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200+ transfusions in two years! Rare strain of anemia...advice please

Posted by Ron and Cilvia @renaldo, Aug 18, 2022

My wife's illness and symptoms are to complex for 70 characters.

We desperately need advice/support.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

ilean | @ilean | Sep 21, 2022
In reply to @colleenyoung "Oh gosh, @ilean. You are going through a lot. I hope you have better luck being..." + (show)
@colleenyoung

Oh gosh, @ilean. You are going through a lot. I hope you have better luck being seen at Baylor. As you can see from the long wait times and lack of appointment availability, hospitals across the nation are really strapped. If you were seeking an appointment at Mayo Clinic's Post-COVID Care Clinic, the denial is likely due to capacity limits. There is simply more demand for appointments that availability. COVID has wreaked havoc on the health care system.

You've mentioned both GI and heart issues related to post COVID. You may wish to join these discussions:
- Covid Recovery: How can I manage GI issues? https://connect.mayoclinic.org/discussion/covid-recovery-and-gi-pain
- Anyone experiencing post covid heart issues? https://connect.mayoclinic.org/discussion/post-covid-heart-issues/

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I was not trying to get into a Covid group as I did not yet know my problems were Covid related. Just knew I had GI issues and possibly POTS at that time. I know the system is not working right now. I just don’t know what to do. It used to be insurance issues but we are willing to pay cash and that does not seem to matter or help.

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