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← Return to 13 weeks post radiation and throat pain continues
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13 weeks post radiation and throat pain continues
Head & Neck Cancer | Last Active: Jan 27 12:18pm | Replies (22)Comment receiving replies
@srm , I will be going through the standard NCCN guideline of 33 radiation “treatments” (as if its a treat) of 69 RAD and three rounds of carboplatin/5-fluorouracil (instead of cisplatin).
There are many successful studies using less radiation and chemo, resulting in less long term side effects and better quality of life in the long run, but these are not approved per the NCCN. These studies are taking place because HPV cancers are showing up more in younger people in their 40’s who will likely live longer with long term side effects, which they are trying to diminish. For those of us in our 60’s, well, we’ve had a good run!
Unfortunately for us already affected, these studies can take as long as 10 years since they need a sizable study group over several years to meet the standard 5 year survival rate. So, here we are….
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Yes. 🙁 Here we are. It's hard.
I'm just hoping my neck doesn't feel worse. I'm four years out, and about a year ago my neck really started feeling stiffer and has effected my tongue (which has effected my speech a bit), and now my collar bone area and my shoulder blade and right arm. I get treatments by a DO and a PT usually once per week, but the side effects seem to be getting worse little by little from year 3 to year 4. *I'm a teacher so the speech thing is hard and exhausting. I talk quite a bit every day.