twice, …….. and while I’m sure you can drive yourself home, I think it would be better if someone else did the driving. I think you would be more comfortable. I would ask someone to go with me just in case it made you feel a little queasy. (I was fine and you will be too, but take a driver).

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Thank you. After reading about the procedure I thought I might be a little freaked out afterward and at least need to sit awhile before I attempted to drive home. My husband was going to be out of town but can cancel that and drive me if need be.

It’s not a bad procedure —– but there’s something about it that makes you kind of want to maybe not be alone driving. You will be able to eat and drink normally so it’s not a scary situation but yes, have someone go with you.

Is National Jewish doing the procedure???? I’ve not been there — I had it once in Tulsa, Okla ——- and again at Mayo’s in Rochester

@auntnanny

Is National Jewish doing the procedure???? I’ve not been there — I had it once in Tulsa, Okla ——- and again at Mayo’s in Rochester

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No. I’m having it done at Medical University of South Carolina. I live in Charleston. I wish NJH would’ve done it while I was there for the extensive appointment. That would have at least settled the question. Although my NJH doctor is absolutely certain GERD is what is causing my issues. But then again they seem to be absolutely certain GERD is causing everyone’s issues there. But I am skeptical by nature. Hence the 24 hour test. 🙂

@auntnanny

Is National Jewish doing the procedure???? I’ve not been there — I had it once in Tulsa, Okla ——- and again at Mayo’s in Rochester

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My primary care in Tulsa was insistent Gerd was my problem too —- and even when the impedence test there said “no”…… he was still insistent. That precipitated my trip to Mayo’s (10 hour drive). Mayo’s had more info with their test. They were able to say I had 150 coughing episodes during the night…… but that it did not correlate with gerd. There was some reflux but did not coincide with the coughing spells. They ruled it out. Just saying…….. they said just bronchiectasis. My primary care in Tulsa wanted me to have the new magnetic ring put in the bottom of my esophagus. It supposedly opens when you swallow and then closes back to keep the reflus from coming up the esophagus. It is a new procedure and there was only one doctor in this area doing it and he had not done many. So, I went to Mayo’s to see if they concurred and thought if so, I would have it done there. But…… they said “no”.

@auntnanny

Is National Jewish doing the procedure???? I’ve not been there — I had it once in Tulsa, Okla ——- and again at Mayo’s in Rochester

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Wow! And to think if you listened without questioning you would have had an unnecessary surgery.

You’re right…… I’m glad you’re going to check that out. Probably National Jewish is right but….. it’s really good you’re going to find out before you do something that might not help. Is coughing your problem?

@auntnanny

You’re right…… I’m glad you’re going to check that out. Probably National Jewish is right but….. it’s really good you’re going to find out before you do something that might not help. Is coughing your problem?

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@auntnanny I had NTM and have cavitary lesions and bronchiectasis. I don’t really cough anymore now that the NTM has been cleared up but the lungs are still damaged (although my breathing scores are very good and I feel fine). My doctor at National Jewish has discussed surgery to remove a section of the lung that has one of the lesions because she thinks it will become reinfected. So, I figure my first step is making absolutely sure GERD is an issue. If it is, then perhaps surgery for GERD would be a better solution than cutting out part of my lung. If it’s not then we’ll go from there. Although I am really not interested in having part of my lung removed when I am feeling fine. That’s a conversation for another time.

I just looked up the procedures (I guess there are two of them) I am having and one is ESOPHAGEAL MANOMETRY WITH IMPEDANCE. Did you have this? Apparently they watch you swallow water while the tube is in your stomach. Takes about 30 minutes.

Yes, I had that in Tulsa. It’s a little bit more difficult than just the normal impedence. They did it first — and then followed it with the 24 hour tubing. At Mayo’s they just did the regular impedence but they did have my results of the manometry and they didn’t consider doing it over. You will be fine. Where I was in Tulsa the tubing for the manometry was a little larger and felt a little bit harder to do but the nurse doing it had it done to herself every year just so she could remember each thing to tell the patient and she was very good. It is a smaller hospital than where you will be going and probably the equipment where you’ll be will be newer. So…… be sure and let me know how you felt after you do it. You’ll at least be glad you did and I hope they are able to do as Mayo’s did with the overnight impedence and will be able to correlate any problem with reflux. I’ll be anxious to know.

