1 cm lung cancer tumor with COPD & emphysema: Anxious
Hi: I am 75 years old and recently diagnosed with emphysema copd and 1 cm nodule that grew 1mm since last year and solidified. I had a pet scan that proved positive for cancer.
My pcp is optimistic that a VATS will take care of the growth as he has determined the copd and emphysema are mild. I typically walk 2 miles mostly up hill almost everyday and am able to breathe quite easily and do all that I need to do.
I am hopefully having a video visit with UPMC surgeon who is highly respected
I am experiencing extreme general anxiety and have been reading many of the comments on here and so appreciate all of you writing about your concerns,success and troubles.
Thank you
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Amen!,,, Don’t you love doctors who can’t stay in their lane!!!!!
I was having a lot of problems with a high rate and my oncologist chalked it up chemo radiation. after 3 months I said refer to a cardiologist. Maybe it was more than his obvious assumption. They did tests on me::::all good but did start me on med that worked on my heart rate.
Fast forward to now ….problems with shortness of breath. yes I have food copd confirmed with Pft 2 years ago. Anyway,what does my oncologist do?.. Puts me on dexa, saline inhalation for my nebulizer. Does he tell me to go my pulmonologist……nope!,,,
he is a great oncologist……NOT a pulmonologist,,,
I questioned him and he said that most patients want him to treat them for all their comorbidities not just their cancer. I think that’s so wrong. What everis wrong is the patient they should see a doctor for whatever is wrong with him .I think it’s really important to separate out your different issues even if your doctor seems to think that he wants to take them all on as ifhe is a trained in all these other specialties. Become a soapbox issue for me because I’m also suffering right now they told me from Malnourishment, so what do they do? They send in someone and tells me I should go home and make myself a smoothie do things like that? Absolutely no help no menu no no clue what to cook how to put on weight. Losing muscle mass no help with that. I came home in the more I thought about it is piss me off. I have an appointment with my regular GP who I’ve had for years on Wednesday. I need to get with the dietitian. I need to get with PT and start doing some kind of therapy to build up his muscle before I lose more. Mention any of that to me nope. Scary thing is I’m in EmoryCancer Center, Winship Cancer Center in Atlanta.
Helen:
My meeting with the pulmonologist was the exception my typical experience. It took me month to get an appointment with the surgeon who kept me.waiting 2 hours. It took 2 weeks to get my scan back then another 2 weeks for the pet then another month to schedule the surgery. It is a frustrating and burdensom process. The only person who is in a hurry is the patient. Medical people are human. They have vacations. People in their families who are sick. Too many patients and not enough time.
I took my car into the mechanic who is a friend of mine. He told me he couldn't get to it for two weeks. This is just a fact of life
My neighbor is a physician and we are good friends. She's 47
I saw her the other day and noticed she lost a lot of weight. She told me she has been terribly anxious having a 2 cm mass on her ovaries and her doctors want her to wait. She is a doctor and her husband a radiologist who questioned the report of the radiologist as being not thorough.
We live in a system. The system does not allow for interaction as far as I can tell. I mentioned my experience like someone would mention seeing a cow jump over the moon.
It is what it is. My pcp tells me, the squeaky wheel gets the grease. He tells me to have sharp elbows when dealing with being seen. After 2 months I am having surgery. It is all I care about in my situation. I don't need to know details about things too complicated for me to understand. Doctors are not my friends. It would be nice if they were but they are people who are doing a job. Some of them are just managing conditions.
Another friend of mine is a doctor, an orthopedist. We are very close. He is much younger. He tells me his philosophy is hurry up and treat them before they heal themselves. It takes 2 months to get an appointment with him. If I need to see him I just walk in the door and take him to lunch. There is a great deal of randomness in this procession to healing or being a professional patient.
It is a frustrating process sometimes. All of us here have been through it i am sure.
Wr are with you in spirit and know that you can navigate it too.
Love,
Frank
Hi Lou:
Makes me sad to know you having these dangerous issues. I just wrote to Helen about her frustrations. The system and the people in it are overloaded. I had my stress test yesterday and was there for 4 hours. Some people there recognized me and we spoke. One nurse told me she hopes she never has to be a patient.
It is all too much for the system. Things fall through the cracks. It is so random.
I have no advice only empathy for a difficult situation. Squeaky wheel gets the grease seems to be the patient option. I hate being that way and to be honest I don't squeak. I just go along living today which is the only day.
I know I am of no help to you. I hope with all my heart that you get what you need.
Frank
@hch559, It sounds like you are on the right track, and it's good that your appointment with the surgeon is next week already. I have some side effects from my targeted therapy treatment, but I have been able to make some changes in my life to work around them. When I look at the alternatives, I know that I have been very fortunate. Take care of yourself over these next few days of waiting.
Lisa, thank you for your support.
Helen
World Health Organization identified air pollution as a major contributing factor. Sorry we're leaving them.
Pretty nuts to leave if you ask me.
Frank, thank you for response. I think I was kind of lack of experience dealing with medical issues.
Before this all I needed was annual physical checkups.
I am 75, find out this disease by accident.
Now I understand when my friends told me their difficulty to make appointments with their doctors.
I think I am in good hands. Just a couple weeks ago, I placed a phone call to a interventional pulmonologist office. the nurse immediately did the necessary actions, scheduled me an appointment with doctor, then biopsy procedure, then the date to see the surgeon.
Thank you for getting in touch with me.
Helen
Helen: i am just thrilled for you. I have no doubt you are going to handle this with grace. YOU ARE DOING IT.
FRANK
@franki24 Hello Franco, I have read all your comments, like everyone's, I wisha all of you a speedy recovery.
Franco, you are one step away from surgery, I wish you with all my heart that you get better, you are very kind and empathetic with everyone. Please keep us informed as it went, but take care of yourself first. Hugs to all, Gustavo from Buenos Aires, Argentina. Sorry if there are any verbs wrongly conjugated, use google translate to write
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