@auntnanny

Yes, I had that in Tulsa. It’s a little bit more difficult than just the normal impedence. They did it first — and then followed it with the 24 hour tubing. At Mayo’s they just did the regular impedence but they did have my results of the manometry and they didn’t consider doing it over. You will be fine. Where I was in Tulsa the tubing for the manometry was a little larger and felt a little bit harder to do but the nurse doing it had it done to herself every year just so she could remember each thing to tell the patient and she was very good. It is a smaller hospital than where you will be going and probably the equipment where you’ll be will be newer. So…… be sure and let me know how you felt after you do it. You’ll at least be glad you did and I hope they are able to do as Mayo’s did with the overnight impedence and will be able to correlate any problem with reflux. I’ll be anxious to know.

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auntnanny and jenablock….your conversations re GERD and the testing and its treatments are fascinating. Since l have been told …for decades…that l have GERD…did have an esophagram locally that showed slowing …but none of the other tests….and NJH accepted my diagnosis and the esophagram results….and said my cough was from Gerd silent aspiration and aimed all the treatment…no antibiotics toward the GERD.
they did do a sleep study….l do have sleep obstruction and am on CPAP now.
tdrell

@tdrell @jenblalock @auntnanny

I just read all of your posts and it’s good to see how persistent you have all been in your search for answers. The fact that you have questioned opinions and followed through with other doctors and tests is a credit to you all. I really appreciate how you have all supported each other through these discussions!

Teresa

It is always great to find someone who has already been through what you are facing. When I was ill…… I struggled for 5 years before finally getting smart enough to realize no one around here was familiar with bronchiectasis. I had seen 7 doctors in a 100-mile radius — pulmonologist (believe it or not), cardiologist, allergists, primary care ……. I had pounds to lose but…… I was so ill I lost 70 pounds. Couldn’t eat and I truly thought I was going to die. That was two years ago next month. Mayo’s diagnosed within the hour and I’ve been home — working with them through their portal with Dr. Moua — and live a fairly normal life. Have flares and have to go on antibiotics every month or so, but aside from that, I live on a farm/ranch…… with lots of cattle and crops, I cook lunch for the hired guys, I breed and show labradors, I have a real estate business in town…… I’m only saying, I’ve been able to get back in charge of what I’ve always done. It was surely questionable for a while. I’m 76 years old in case that makes any difference (I hope not). Ha! I hope this is help to others who might wonder what’s ahead for them.

@auntnanny

Yes, I had that in Tulsa. It’s a little bit more difficult than just the normal impedence. They did it first — and then followed it with the 24 hour tubing. At Mayo’s they just did the regular impedence but they did have my results of the manometry and they didn’t consider doing it over. You will be fine. Where I was in Tulsa the tubing for the manometry was a little larger and felt a little bit harder to do but the nurse doing it had it done to herself every year just so she could remember each thing to tell the patient and she was very good. It is a smaller hospital than where you will be going and probably the equipment where you’ll be will be newer. So…… be sure and let me know how you felt after you do it. You’ll at least be glad you did and I hope they are able to do as Mayo’s did with the overnight impedence and will be able to correlate any problem with reflux. I’ll be anxious to know.

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@tdrell It seems all treatments are focused toward GERD at NJH which makes me a bit skeptical. Although they are the professionals and I do notice certain traits of GERD in myself now yet I never really did before (self fulfilling prophecy?). Being me, I have to go those extra steps and get it as confirmed as possible hence the tests I’m doing Tuesday. I did have an esophagram (I think that’s what it was called) at NJH. Is that the one where you drink the liquids and they tip you on the table? It showed very slow motility. That gave me some assurance but not quite enough.

Anyway, it’s really great that they did not put you on the meds! That’s one inconvenience you can forgo. I can’t remember. Have you been diagnosed with NTM? Did they attribute the sleep disturbances to your issues?

@auntnanny

Those are very encouraging words for others!

Teresa

Liked by tdrell, Jen_b

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